Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation
Saved in:
| Title: | Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation |
|---|---|
| Language: | English |
| Authors: | Daniele C. Martino (ORCID |
| Source: | Journal of Autism and Developmental Disorders. 2026 56(1):436-441. |
| Availability: | Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Peer Reviewed: | Y |
| Page Count: | 6 |
| Publication Date: | 2026 |
| Sponsoring Agency: | National Center for Advancing Translational Sciences (NCATS) (DHHS/NIH) |
| Contract Number: | UL1TR003015 |
| Document Type: | Journal Articles Reports - Research |
| Education Level: | Adult Education |
| Descriptors: | Autism Spectrum Disorders, Children, Services, Rural Areas, Barriers, Psychoeducational Methods, Program Effectiveness, Parent Education, Caregivers, Allied Health Personnel, Access to Education |
| Geographic Terms: | Virginia |
| DOI: | 10.1007/s10803-024-06305-6 |
| ISSN: | 0162-3257 1573-3432 |
| Abstract: | Purpose: Evidence-based intervention can significantly improve the trajectory of symptoms and overall outcomes for children with autism spectrum disorder (ASD), especially when implemented at an early age. However, families residing in rural communities experience barriers to accessing ASD-related services. The purpose of this pilot study was to assess how the provision of accessible caregiver psychoeducation related to new service acquisition for children recently diagnosed with ASD in rural Southwest Virginia. Methods: Psychoeducation was delivered either live by a clinician (Live PE, n = 13 caregivers) or via paper materials (Paper PE, n = 10 caregivers) and included content on ASD epidemiology and symptoms, risk factors, evidence-based interventions, and navigating service systems. Survey data were collected from caregivers of 20 children to measure new service acquisition within six months following psychoeducation. Results: Results indicated that 81.8% of children whose caregivers received Live PE obtained at least one new service within six months, compared to 55.6% of those whose caregivers received Paper PE. An independent samples t-test showed a significant difference in the number of new services obtained between groups, such that the Live PE group received over 2.5 times as many services as the Paper PE group. Conclusion: Results suggest that psychoeducation, particularly delivered by a clinician, positively impacted service acquisition, and emphasize the clinical importance of personalized, accessible ASD psychoeducation for rural families. Future implications are discussed, including recommendations to evaluate the role of psychoeducation on service acquisition in larger samples. |
| Abstractor: | As Provided |
| Entry Date: | 2026 |
| Accession Number: | EJ1504743 |
| Database: | ERIC |
|
Full text is not displayed to guests.
Login for full access.
|
|
| FullText | Links: – Type: pdflink Url: https://content.ebscohost.com/cds/retrieve?content=AQICAHj0k_4E0hTGH8RJwT4gCJyBsGNe_WN95AvKlDbXJGqwxwFUqWTujE7EkIChhzFU9zrNAAAA4jCB3wYJKoZIhvcNAQcGoIHRMIHOAgEAMIHIBgkqhkiG9w0BBwEwHgYJYIZIAWUDBAEuMBEEDKJFdhazBboiyWF9-QIBEICBmkrWs1nHJFKQOWkFURSYdVfuFOsvpgsYtCxJMOTEZ9pxIFNEvBUHoXsFd6fkA9gDhkL2yO3g34348h4HSzRj74FNtc9SKg4qsr-wr35M5fPZ81ZijuPQVCgfDyIou9c8-K-1tE6A4Hg7N3fqpP7cnbmdBPTyikOs05v7gDC76T3jD_6rvZeM2tNJMGpEnfhrLDfT2RylFIBBy9w= Text: Availability: 1 Value: <anid>AN0191290283;aut01jan.26;2026Feb04.02:38;v2.2.500</anid> <title id="AN0191290283-1">Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation </title> <p>Purpose: Evidence-based intervention can significantly improve the trajectory of symptoms and overall outcomes for children with autism spectrum disorder (ASD), especially when implemented at an early age. However, families residing in rural communities experience barriers to accessing ASD-related services. The purpose of this pilot study was to assess how the provision of accessible caregiver psychoeducation related to new service acquisition for children recently diagnosed with ASD in rural Southwest Virginia. Methods: Psychoeducation was delivered either live by a clinician (Live PE, n = 13 caregivers) or via paper materials (Paper PE, n = 10 caregivers) and included content on ASD epidemiology and symptoms, risk factors, evidence-based interventions, and navigating service systems. Survey data were collected from caregivers of 20 children to measure new service acquisition within six months following psychoeducation. Results: Results indicated that 81.8% of children whose caregivers received Live PE obtained at least one new service within six months, compared to 55.6% of those whose caregivers received Paper PE. An independent samples t-test showed a significant difference in the number of new services obtained between groups, such that the Live PE group received over 2.5 times as many services as the Paper PE group. Conclusion: Results suggest that psychoeducation, particularly delivered by a clinician, positively impacted service acquisition, and emphasize the clinical importance of personalized, accessible ASD psychoeducation for rural families. Future implications are discussed, including recommendations to evaluate the role of psychoeducation on service acquisition in larger samples.