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Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden

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Title: Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden
Language: English
Authors: Tommie Forslund (ORCID 0000-0002-5519-9956), Sandra Melander, Lydia Springer, Laila Dahlström Stolpe, Karin Jöreskog
Source: Journal of Applied Research in Intellectual Disabilities. 2025 38(5).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 9
Publication Date: 2025
Document Type: Journal Articles
Reports - Descriptive
Descriptors: Parents with Disabilities, Intellectual Disability, Resources, Allied Health Personnel, Foreign Countries, Services, Child Rearing, Agency Cooperation, Family Needs
Geographic Terms: Sweden
DOI: 10.1111/jar.70136
ISSN: 1360-2322
1468-3148
Abstract: Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with intellectual disability through support to the practitioners who support the families. Method: SUF has now existed for 20 years and, in this brief report, we describe SUF's organisation and methods: knowledge dissemination, consultations, development and implementation of adapted methods, research, and support of inter-agency cooperation. Results: We describe selected results, including research, development projects, and an external review of SUFs' work. Conclusions: We reflect on factors that have been important in developing and maintaining adapted support. We emphasise working together with practitioners--grounded in their needs, opportunities and constraints--and to simultaneously address both parents' and children's rights and needs.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1487713
Database: ERIC
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  Data: Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden
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  Data: <searchLink fieldCode="AR" term="%22Tommie+Forslund%22">Tommie Forslund</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-5519-9956">0000-0002-5519-9956</externalLink>)<br /><searchLink fieldCode="AR" term="%22Sandra+Melander%22">Sandra Melander</searchLink><br /><searchLink fieldCode="AR" term="%22Lydia+Springer%22">Lydia Springer</searchLink><br /><searchLink fieldCode="AR" term="%22Laila+Dahlström+Stolpe%22">Laila Dahlström Stolpe</searchLink><br /><searchLink fieldCode="AR" term="%22Karin+Jöreskog%22">Karin Jöreskog</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22"><i>Journal of Applied Research in Intellectual Disabilities</i></searchLink>. 2025 38(5).
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: Y
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  Data: 9
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  Data: 2025
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  Data: Journal Articles<br />Reports - Descriptive
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  Data: <searchLink fieldCode="DE" term="%22Parents+with+Disabilities%22">Parents with Disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Intellectual+Disability%22">Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22Resources%22">Resources</searchLink><br /><searchLink fieldCode="DE" term="%22Allied+Health+Personnel%22">Allied Health Personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink><br /><searchLink fieldCode="DE" term="%22Services%22">Services</searchLink><br /><searchLink fieldCode="DE" term="%22Child+Rearing%22">Child Rearing</searchLink><br /><searchLink fieldCode="DE" term="%22Agency+Cooperation%22">Agency Cooperation</searchLink><br /><searchLink fieldCode="DE" term="%22Family+Needs%22">Family Needs</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Sweden%22">Sweden</searchLink>
– Name: DOI
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  Data: 10.1111/jar.70136
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  Data: 1360-2322<br />1468-3148
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with intellectual disability through support to the practitioners who support the families. Method: SUF has now existed for 20 years and, in this brief report, we describe SUF's organisation and methods: knowledge dissemination, consultations, development and implementation of adapted methods, research, and support of inter-agency cooperation. Results: We describe selected results, including research, development projects, and an external review of SUFs' work. Conclusions: We reflect on factors that have been important in developing and maintaining adapted support. We emphasise working together with practitioners--grounded in their needs, opportunities and constraints--and to simultaneously address both parents' and children's rights and needs.
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        Value: 10.1111/jar.70136
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      – Text: English
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        PageCount: 9
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      – SubjectFull: Parents with Disabilities
        Type: general
      – SubjectFull: Intellectual Disability
        Type: general
      – SubjectFull: Resources
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      – SubjectFull: Allied Health Personnel
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      – SubjectFull: Foreign Countries
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      – SubjectFull: Services
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      – SubjectFull: Child Rearing
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      – SubjectFull: Agency Cooperation
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      – SubjectFull: Family Needs
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      – SubjectFull: Sweden
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      – TitleFull: Adapted Support to Families Headed by Parents with Intellectual Disability through Support to Practitioners: SUF Resource Centre and Examples from Uppsala, Sweden
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              Y: 2025
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