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Self-Experienced Difficulties in Communicative Participation in Children with Speech, Language and Communication Needs--A Concept Elicitation Study

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Title: Self-Experienced Difficulties in Communicative Participation in Children with Speech, Language and Communication Needs--A Concept Elicitation Study
Language: English
Authors: Eline Alons (ORCID 0000-0002-1593-5082), Bianca Berndsen-van Swaaij (ORCID 0009-0006-7147-1602), Caroline Terwee (ORCID 0000-0003-4570-2826), Ellen Gerrits (ORCID 0000-0002-4403-0792), Margreet Luinge (ORCID 0000-0003-2855-3523), Lizet van Ewijk (ORCID 0000-0002-8916-8023)
Source: International Journal of Language & Communication Disorders. 2026 61(1).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 15
Publication Date: 2026
Document Type: Journal Articles
Reports - Research
Tests/Questionnaires
Descriptors: Communication Disorders, Children, Speech Impairments, Developmental Disabilities, Language Impairments, Voice Disorders, Hard of Hearing, Communication Problems, Experience, Childrens Attitudes
DOI: 10.1111/1460-6984.70170
ISSN: 1368-2822
1460-6984
Abstract: Background: Communicative participation is the most important outcome of speech and language therapy. A patient-reported outcome measure (PROM) for children would help capture this outcome. Before this PROM can be developed, it is important to find out what situations children themselves find difficult because of their communication problem. Aims: The aim of the study was to identify relevant aspects of self-reported communicative participation in children with communication disorders. Method and Procedures: Thirteen children (5-12 years old) with speech disorders, developmental language disorders (DLDs), voice disorders and/or hearing loss were interviewed with semi-structured interviews. Before the interview they kept a diary for 1 week, documenting participation situations that were difficult because of their communication problem. Within 1 week after completing the diaries, the children were interviewed. In addition, children's ability to recall situations and reflect upon communicative participation was observed. The data analysis was conducted using directed content analysis, drawing on an existing theoretical framework. Outcomes and Results: A total of 171 situations were discussed, leading to the identification of 44 concepts, categorized into the following six categories--"person," "topic," "pace," "location," "moment" and "mode." Some of the participants had difficulty recalling situations, and reflecting upon communicative participation. This was particularly true for children under 8 years of age (all with DLD) and two children over 8 years of age with DLD and an indication for a school for children with special needs. Conclusions and Implications: The 44 concepts provide insight into the difficulties in communicative participation experienced by children themselves. These concepts will be used to develop a PROM to assess children's communicative participation.
Abstractor: As Provided
Entry Date: 2026
Accession Number: EJ1495116
Database: ERIC
FullText Text:
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  Data: Self-Experienced Difficulties in Communicative Participation in Children with Speech, Language and Communication Needs--A Concept Elicitation Study
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  Data: English
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  Data: <searchLink fieldCode="AR" term="%22Eline+Alons%22">Eline Alons</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-1593-5082">0000-0002-1593-5082</externalLink>)<br /><searchLink fieldCode="AR" term="%22Bianca+Berndsen-van+Swaaij%22">Bianca Berndsen-van Swaaij</searchLink> (ORCID <externalLink term="https://orcid.org/0009-0006-7147-1602">0009-0006-7147-1602</externalLink>)<br /><searchLink fieldCode="AR" term="%22Caroline+Terwee%22">Caroline Terwee</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-4570-2826">0000-0003-4570-2826</externalLink>)<br /><searchLink fieldCode="AR" term="%22Ellen+Gerrits%22">Ellen Gerrits</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-4403-0792">0000-0002-4403-0792</externalLink>)<br /><searchLink fieldCode="AR" term="%22Margreet+Luinge%22">Margreet Luinge</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-2855-3523">0000-0003-2855-3523</externalLink>)<br /><searchLink fieldCode="AR" term="%22Lizet+van+Ewijk%22">Lizet van Ewijk</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-8916-8023">0000-0002-8916-8023</externalLink>)
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  Data: <searchLink fieldCode="SO" term="%22International+Journal+of+Language+%26+Communication+Disorders%22"><i>International Journal of Language & Communication Disorders</i></searchLink>. 2026 61(1).
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: Y
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  Data: 15
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  Label: Publication Date
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  Data: 2026
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  Data: Journal Articles<br />Reports - Research<br />Tests/Questionnaires
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  Label: Descriptors
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Communication+Disorders%22">Communication Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink><br /><searchLink fieldCode="DE" term="%22Speech+Impairments%22">Speech Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+Disabilities%22">Developmental Disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Language+Impairments%22">Language Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Voice+Disorders%22">Voice Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Hard+of+Hearing%22">Hard of Hearing</searchLink><br /><searchLink fieldCode="DE" term="%22Communication+Problems%22">Communication Problems</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Childrens+Attitudes%22">Childrens Attitudes</searchLink>
– Name: DOI
  Label: DOI
  Group: ID
  Data: 10.1111/1460-6984.70170
– Name: ISSN
  Label: ISSN
  Group: ISSN
  Data: 1368-2822<br />1460-6984
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Communicative participation is the most important outcome of speech and language therapy. A patient-reported outcome measure (PROM) for children would help capture this outcome. Before this PROM can be developed, it is important to find out what situations children themselves find difficult because of their communication problem. Aims: The aim of the study was to identify relevant aspects of self-reported communicative participation in children with communication disorders. Method and Procedures: Thirteen children (5-12 years old) with speech disorders, developmental language disorders (DLDs), voice disorders and/or hearing loss were interviewed with semi-structured interviews. Before the interview they kept a diary for 1 week, documenting participation situations that were difficult because of their communication problem. Within 1 week after completing the diaries, the children were interviewed. In addition, children's ability to recall situations and reflect upon communicative participation was observed. The data analysis was conducted using directed content analysis, drawing on an existing theoretical framework. Outcomes and Results: A total of 171 situations were discussed, leading to the identification of 44 concepts, categorized into the following six categories--"person," "topic," "pace," "location," "moment" and "mode." Some of the participants had difficulty recalling situations, and reflecting upon communicative participation. This was particularly true for children under 8 years of age (all with DLD) and two children over 8 years of age with DLD and an indication for a school for children with special needs. Conclusions and Implications: The 44 concepts provide insight into the difficulties in communicative participation experienced by children themselves. These concepts will be used to develop a PROM to assess children's communicative participation.
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  Data: As Provided
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  Data: 2026
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  Data: EJ1495116
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      – SubjectFull: Communication Disorders
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      – SubjectFull: Children
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      – SubjectFull: Speech Impairments
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      – TitleFull: Self-Experienced Difficulties in Communicative Participation in Children with Speech, Language and Communication Needs--A Concept Elicitation Study
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