Self-Experienced Difficulties in Communicative Participation in Children with Speech, Language and Communication Needs--A Concept Elicitation Study
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| Title: | Self-Experienced Difficulties in Communicative Participation in Children with Speech, Language and Communication Needs--A Concept Elicitation Study |
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| Language: | English |
| Authors: | Eline Alons (ORCID |
| Source: | International Journal of Language & Communication Disorders. 2026 61(1). |
| Availability: | Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us |
| Peer Reviewed: | Y |
| Page Count: | 15 |
| Publication Date: | 2026 |
| Document Type: | Journal Articles Reports - Research Tests/Questionnaires |
| Descriptors: | Communication Disorders, Children, Speech Impairments, Developmental Disabilities, Language Impairments, Voice Disorders, Hard of Hearing, Communication Problems, Experience, Childrens Attitudes |
| DOI: | 10.1111/1460-6984.70170 |
| ISSN: | 1368-2822 1460-6984 |
| Abstract: | Background: Communicative participation is the most important outcome of speech and language therapy. A patient-reported outcome measure (PROM) for children would help capture this outcome. Before this PROM can be developed, it is important to find out what situations children themselves find difficult because of their communication problem. Aims: The aim of the study was to identify relevant aspects of self-reported communicative participation in children with communication disorders. Method and Procedures: Thirteen children (5-12 years old) with speech disorders, developmental language disorders (DLDs), voice disorders and/or hearing loss were interviewed with semi-structured interviews. Before the interview they kept a diary for 1 week, documenting participation situations that were difficult because of their communication problem. Within 1 week after completing the diaries, the children were interviewed. In addition, children's ability to recall situations and reflect upon communicative participation was observed. The data analysis was conducted using directed content analysis, drawing on an existing theoretical framework. Outcomes and Results: A total of 171 situations were discussed, leading to the identification of 44 concepts, categorized into the following six categories--"person," "topic," "pace," "location," "moment" and "mode." Some of the participants had difficulty recalling situations, and reflecting upon communicative participation. This was particularly true for children under 8 years of age (all with DLD) and two children over 8 years of age with DLD and an indication for a school for children with special needs. Conclusions and Implications: The 44 concepts provide insight into the difficulties in communicative participation experienced by children themselves. These concepts will be used to develop a PROM to assess children's communicative participation. |
| Abstractor: | As Provided |
| Entry Date: | 2026 |
| Accession Number: | EJ1495116 |
| Database: | ERIC |
| Abstract: | Background: Communicative participation is the most important outcome of speech and language therapy. A patient-reported outcome measure (PROM) for children would help capture this outcome. Before this PROM can be developed, it is important to find out what situations children themselves find difficult because of their communication problem. Aims: The aim of the study was to identify relevant aspects of self-reported communicative participation in children with communication disorders. Method and Procedures: Thirteen children (5-12 years old) with speech disorders, developmental language disorders (DLDs), voice disorders and/or hearing loss were interviewed with semi-structured interviews. Before the interview they kept a diary for 1 week, documenting participation situations that were difficult because of their communication problem. Within 1 week after completing the diaries, the children were interviewed. In addition, children's ability to recall situations and reflect upon communicative participation was observed. The data analysis was conducted using directed content analysis, drawing on an existing theoretical framework. Outcomes and Results: A total of 171 situations were discussed, leading to the identification of 44 concepts, categorized into the following six categories--"person," "topic," "pace," "location," "moment" and "mode." Some of the participants had difficulty recalling situations, and reflecting upon communicative participation. This was particularly true for children under 8 years of age (all with DLD) and two children over 8 years of age with DLD and an indication for a school for children with special needs. Conclusions and Implications: The 44 concepts provide insight into the difficulties in communicative participation experienced by children themselves. These concepts will be used to develop a PROM to assess children's communicative participation. |
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| ISSN: | 1368-2822 1460-6984 |
| DOI: | 10.1111/1460-6984.70170 |