</p> <p>Keywords: Autism; Psychoeducation; Caregiver; Evidence-based; Rural; Access; Medical and Health Sciences Public Health and Health Services</p> <p>Autism spectrum disorder (ASD) is a neurodevelopmental condition that affects approximately 1 in 36 children in the United States (Maenner et al., [<reflink idref="bib8" id="ref1">8</reflink>]). ASD typically first presents between late infancy and early childhood and is characterized by difficulties with social interaction, communication, and restricted interests and repetitive behaviors (American Psychiatric Association, [<reflink idref="bib1" id="ref2">1</reflink>]). In addition to these symptoms, children on the autism spectrum may exhibit internalizing and externalizing behaviors such as aggression, anxiety, hyperactivity, oppositionality, and self-injury (Bauminger et al., [<reflink idref="bib4" id="ref3">4</reflink>]; Minshawi et al., [<reflink idref="bib11" id="ref4">11</reflink>]; Salazar et al., [<reflink idref="bib14" id="ref5">14</reflink>]). This can interfere with functioning and contribute to social and emotional difficulties, lower acceptance from peers, and decreased quality of life (Bauminger et al., [<reflink idref="bib4" id="ref6">4</reflink>]; Gerber et al., [<reflink idref="bib7" id="ref7">7</reflink>]).</p> <hd id="AN0191290283-2">Rural Barriers to ASD Evidence-Based Interventions</hd> <p>Evidence-based interventions that target the symptoms and behaviors associated with ASD can improve symptom trajectory and overall outcomes for children on the autism spectrum, especially when implemented at an early age (Elder et al., [<reflink idref="bib6" id="ref8">6</reflink>]; Smith &amp; Iadarola, [<reflink idref="bib16" id="ref9">16</reflink>]). Current evidence-based interventions for ASD may target communication, language, social skills, behavior management, academic progress, and daily living skills (National Institute of Mental Health, [<reflink idref="bib12" id="ref10">12</reflink>]). Despite the effectiveness of these interventions in promoting positive outcomes for children with ASD, families residing in resource-limited areas experience barriers to accessing services and consequently receive services at lower rates than other families (Scarpa et al., [<reflink idref="bib15" id="ref11">15</reflink>]; Wallace-Watkin et al., [<reflink idref="bib19" id="ref12">19</reflink>]). In rural communities, commonly reported barriers to service access include financial and transportation barriers, lack of specialist providers, and lack of caregiver knowledge about ASD and available related resources (Antezana et al., [<reflink idref="bib2" id="ref13">2</reflink>]; Scarpa et al., [<reflink idref="bib15" id="ref14">15</reflink>]). Even in cases where interventions are available within the community (e.g., through school or community-based agencies), many families do not know which services are appropriate for their child and lack the knowledge to navigate complex systems of care (Stahmer et al., [<reflink idref="bib17" id="ref15">17</reflink>]). Further, many caregivers report high levels of stress related to the process of seeking ASD services for their children (Crane et al., [<reflink idref="bib5" id="ref16">5</reflink>]) and confusion about the service landscape (McGrew &amp; Keyes, [<reflink idref="bib9" id="ref17">9</reflink>]).</p> <hd id="AN0191290283-3">The Role of ASD Psychoeducation and Family Support</hd> <p>These challenges underscore the importance of accessible psychoeducation about ASD for families of newly diagnosed children, including comprehensive resources about the services that are available and how to acquire them (Roughan et al., [<reflink idref="bib13" id="ref18">13</reflink>]). Research has also shown that family support that includes education about ASD characteristics, guidance in accessing resources, and assistance in advocating for their children is crucial following an ASD diagnosis (Milgramm et al., [<reflink idref="bib10" id="ref19">10</reflink>]). However, psychoeducation and family support following an ASD diagnosis are not consistently provided to families in low-resource areas (Scarpa et al., [<reflink idref="bib15" id="ref20">15</reflink>]). For example, Scarpa and colleagues ([<reflink idref="bib15" id="ref21">15</reflink>]) found that, when interviewing caregivers of children diagnosed with ASD in rural Appalachia, only 40% reported receiving information about available resources after receiving the diagnosis. Many rural communities such as those in Southwest Virginia do not have an existing system in place to facilitate the process from ASD screening and assessment, to diagnosis, to intervention. As such, families must rely on other avenues such as Early Intervention or the school system to obtain access to screening and services (Antezana et al., [<reflink idref="bib2" id="ref22">2</reflink>]; Azano &amp; Tackett, [<reflink idref="bib3" id="ref23">3</reflink>]). With respect to these limitations in accessing information about ASD and the services available in rural areas like Southwest Virginia, accessible ASD psychoeducation in these areas is warranted.