Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden
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| Title: | Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden |
|---|---|
| Language: | English |
| Authors: | Tommie Forslund (ORCID |
| Source: | Journal of Applied Research in Intellectual Disabilities. 2025 38(5). |
| Availability: | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Peer Reviewed: | Y |
| Page Count: | 9 |
| Publication Date: | 2025 |
| Document Type: | Journal Articles Reports - Descriptive |
| Descriptors: | Parents with Disabilities, Intellectual Disability, Resources, Allied Health Personnel, Foreign Countries, Services, Child Rearing, Agency Cooperation, Family Needs |
| Geographic Terms: | Sweden |
| DOI: | 10.1111/jar.70136 |
| ISSN: | 1360-2322 1468-3148 |
| Abstract: | Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with intellectual disability through support to the practitioners who support the families. Method: SUF has now existed for 20 years and, in this brief report, we describe SUF's organisation and methods: knowledge dissemination, consultations, development and implementation of adapted methods, research, and support of inter-agency cooperation. Results: We describe selected results, including research, development projects, and an external review of SUFs' work. Conclusions: We reflect on factors that have been important in developing and maintaining adapted support. We emphasise working together with practitioners--grounded in their needs, opportunities and constraints--and to simultaneously address both parents' and children's rights and needs. |
| Abstractor: | As Provided |
| Entry Date: | 2025 |
| Accession Number: | EJ1487713 |
| Database: | ERIC |
| Abstract: | Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with intellectual disability through support to the practitioners who support the families. Method: SUF has now existed for 20 years and, in this brief report, we describe SUF's organisation and methods: knowledge dissemination, consultations, development and implementation of adapted methods, research, and support of inter-agency cooperation. Results: We describe selected results, including research, development projects, and an external review of SUFs' work. Conclusions: We reflect on factors that have been important in developing and maintaining adapted support. We emphasise working together with practitioners--grounded in their needs, opportunities and constraints--and to simultaneously address both parents' and children's rights and needs. |
|---|---|
| ISSN: | 1360-2322 1468-3148 |
| DOI: | 10.1111/jar.70136 |
