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IMPACTO FAMILIAR DE LA SEDACIÓN PALIATIVA EN PACIENTES TERMINALES DESDE LA PERSPECTIVA DEL CUIDADOR PRINCIPAL.

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Title: IMPACTO FAMILIAR DE LA SEDACIÓN PALIATIVA EN PACIENTES TERMINALES DESDE LA PERSPECTIVA DEL CUIDADOR PRINCIPAL.
Authors: Carmona Jiménez, Ana María1, González, Melina2, Vélez Ángel, María Clara3, Krikorian, Alicia3 aliciakriko@gmail.com
Source: Psicooncologia. 2016, Vol. 13 Issue 2/3/2017, p351-365. 15p.
Subjects: FAMILIES & psychology, ANESTHESIA, BEREAVEMENT, CANCER treatment, COMMUNICATION, DEATH, EMOTIONS, INTERVIEWING, PHENOMENOLOGY, PALLIATIVE treatment, SUFFERING, TERMINALLY ill, FAMILY relations, SPECIALTY hospitals, HEALTH literacy, FAMILY attitudes
Geographic Terms: COLOMBIA
Abstract (English): Objective: The present study aimed at describing the impact that palliative sedation had on the family and their subsequent bereavement process, from the primary caregiver's point of view. Methodology: Qualitative study with a phenomenological approach; ten primary caregivers of patients with terminal illness who were treated by the palliative care group of an oncological institution in Medellin, Colombia and died under palliative sedation were interviewed. The information was analyzed using predetermined categories: meaning, emotional changes, structural changes and bereavement. Results: Caregivers had no prior knowledge about palliative sedation. All of them reported to be informed about the possible changes that patients could go through. However, half of the caregivers reported that the information was insufficient to understand the process they were facing. They expressed multiple feelings (relief, doubt, helplessness and sadness) before, during and after palliative sedation. Regarding structural changes, all families underwent reorganization, and family relationships were strengthened. On the whole, caregivers perceived that palliative sedation facilitated bereavement while relieving suffering and allowing a good death. Conclusions: Caregivers considered that the experience of palliative sedation was positive and satisfactory, allowing to relief suffering of their loved one and the family. It also eased the bereavement process as families made a positive reconstruction of the experience, strengthening their relationships and leaving a good memory of the patient's death. [ABSTRACT FROM AUTHOR]
Abstract (Spanish): Objetivo: Describir el impacto familiar de la sedación paliativa en pacientes con enfermedad avanzada terminal ya fallecidos, desde la percepción del cuidador principal. Método: Estudio cualitativo de enfoque fenomenológico. Se realizaron entrevistas semi-estructuradas a diez cuidadores principales de pacientes con enfermedad terminal fallecidos bajo sedación paliativa, que fueron atendidos por cuidados paliativos en una institución oncológica de Medellín, Colombia entre enero y marzo de 2015. Se analizó la información a partir de categorías preestablecidas: significado, cambios emocionales, cambios estructurales y duelo. Resultado: Los cuidadores no tenían ningún conocimiento previo sobre la sedación. Todos reportan que fueron informados sobre el objetivo y los cambios físicos que podía presentar el paciente; sin embargo, la mitad de ellos refirieron que esta información no fue suficiente para comprender el proceso que enfrentaban. Manifestaron diversos sentimientos (alivio, duda, impotencia, tristeza) antes, durante y después de la sedación. Respecto a los cambios estructurales, la mayoría de las familias se reorganizaron y facilitaron el acompañamiento y cuidado al paciente refiriendo fortalecimiento de las rela ciones familiares. Finalmente, se encontró que los cuidadores percibieron que la sedación paliativa facilita el duelo, al aliviar el sufrimiento y permitiendo una buena muerte. Conclusiones: Los cuidadores evalúan la experiencia de sedación como positiva y sa¬tisfactoria para aliviar el sufrimiento de su ser querido y el de su familia. Igualmente, facilita el proceso de duelo por la construcción positiva de alivio en torno a la experiencia vivida como familia, fortaleciendo sus relaciones y recordando una buena muerte para su paciente. [ABSTRACT FROM AUTHOR]
Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: MedicLatina
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  Data: IMPACTO FAMILIAR DE LA SEDACIÓN PALIATIVA EN PACIENTES TERMINALES DESDE LA PERSPECTIVA DEL CUIDADOR PRINCIPAL.
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  Data: <searchLink fieldCode="AR" term="%22Carmona+Jiménez%2C+Ana+María%22">Carmona Jiménez, Ana María</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22González%2C+Melina%22">González, Melina</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Vélez+Ángel%2C+María+Clara%22">Vélez Ángel, María Clara</searchLink><relatesTo>3</relatesTo><br /><searchLink fieldCode="AR" term="%22Krikorian%2C+Alicia%22">Krikorian, Alicia</searchLink><relatesTo>3</relatesTo><i> aliciakriko@gmail.com</i>
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  Data: <searchLink fieldCode="JN" term="%22Psicooncologia%22">Psicooncologia</searchLink>. 2016, Vol. 13 Issue 2/3/2017, p351-365. 15p.