</p> <hd id="AN0191290283-4">The Present Study</hd> <p>Evidence-based interventions have the potential to promote positive outcomes for children on the autism spectrum. However, uptake of these interventions requires caregivers to be aware that these services are available and to have the knowledge and means to access them. The present pilot study addresses the need for accessible psychoeducation and support for families in underserved communities by providing ASD psychoeducation for caregivers of children recently diagnosed with ASD in rural Southwest Virginia. The purpose of the provided psychoeducation was to empower caregivers by contributing to their understanding of the ASD diagnosis and relevant services that may be available to them and improving their self-efficacy to obtain services for their child. Our primary aim was to test the hypothesis that provision of clinician-delivered psychoeducation following an ASD diagnosis would be positively related to new service acquisition among children, as measured by percentage of families reporting new services and the number of services obtained. A secondary aim was to explore the specific types of services that were obtained.</p> <hd id="AN0191290283-5">Methods</hd> <p></p> <hd id="AN0191290283-6">Participants</hd> <p>Participants included 20 children recently diagnosed with ASD, ages 2–14 years (<emph>M</emph> = 7.2 years; 70% male; 75% White). The sample was more diverse in comparison to the general population in the Southwest Virginia counties where the participants resided (<emph>M</emph> = 91.78% White; U.S. Census Bureau, [<reflink idref="bib18" id="ref24">18</reflink>]). Children's caregivers (<emph>n</emph> = 23; 69.6% biological mothers; ages 24–47, <emph>M</emph> = 35.7) were randomly assigned to receive one of two ASD psychoeducation delivery formats: live (Live PE) or paper materials (Paper PE). Caregivers were recruited via flyers distributed to local ASD listservs and community organizations in counties in Southwest Virginia. Eligible caregivers were English-speaking, had a child between 1.5 and 17 years old who exhibited symptoms consistent with ASD, were available to attend all sessions, and resided in a Southwest Virginia County. Regarding socioeconomic status of the sample, family annual income was reported as follows: $25,000 or less (<emph>n</emph> = 8); $26,000-$50,000 (<emph>n</emph> = 6); $51,000-$75,000 (<emph>n</emph> = 1); $76,000-$99,000 (<emph>n</emph> = 2); Above $100,000 (<emph>n</emph> = 3). Caregivers received a diagnostic evaluation for their child, and only those whose child received an ASD diagnosis remained in the study to receive psychoeducation.</p> <hd id="AN0191290283-7">Materials and Procedure</hd> <p>This study was approved by the Virginia Tech Institutional Review Board (IRB-19-423). The Live PE group (<emph>n</emph> = 11 families, 13 caregivers) received two 90-minute, live clinician-led psychoeducation sessions provided via telehealth (<emph>n</emph> = 9 families, <emph>n</emph> = 11 caregivers) or in person (<emph>n</emph> = 2 families, <emph>n</emph> = 2 caregivers) where a clinician discussed several ASD-related topics with supporting PowerPoint slides. These sessions were interactive such that caregivers had the opportunity to ask questions and receive live feedback from the clinician to focus on information applicable to their child, and to promote their knowledge of ASD and their self-efficacy to seek services for their child. Psychoeducation content included the following topics: epidemiology and symptoms of ASD, risk factors associated with developing ASD, evidence-based services pertinent to their child's ASD symptoms, and service navigation strategies (e.g., public education system, insurance, Medicaid waivers). The Paper PE group (<emph>n</emph> = 9 families, 10 caregivers) received paper materials containing the same material that was presented on the PowerPoint slides, but without clinician-led sessions. The content of the slides and materials was consistent with a high school reading level. Caregivers were provided with clinician contact information and encouraged to reach out if they had questions. One caregiver in the Paper PE group contacted the clinician with questions regarding how to initiate the Individualized Education Program (IEP) process in their school.</p> <p>Service acquisition was measured by a new services survey in which caregivers indicated whether their child received any new services within six months following psychoeducation via Yes/No check boxes. In instances where more than one caregiver from a single family received psychoeducation, the survey was only completed once per child (<emph>n</emph> = 20). The survey also included an open-ended response question that asked caregivers to specify these service changes (e.g., type of service obtained). Children were coded as receiving new services if caregivers checked "Yes" on the survey, and the number and type of new services reported was documented.