Understanding of Autism and the Diagnostic Process in Uzbekistan: Mothers' Perspectives
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| Title: | Understanding of Autism and the Diagnostic Process in Uzbekistan: Mothers' Perspectives |
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| Language: | English |
| Authors: | Kristie Asaro-Saddler (ORCID |
| Source: | Research and Practice for Persons with Severe Disabilities. 2026 51(2):79-93. |
| Availability: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 15 |
| Publication Date: | 2026 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Foreign Countries, Autism Spectrum Disorders, Parent Attitudes, Mothers, Knowledge Level, Clinical Diagnosis, Misconceptions, Disability Identification, Barriers, Cultural Influences |
| Geographic Terms: | Uzbekistan |
| DOI: | 10.1177/15407969251343493 |
| ISSN: | 1540-7969 2169-2408 |
| Abstract: | Although much is known about autism worldwide, it is not well understood in many non-Western communities. The purpose of this study was to add to the limited database on autism in underrepresented countries by exploring Uzbek mothers' understanding of autism and their perceptions of their child's assessment and diagnostic process. Seven mothers in Uzbekistan participated in a semistructured, open-ended focus group interview conducted remotely via Zoom. Data were analyzed using thematic analysis. Findings revealed that mothers had a good understanding of the causes of autism, though some still lacked knowledge and believed in theories such as vaccines, and that mothers described a long and difficult identification process, highlighted by a lack of trained professionals and services in Uzbekistan. The findings highlight the influence of several contextual factors uniquely distinct to Uzbekistan that would be important to consider for practitioners and future efforts designed to support this population. |
| Abstractor: | As Provided |
| Entry Date: | 2026 |
| Accession Number: | EJ1504057 |
| Database: | ERIC |
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| Abstract: | Although much is known about autism worldwide, it is not well understood in many non-Western communities. The purpose of this study was to add to the limited database on autism in underrepresented countries by exploring Uzbek mothers' understanding of autism and their perceptions of their child's assessment and diagnostic process. Seven mothers in Uzbekistan participated in a semistructured, open-ended focus group interview conducted remotely via Zoom. Data were analyzed using thematic analysis. Findings revealed that mothers had a good understanding of the causes of autism, though some still lacked knowledge and believed in theories such as vaccines, and that mothers described a long and difficult identification process, highlighted by a lack of trained professionals and services in Uzbekistan. The findings highlight the influence of several contextual factors uniquely distinct to Uzbekistan that would be important to consider for practitioners and future efforts designed to support this population. |
|---|---|
| ISSN: | 1540-7969 2169-2408 |
| DOI: | 10.1177/15407969251343493 |
