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Interventions to Promote Functional Capacity of Australian Children and Adolescents with Hereditary or Congenital Cognitive Disabilities: A Scoping Review

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Title: Interventions to Promote Functional Capacity of Australian Children and Adolescents with Hereditary or Congenital Cognitive Disabilities: A Scoping Review
Language: English
Authors: M. D. Marveggio (ORCID 0009-0006-1752-6043), D. S. Dorstyn, D. Turnbull, A. Thirumanickam
Source: Journal of Applied Research in Intellectual Disabilities. 2025 38(5).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 19
Publication Date: 2025
Document Type: Journal Articles
Information Analyses
Reports - Research
Descriptors: Foreign Countries, Intellectual Disability, Congenital Impairments, Children, Intervention, Program Effectiveness, Daily Living Skills, Interpersonal Relationship, Community, Barriers, Research Needs, Capacity Building
Geographic Terms: Australia
DOI: 10.1111/jar.70134
ISSN: 1360-2322
1468-3148
Abstract: Background: The Australian National Disability Insurance Scheme (NDIS) represents a significant shift in service funding for children with hereditary or congenital cognitive disabilities. This PRISMA-based scoping review identifies and maps the NDIS literature to display research gaps and priorities for this cohort. Method: Twenty-nine databases were systematically searched in May 2024 (updated January 2025). Findings were mapped to the NDIS Outcomes Framework. Results: Twenty-nine studies were reviewed (1937 children, mostly pre-adolescent). Qualitative methods were frequently used in this research (k = 16), followed by quantitative (k = 7) and mixed methods (k = 6). Targeted interventions to build child capacity demonstrated positive impacts on Daily Living, Community Participation, and Relationships. Studies did not explore the impact of the NDIS on Learning and Work. Challenges with the NDIS planning process were also reported. Conclusions: Further rigorous research across all NDIS service priority areas, particularly adolescent education and employment, is needed to optimise child outcomes and inform practices.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1487338
Database: ERIC
FullText Text:
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  Data: Interventions to Promote Functional Capacity of Australian Children and Adolescents with Hereditary or Congenital Cognitive Disabilities: A Scoping Review
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  Data: <searchLink fieldCode="AR" term="%22M%2E+D%2E+Marveggio%22">M. D. Marveggio</searchLink> (ORCID <externalLink term="https://orcid.org/0009-0006-1752-6043">0009-0006-1752-6043</externalLink>)<br /><searchLink fieldCode="AR" term="%22D%2E+S%2E+Dorstyn%22">D. S. Dorstyn</searchLink><br /><searchLink fieldCode="AR" term="%22D%2E+Turnbull%22">D. Turnbull</searchLink><br /><searchLink fieldCode="AR" term="%22A%2E+Thirumanickam%22">A. Thirumanickam</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22"><i>Journal of Applied Research in Intellectual Disabilities</i></searchLink>. 2025 38(5).
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: 19
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  Data: 2025
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  Data: Journal Articles<br />Information Analyses<br />Reports - Research
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  Data: <searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink><br /><searchLink fieldCode="DE" term="%22Intellectual+Disability%22">Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22Congenital+Impairments%22">Congenital Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink><br /><searchLink fieldCode="DE" term="%22Intervention%22">Intervention</searchLink><br /><searchLink fieldCode="DE" term="%22Program+Effectiveness%22">Program Effectiveness</searchLink><br /><searchLink fieldCode="DE" term="%22Daily+Living+Skills%22">Daily Living Skills</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+Relationship%22">Interpersonal Relationship</searchLink><br /><searchLink fieldCode="DE" term="%22Community%22">Community</searchLink><br /><searchLink fieldCode="DE" term="%22Barriers%22">Barriers</searchLink><br /><searchLink fieldCode="DE" term="%22Research+Needs%22">Research Needs</searchLink><br /><searchLink fieldCode="DE" term="%22Capacity+Building%22">Capacity Building</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Australia%22">Australia</searchLink>
– Name: DOI
  Label: DOI
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  Data: 10.1111/jar.70134
– Name: ISSN
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  Data: 1360-2322<br />1468-3148
– Name: Abstract
  Label: Abstract
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  Data: Background: The Australian National Disability Insurance Scheme (NDIS) represents a significant shift in service funding for children with hereditary or congenital cognitive disabilities. This PRISMA-based scoping review identifies and maps the NDIS literature to display research gaps and priorities for this cohort. Method: Twenty-nine databases were systematically searched in May 2024 (updated January 2025). Findings were mapped to the NDIS Outcomes Framework. Results: Twenty-nine studies were reviewed (1937 children, mostly pre-adolescent). Qualitative methods were frequently used in this research (k = 16), followed by quantitative (k = 7) and mixed methods (k = 6). Targeted interventions to build child capacity demonstrated positive impacts on Daily Living, Community Participation, and Relationships. Studies did not explore the impact of the NDIS on Learning and Work. Challenges with the NDIS planning process were also reported. Conclusions: Further rigorous research across all NDIS service priority areas, particularly adolescent education and employment, is needed to optimise child outcomes and inform practices.
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  Data: 2025
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        Value: 10.1111/jar.70134
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      – Text: English
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        PageCount: 19
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      – SubjectFull: Foreign Countries
        Type: general
      – SubjectFull: Intellectual Disability
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      – SubjectFull: Congenital Impairments
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      – SubjectFull: Barriers
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      – SubjectFull: Research Needs
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      – SubjectFull: Capacity Building
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      – SubjectFull: Australia
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