</p> <hd id="AN0191290283-8">Analytic Plan</hd> <p>All analyses were conducted in SPSS. Descriptive statistics were obtained for all children and caregivers included in the study. A chi-square test was used to compare the proportion of children obtaining new services between caregiver psychoeducation groups (Live PE vs. Paper PE), and an independent samples t-test was used to assess the difference in total number of services obtained between the Live PE and Paper PE groups. All analyses were one-tailed to reflect the directional hypothesis. Open-ended response questions were coded thematically to categorize the type of intervention or service that was received.</p> <hd id="AN0191290283-9">Results</hd> <p>Overall, 70% of children obtained new services following caregiver psychoeducation, reflecting 10 different types of services. Results indicated that 81.8% of children whose caregivers were in the Live PE group obtained at least one new service within six months post-psychoeducation, compared to 55.6% of children whose caregivers were in the Paper PE group (depicted by Fig. 1).</p> <p>Graph: Fig. 1 Percentage of children who obtained new services compared between caregiver psychoeducation groups</p> <p>Chi-square analyses showed a nonsignificant trend in the proportion of children obtaining new services between the two groups, χ<sups>2</sups> (<reflink idref="bib1" id="ref25">1</reflink>, _I_N_i_ = 20) = 1.63, <emph>p</emph> =.10, φ = 0.29. The difference in mean number of new services obtained was significant, <emph>t</emph>(15.52) = 1.74, <emph>p</emph> =.05, <emph>g</emph> = 1.34, such that the Live PE group obtained over 2.5 times more services (<emph>M</emph> = 1.73, <emph>SD</emph> = 1.56) than the Paper PE group (<emph>M</emph> = 0.78, <emph>SD</emph> = 0.83; Table 1). Types of services obtained by each group are also listed in Table 1.</p> <p>Table 1 <emph>Child Services Obtained per Caregiver Psychoeducation Group</emph></p> <p> <ephtml> &lt;table rules="groups"&gt;&lt;thead&gt;&lt;tr&gt;&lt;th align="left" /&gt;&lt;th align="left"&gt;&lt;p&gt;Total Number of&lt;/p&gt;&lt;p&gt;Services Obtained&lt;/p&gt;&lt;/th&gt;&lt;th align="left"&gt;&lt;p&gt;Type of Services Obtained&lt;/p&gt;&lt;/th&gt;&lt;/tr&gt;&lt;/thead&gt;&lt;tbody&gt;&lt;tr&gt;&lt;td align="left"&gt;&lt;p&gt;Live PE Group&lt;/p&gt;&lt;/td&gt;&lt;td char="." align="char"&gt;&lt;p&gt;19&lt;/p&gt;&lt;p&gt;(&lt;italic&gt;M =&lt;/italic&gt; 1.73; &lt;italic&gt;SD =&lt;/italic&gt; 1.56)&lt;/p&gt;&lt;/td&gt;&lt;td align="left"&gt;&lt;p&gt;Occupational Therapy, &lt;italic&gt;n&lt;/italic&gt; = 5&lt;/p&gt;&lt;p&gt;ABA, &lt;italic&gt;n&lt;/italic&gt; = 3&lt;/p&gt;&lt;p&gt;Special Education Services, &lt;italic&gt;n&lt;/italic&gt; = 3&lt;/p&gt;&lt;p&gt;Individual Therapy, &lt;italic&gt;n&lt;/italic&gt; = 2&lt;/p&gt;&lt;p&gt;Physical Therapy, &lt;italic&gt;n&lt;/italic&gt; = 2&lt;/p&gt;&lt;p&gt;Speech Therapy, &lt;italic&gt;n&lt;/italic&gt; = 2&lt;/p&gt;&lt;p&gt;DD Waiver, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;p&gt;Case Management, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;/td&gt;&lt;/tr&gt;&lt;tr&gt;&lt;td align="left"&gt;&lt;p&gt;Paper PE Group&lt;/p&gt;&lt;/td&gt;&lt;td char="." align="char"&gt;&lt;p&gt;7&lt;/p&gt;&lt;p&gt;(&lt;italic&gt;M =&lt;/italic&gt; 0.78; &lt;italic&gt;SD&lt;/italic&gt; = 0.83)&lt;/p&gt;&lt;/td&gt;&lt;td align="left"&gt;&lt;p&gt;Individual Therapy, &lt;italic&gt;n&lt;/italic&gt; = 2&lt;/p&gt;&lt;p&gt;ABA, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;p&gt;Developmental Therapy, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;p&gt;Medication Management/Psychiatric Services, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;p&gt;Special Education Services, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;p&gt;Case Management, &lt;italic&gt;n&lt;/italic&gt; = 1&lt;/p&gt;&lt;/td&gt;&lt;/tr&gt;&lt;/tbody&gt;&lt;/table&gt; </ephtml> </p> <p>Note. ABA = Applied Behavior Analysis; DD Waiver = Developmental Disability Waiver</p> <hd id="AN0191290283-10">Discussion</hd> <p>The purpose of this randomized controlled pilot study was to test the benefit of caregiver psychoeducation in facilitating new service acquisition for children recently diagnosed with ASD in rural Southwest Virginia and to explore the types of services that were obtained. Results indicated that ASD psychoeducation was effective in increasing access to new ASD-related services among families in Southwest Virginia across both Live PE and Paper PE groups, with a majority of the children in the study (70%) obtaining new services post-intervention. Notably, delivery format made a difference, with the Live PE group showing a moderate, but nonsignificant, effect toward more children obtaining at least one new service over six months compared to those in the Paper PE group. The finding that approximately 26% more children received services in the Live PE group than Paper PE group, and a significantly greater number of services in the Live PE group (19 total services compared to 7 total services), has important clinical implications that will be discussed.