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  Data: <searchLink fieldCode="DE" term="%22FAMILIES+%26+psychology%22">FAMILIES & psychology</searchLink><br /><searchLink fieldCode="DE" term="%22ANESTHESIA%22">ANESTHESIA</searchLink><br /><searchLink fieldCode="DE" term="%22BEREAVEMENT%22">BEREAVEMENT</searchLink><br /><searchLink fieldCode="DE" term="%22CANCER+treatment%22">CANCER treatment</searchLink><br /><searchLink fieldCode="DE" term="%22COMMUNICATION%22">COMMUNICATION</searchLink><br /><searchLink fieldCode="DE" term="%22DEATH%22">DEATH</searchLink><br /><searchLink fieldCode="DE" term="%22EMOTIONS%22">EMOTIONS</searchLink><br /><searchLink fieldCode="DE" term="%22INTERVIEWING%22">INTERVIEWING</searchLink><br /><searchLink fieldCode="DE" term="%22PHENOMENOLOGY%22">PHENOMENOLOGY</searchLink><br /><searchLink fieldCode="DE" term="%22PALLIATIVE+treatment%22">PALLIATIVE treatment</searchLink><br /><searchLink fieldCode="DE" term="%22SUFFERING%22">SUFFERING</searchLink><br /><searchLink fieldCode="DE" term="%22TERMINALLY+ill%22">TERMINALLY ill</searchLink><br /><searchLink fieldCode="DE" term="%22FAMILY+relations%22">FAMILY relations</searchLink><br /><searchLink fieldCode="DE" term="%22SPECIALTY+hospitals%22">SPECIALTY hospitals</searchLink><br /><searchLink fieldCode="DE" term="%22HEALTH+literacy%22">HEALTH literacy</searchLink><br /><searchLink fieldCode="DE" term="%22FAMILY+attitudes%22">FAMILY attitudes</searchLink>
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  Data: Objective: The present study aimed at describing the impact that palliative sedation had on the family and their subsequent bereavement process, from the primary caregiver's point of view. Methodology: Qualitative study with a phenomenological approach; ten primary caregivers of patients with terminal illness who were treated by the palliative care group of an oncological institution in Medellin, Colombia and died under palliative sedation were interviewed. The information was analyzed using predetermined categories: meaning, emotional changes, structural changes and bereavement. Results: Caregivers had no prior knowledge about palliative sedation. All of them reported to be informed about the possible changes that patients could go through. However, half of the caregivers reported that the information was insufficient to understand the process they were facing. They expressed multiple feelings (relief, doubt, helplessness and sadness) before, during and after palliative sedation. Regarding structural changes, all families underwent reorganization, and family relationships were strengthened. On the whole, caregivers perceived that palliative sedation facilitated bereavement while relieving suffering and allowing a good death. Conclusions: Caregivers considered that the experience of palliative sedation was positive and satisfactory, allowing to relief suffering of their loved one and the family. It also eased the bereavement process as families made a positive reconstruction of the experience, strengthening their relationships and leaving a good memory of the patient's death. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label: Abstract (Spanish)
  Group: Ab
  Data: Objetivo: Describir el impacto familiar de la sedación paliativa en pacientes con enfermedad avanzada terminal ya fallecidos, desde la percepción del cuidador principal. Método: Estudio cualitativo de enfoque fenomenológico. Se realizaron entrevistas semi-estructuradas a diez cuidadores principales de pacientes con enfermedad terminal fallecidos bajo sedación paliativa, que fueron atendidos por cuidados paliativos en una institución oncológica de Medellín, Colombia entre enero y marzo de 2015. Se analizó la información a partir de categorías preestablecidas: significado, cambios emocionales, cambios estructurales y duelo. Resultado: Los cuidadores no tenían ningún conocimiento previo sobre la sedación. Todos reportan que fueron informados sobre el objetivo y los cambios físicos que podía presentar el paciente; sin embargo, la mitad de ellos refirieron que esta información no fue suficiente para comprender el proceso que enfrentaban. Manifestaron diversos sentimientos (alivio, duda, impotencia, tristeza) antes, durante y después de la sedación. Respecto a los cambios estructurales, la mayoría de las familias se reorganizaron y facilitaron el acompañamiento y cuidado al paciente refiriendo fortalecimiento de las rela ciones familiares. Finalmente, se encontró que los cuidadores percibieron que la sedación paliativa facilita el duelo, al aliviar el sufrimiento y permitiendo una buena muerte. Conclusiones: Los cuidadores evalúan la experiencia de sedación como positiva y sa¬tisfactoria para aliviar el sufrimiento de su ser querido y el de su familia. Igualmente, facilita el proceso de duelo por la construcción positiva de alivio en torno a la experiencia vivida como familia, fortaleciendo sus relaciones y recordando una buena muerte para su paciente. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=lth&AN=122996493
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    Identifiers:
      – Type: doi
        Value: 10.5209/PSIC.54441
    Languages:
      – Code: spa
        Text: Spanish
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      Pagination:
        PageCount: 15
        StartPage: 351
    Subjects:
      – SubjectFull: FAMILIES & psychology
        Type: general
      – SubjectFull: ANESTHESIA
        Type: general
      – SubjectFull: BEREAVEMENT
        Type: general
      – SubjectFull: CANCER treatment
        Type: general
      – SubjectFull: COMMUNICATION
        Type: general
      – SubjectFull: DEATH
        Type: general
      – SubjectFull: EMOTIONS
        Type: general
      – SubjectFull: INTERVIEWING
        Type: general
      – SubjectFull: PHENOMENOLOGY
        Type: general
      – SubjectFull: PALLIATIVE treatment
        Type: general
      – SubjectFull: SUFFERING
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      – SubjectFull: TERMINALLY ill
        Type: general
      – SubjectFull: FAMILY relations
        Type: general
      – SubjectFull: SPECIALTY hospitals
        Type: general
      – SubjectFull: HEALTH literacy
        Type: general
      – SubjectFull: FAMILY attitudes
        Type: general
      – SubjectFull: COLOMBIA
        Type: general
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      – TitleFull: IMPACTO FAMILIAR DE LA SEDACIÓN PALIATIVA EN PACIENTES TERMINALES DESDE LA PERSPECTIVA DEL CUIDADOR PRINCIPAL.
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              Text: 2016
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