</p> <p>These findings are consistent with research emphasizing the positive impact of psychoeducation for caregivers of children with ASD (Milgramm et al., [<reflink idref="bib10" id="ref26">10</reflink>]; Roughan et al., [<reflink idref="bib13" id="ref27">13</reflink>]). The finding that children whose caregivers received Live PE accessed a greater proportion of services and a greater total number of services than those whose caregivers received Paper PE suggests that the live psychoeducation coupled with family support was a positive element offered by this study. It appears that the personalized approach used with caregivers in the Live PE group contributed to the high percentage of service attainment in this group. This result may also support the recommendation for clinicians to consider cultural factors when working with individuals from Appalachia and other underserved areas, as many citizens mistrust mental health professionals due to a history of stigmatization and exploitation (Scarpa et al., [<reflink idref="bib15" id="ref28">15</reflink>]). In this study, the availability of a clinician to spend one-on-one time with caregivers during the Live PE sessions may have increased their trust, rapport, and self-efficacy to support their child and contributed favorably to service acquisition. Overall, the individualized and interactive approach used with the Live PE group appeared to contribute to the higher percentage of children in the group who obtained services compared to the Paper PE group.</p> <p>Regarding the breakdown of specific services accessed across groups, the most frequently obtained service was occupational therapy (<emph>n</emph> = 5), followed by Applied Behavior Analysis (ABA), Special Education services, and individual therapy (each <emph>n</emph> = 4). The high rates of occupational therapy acquisition are consistent with findings from a study by Wei and colleagues ([<reflink idref="bib20" id="ref29">20</reflink>]) showing that occupational therapy is the most widely accessed service among elementary-aged students with ASD. Moreover, caregivers in the Live PE group reported accessing services from allied health professions (i.e., occupational, speech, and physical therapy), whereas no one in the Paper PE group endorsed these therapies; and twice as many people endorsed ABA and Special Education services in the Live PE group. These results suggest that the live delivery format encouraged a wider range of evidence-based service-seeking within the participants' communities.</p> <hd id="AN0191290283-11">Limitations</hd> <p>Despite clinically significant findings, this study was underpowered to detect all statistically significant effects due to the small sample size. This was in part due to restrictions posed by the COVID-19 pandemic, which began shortly after study recruitment began and required all remaining procedures to be adapted to take place remotely. Notably, the unanticipated remote component provided an element of increased accessibility for families, which can be seen as a strength of this study. Nonetheless, these limitations in sample size and the impact of the COVID-19 pandemic may impact the conclusions that can be drawn from this study.</p> <p>Additionally, the new services survey that collected information about new child services did not require caregivers to specify the setting or organization through which they accessed each new service. As such, it was not possible to make a determination about whether community-based services were more frequently accessed than privately accessed services. Among those caregivers who voluntarily specified, many accessed services through the school and/or through community organizations. This may suggest that the component of the provided psychoeducation which focused on navigating services systems such as the IEP process and Medicaid waiver applications was beneficial for caregivers and facilitated attainment of services that required knowledge of these systems. This speculation is consistent with literature that has pointed to confusion surrounding the navigation of systems of care (Stahmer et al., [<reflink idref="bib17" id="ref30">17</reflink>]).</p> <hd id="AN0191290283-12">Future Directions and Conclusions</hd> <p>The results of this study warrant further investigation of the role of psychoeducation on service acquisition in a larger and more diverse sample to enhance the generalizability of the present findings. Consideration of additional socioeconomic factors in rural communities could also provide a more comprehensive understanding of barriers and facilitators to ASD service access. The personalized and interactive psychoeducation provided by a clinician appeared to be a strength of this study, and reiterates past research (Milgramm et al., [<reflink idref="bib10" id="ref31">10</reflink>]) emphasizing the benefits of family support following an ASD diagnosis. Future research can explore which components of psychoeducation seem most beneficial to increasing caregiver knowledge about ASD and empowering families to obtain services. These findings also call for changes in public policy, especially in under-resourced communities, to offer ASD psychoeducation after a diagnosis as a relatively easy and low-cost strategy to ensure a more seamless process from diagnosis to intervention for families. Although live sessions appear to be more effective, this study suggests that providing paper materials or perhaps even video-recorded informational sessions would likely increase service acquisition after a diagnosis if a given region or agency does not have the resources to support universal provision of live psychoeducation sessions. Overall, this pilot study highlights the importance of accessible ASD psychoeducation for families in rural communities and reveals its potential to impact service acquisition among this population. Considering the benefits of evidence-based intervention on multiple outcomes for children with ASD, this study offers an encouraging step towards ensuring that intervention is accessible to every family seeking support while navigating this process.</p> <hd id="AN0191290283-13">Acknowledgements</hd> <p>Research reported in this work was supported in part by the National Center for Advancing Translational Sciences of the National Institutes of Health under Award Number UL1TR003015. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. This project was also supported in part by grants/contracts from Autism Speaks and Commonwealth Autism. We would also like to acknowledge work by our outreach coordinator Jennifer Pollard Scott, and all of the families who participated.</p> <hd id="AN0191290283-14">Declarations</hd> <p></p> <hd id="AN0191290283-15">Compliance with Ethical Standards</hd> <p>Angela Scarpa is an associate editor for Journal of Autism and Developmental Disorders. She was not involved in the editorial process for this manuscript. The authors have no other conflicts of interest to report.</p> <hd id="AN0191290283-16">Publisher's Note</hd> <p>Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.</p> <ref id="AN0191290283-17"> <title> References </title> <blist> <bibl id="bib1" idref="ref2" type="bt">1</bibl> <bibtext> American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596.</bibtext> </blist> <blist> <bibl id="bib2" idref="ref13" type="bt">2</bibl> <bibtext> Antezana L, Scarpa A, Valdespino A, Albright J, Richey JA. Rural trends in diagnosis and services for autism spectrum disorder. Frontiers in Psychology. 2017; 8: 590. 10.3389/fpsyg.2017.00590/full. 28473784. 5397491</bibtext> </blist> <blist> <bibl id="bib3" idref="ref23" type="bt">3</bibl> <bibtext> Azano AP, Tackett ME. Perceptions of teachers and parents on the educational experiences of students with autism in a remote rural community. The Rural Educator. 2018; 38; 3: 39-54. 10.35608/ruraled.v38i3.219</bibtext> </blist> <blist> <bibl id="bib4" idref="ref3" type="bt">4</bibl> <bibtext> Bauminger N, Solomon M, Rogers SJ. Externalizing and internalizing behaviors in ASD. Autism Research. 2010; 3; 3: 101-112. 10.1002/aur.131. 20575109. 5659193</bibtext> </blist> <blist> <bibl id="bib5" idref="ref16" type="bt">5</bibl> <bibtext> Crane L, Chester JW, Goddard L, Henry LA, Hill E. Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom. Autism. 2016; 20; 2: 153-162. 10.1177/1362361315573636. 25810370</bibtext> </blist> <blist> <bibl id="bib6" idref="ref8" type="bt">6</bibl> <bibtext> Elder JH, Kreider CM, Brasher SN, Ansell M. Clinical impact of early diagnosis of autism on the prognosis and parent-child relationships. Psychology Research and Behavior Management. 2017; 10: 283-292. 10.2147/PRBM.S117499. 28883746. 5576710</bibtext> </blist> <blist> <bibl id="bib7" idref="ref7" type="bt">7</bibl> <bibtext> Gerber F, Baud MA, Giroud M, Galli Carminati G. Quality of life of adults with pervasive developmental disorders and intellectual disabilities. Journal of Autism and Developmental Disorders. 2008; 38; 9: 1654-1665. 10.1007/s10803-008-0547-9. 18266098</bibtext> </blist> <blist> <bibl id="bib8" idref="ref1" type="bt">8</bibl> <bibtext> Maenner MJ, Warren Z, Williams AR, Amoakohene E, Bakian AV, Bilder DA, Durkin MS, Fitzgerald RT, Furnier SM, Hughes MM, Ladd-Acosta CM, McArthur D, Pas ET, Salinas A, Vehorn A, Williams S, Esler A, Grzybowski A, Hall-Lande J, Nguyen RH. Prevalence and characteristics of autism spectrum disorder among children aged 8 years — autism and developmental disabilities monitoring network, 11 sites, United States, 2020. Morbidity and Mortality Weekly Report. 2023; 72; 2: 1-14. 10.15585/mmwr.ss7202a1</bibtext> </blist> <blist> <bibl id="bib9" idref="ref17" type="bt">9</bibl> <bibtext> McGrew JH, Keyes ML. Caregiver stress during the first year after diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders. 2014; 8; 10: 1373-1385. 10.1016/j.rasd.2014.07.011</bibtext> </blist> <blist> <bibtext> Milgramm A, Corona LL, Janicki-Menzie C, Christodulu KV. Community-based parent education for caregivers of children newly diagnosed with autism spectrum disorder. Journal of Autism and Developmental Disorders. 2022; 52: 1200-1210. 10.1007/s10803-021-05025-5. 33893937</bibtext> </blist> <blist> <bibtext> Minshawi NF, Hurwitz S, Fodstad JC, Biebl S, Morriss DH, McDougle CJ. The association between self-injurious behaviors and autism spectrum disorders. Psychology Research and Behavior Management. 2014; 7: 125-136. 10.2147/PRBM.S44635. 24748827. 3990505</bibtext> </blist> <blist> <bibtext> National Institute of Mental Health (2023). Autism Spectrum Disorder. U.S. Department of Health and Human Services, National Institutes of Health Retrieved from: https://<ulink href="http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd#:~text=Autism%20spectrum%20disorder%20(ASD)%20is,first%202%20years%20of%20life">www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd#:~text=Autism%20spectrum%20disorder%20(ASD)%20is,first%202%20years%20of%20life</ulink>.</bibtext> </blist> <blist> <bibtext> Roughan LA, Parker JR, Mercer L. Improving interventions for parents of children and young people with autism spectrum disorder (ASD) in CAMHS. British Medical Journal. 2019; 8; 2: e000261. 10.1136/bmjoq-2017-000261</bibtext> </blist> <blist> <bibtext> Salazar F, Baird G, Chandler S, Tseng E, O'sullivan T, Howlin P, Pickles A, Simonoff E. Co-occurring psychiatric disorders in preschool and elementary school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders. 2015; 45; 8: 2283-2294. 10.1007/s10803-015-2361-5. 25737019</bibtext> </blist> <blist> <bibtext> Scarpa A, Jensen LS, Gracanin D, Ramey SL, Dahiya AV, Ingram LM, Albright J, Gatto AJ, Scott JP, Ruble L. Access to autism spectrum disorder services for Rural Appalachian citizens. Journal of Appalachian Health. 2020; 2; 1: 25-40. 10.13023/jah.0201.04. 35769534. 9138840</bibtext> </blist> <blist> <bibtext> Smith T, Iadarola S. Evidence base update for autism spectrum disorder. Journal of Clinical Child and Adolescent Psychology. 2015; 44; 6: 897-922. 10.1080/15374416.2015.1077448. 26430947</bibtext> </blist> <blist> <bibtext> Stahmer AC, Vejnoska S, Iadarola S, Straiton D, Segovia FR, Luelmo P, Morgan EH, Lee HS, Javed A, Bronstein B, Hochheimer S, Cho E, Aranbarri A, Mandell D, Hassrick EM, Smith T, Kasari C. Caregiver voices: Cross-cultural input on improving access to autism services. Journal of Racial and Ethnic Health Disparities. 2019; 6; 4: 752-773. 10.1007/s40615-019-00575-y. 30859514. 6936957</bibtext> </blist> <blist> <bibtext> U.S. Census Bureau (2023). Quick Facts: Virginia U.S. Department of Commerce. Retrieved February 16, 2024 from https://<ulink href="http://www.census.gov/quickfacts/fact/map/VA,US/RHI125222">www.census.gov/quickfacts/fact/map/VA,US/RHI125222</ulink>.</bibtext> </blist> <blist> <bibtext> Wallace-Watkin C, Sigafoos J, Waddington H. Barriers and facilitators for obtaining support services among underserved families with an autistic child: A systematic qualitative review. Autism. 2023; 27; 3: 588-601. 10.1177/13623613221123712. 36081366</bibtext> </blist> <blist> <bibtext> Wei X, Wagner M, Christiano ER, Shattuck P, Yu JW. Special education services received by students with autism spectrum disorders from preschool through high school. The Journal of Special Education. 2014; 48; 3: 167-179. 10.1177/0022466913483576. 25419002. 4235523</bibtext> </blist> </ref> <aug> <p>By Daniele C. Martino; Jennifer R. Bertollo and Angela Scarpa</p> <p>Reported by Author; Author; Author</p> </aug> <nolink nlid="nl1" bibid="bib11" firstref="ref4"></nolink> <nolink nlid="nl2" bibid="bib14" firstref="ref5"></nolink> <nolink nlid="nl3" bibid="bib16" firstref="ref9"></nolink> <nolink nlid="nl4" bibid="bib12" firstref="ref10"></nolink> <nolink nlid="nl5" bibid="bib15" firstref="ref11"></nolink> <nolink nlid="nl6" bibid="bib19" firstref="ref12"></nolink> <nolink nlid="nl7" bibid="bib17" firstref="ref15"></nolink> <nolink nlid="nl8" bibid="bib13" firstref="ref18"></nolink> <nolink nlid="nl9" bibid="bib10" firstref="ref19"></nolink> <nolink nlid="nl10" bibid="bib18" firstref="ref24"></nolink> <nolink nlid="nl11" bibid="bib20" firstref="ref29"></nolink> |
|---|---|
| Header | DbId: eric DbLabel: ERIC An: EJ1504743 AccessLevel: 3 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation – Name: Language Label: Language Group: Lang Data: English – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Daniele+C%2E+Martino%22">Daniele C. Martino</searchLink> (ORCID <externalLink term="http://orcid.org/0000-0002-6175-2498">0000-0002-6175-2498</externalLink>)<br /><searchLink fieldCode="AR" term="%22Jennifer+R%2E+Bertollo%22">Jennifer R. Bertollo</searchLink> (ORCID <externalLink term="http://orcid.org/0000-0001-8243-044X">0000-0001-8243-044X</externalLink>)<br /><searchLink fieldCode="AR" term="%22Angela+Scarpa%22">Angela Scarpa</searchLink> (ORCID <externalLink term="http://orcid.org/0000-0002-5890-5668">0000-0002-5890-5668</externalLink>) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="SO" term="%22Journal+of+Autism+and+Developmental+Disorders%22"><i>Journal of Autism and Developmental Disorders</i></searchLink>. 2026 56(1):436-441. – Name: Avail Label: Availability Group: Avail Data: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ – Name: PeerReviewed Label: Peer Reviewed Group: SrcInfo Data: Y – Name: Pages Label: Page Count Group: Src Data: 6 – Name: DatePubCY Label: Publication Date Group: Date Data: 2026 – Name: SourceSuprt Label: Sponsoring Agency Group: SrcSuprt Data: National Center for Advancing Translational Sciences (NCATS) (DHHS/NIH) – Name: NumberContract Label: Contract Number Group: NumCntrct Data: UL1TR003015 – Name: TypeDocument Label: Document Type Group: TypDoc Data: Journal Articles<br />Reports - Research – Name: Audience Label: Education Level Group: Audnce Data: <searchLink fieldCode="EL" term="%22Adult+Education%22">Adult Education</searchLink> – Name: Subject Label: Descriptors Group: Su Data: <searchLink fieldCode="DE" term="%22Autism+Spectrum+Disorders%22">Autism Spectrum Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink><br /><searchLink fieldCode="DE" term="%22Services%22">Services</searchLink><br /><searchLink fieldCode="DE" term="%22Rural+Areas%22">Rural Areas</searchLink><br /><searchLink fieldCode="DE" term="%22Barriers%22">Barriers</searchLink><br /><searchLink fieldCode="DE" term="%22Psychoeducational+Methods%22">Psychoeducational Methods</searchLink><br /><searchLink fieldCode="DE" term="%22Program+Effectiveness%22">Program Effectiveness</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+Education%22">Parent Education</searchLink><br /><searchLink fieldCode="DE" term="%22Caregivers%22">Caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Allied+Health+Personnel%22">Allied Health Personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Access+to+Education%22">Access to Education</searchLink> – Name: Subject Label: Geographic Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Virginia%22">Virginia</searchLink> – Name: DOI Label: DOI Group: ID Data: 10.1007/s10803-024-06305-6 – Name: ISSN Label: ISSN Group: ISSN Data: 0162-3257<br />1573-3432 – Name: Abstract Label: Abstract Group: Ab Data: Purpose: Evidence-based intervention can significantly improve the trajectory of symptoms and overall outcomes for children with autism spectrum disorder (ASD), especially when implemented at an early age. However, families residing in rural communities experience barriers to accessing ASD-related services. The purpose of this pilot study was to assess how the provision of accessible caregiver psychoeducation related to new service acquisition for children recently diagnosed with ASD in rural Southwest Virginia. Methods: Psychoeducation was delivered either live by a clinician (Live PE, n = 13 caregivers) or via paper materials (Paper PE, n = 10 caregivers) and included content on ASD epidemiology and symptoms, risk factors, evidence-based interventions, and navigating service systems. Survey data were collected from caregivers of 20 children to measure new service acquisition within six months following psychoeducation. Results: Results indicated that 81.8% of children whose caregivers received Live PE obtained at least one new service within six months, compared to 55.6% of those whose caregivers received Paper PE. An independent samples t-test showed a significant difference in the number of new services obtained between groups, such that the Live PE group received over 2.5 times as many services as the Paper PE group. Conclusion: Results suggest that psychoeducation, particularly delivered by a clinician, positively impacted service acquisition, and emphasize the clinical importance of personalized, accessible ASD psychoeducation for rural families. Future implications are discussed, including recommendations to evaluate the role of psychoeducation on service acquisition in larger samples. – Name: AbstractInfo Label: Abstractor Group: Ab Data: As Provided – Name: DateEntry Label: Entry Date Group: Date Data: 2026 – Name: AN Label: Accession Number Group: ID Data: EJ1504743 |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=eric&AN=EJ1504743 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s10803-024-06305-6 Languages: – Text: English PhysicalDescription: Pagination: PageCount: 6 StartPage: 436 Subjects: – SubjectFull: Autism Spectrum Disorders Type: general – SubjectFull: Children Type: general – SubjectFull: Services Type: general – SubjectFull: Rural Areas Type: general – SubjectFull: Barriers Type: general – SubjectFull: Psychoeducational Methods Type: general – SubjectFull: Program Effectiveness Type: general – SubjectFull: Parent Education Type: general – SubjectFull: Caregivers Type: general – SubjectFull: Allied Health Personnel Type: general – SubjectFull: Access to Education Type: general – SubjectFull: Virginia Type: general Titles: – TitleFull: Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Daniele C. Martino – PersonEntity: Name: NameFull: Jennifer R. Bertollo – PersonEntity: Name: NameFull: Angela Scarpa IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Type: published Y: 2026 Identifiers: – Type: issn-print Value: 0162-3257 – Type: issn-electronic Value: 1573-3432 Numbering: – Type: volume Value: 56 – Type: issue Value: 1 Titles: – TitleFull: Journal of Autism and Developmental Disorders Type: main |
| ResultId | 1 |