Desarrollo de una estrategia holística para la valoración de la calidad de vida en pacientes con cáncer de mama en las distintas etapas de la enfermedad.
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| Title: | Desarrollo de una estrategia holística para la valoración de la calidad de vida en pacientes con cáncer de mama en las distintas etapas de la enfermedad. |
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| Alternate Title: | Development of a holistic strategy for the assessment of the quality of life in patients with breast cancer in the different stages of the disease. |
| Authors: | Gómez-Villarroya, Lorena1 lorena.gomezv@e-campus.uab.cat, Serra-Arumí, Clara1,2 clara.serraa@e-campus.uab.cat, Báez-Sáez, Coral1 coral.baez@e-campus.uab.cat, Mena Cervigon, Marisa3,4 mmena.iconcologia@gmail.com, Tous Belmonte, Sara3,4 stous@iconcologia.net, Morey Cortes, Francisca3,4 fmorey@idibell.cat, Rodríguez Bruzos, Eva5 evarb71@hotmail.com, Gil, Miguel Gil6 mgilgil@iconcologia.net, Pernas Simón, Sonia6 spernas@iconcologia.net, Vethencourt Casado, Andrea6 acvethencourt@iconcologia.net, Vázquez Fernández, Silvia6 silviavazquez@iconcologia.net, Stradella, Agostina6 astradella@iconcologia.net, Falo Zamora, Catalina6 cfalo@iconcologia.net, Font Guiteras, Antoni5 Antonio.Font@uab.cat |
| Source: | Psicooncologia. ene-jun2021, Vol. 18 Issue 1, p117-136. 20p. |
| Subjects: | RESEARCH methodology, METASTASIS, INTERVIEWING, CANCER patients, PSYCHOLOGICAL tests, QUALITY of life, QUESTIONNAIRES, PSYCHOLOGICAL adaptation, BREAST tumors, LONGITUDINAL method |
| Abstract (English): | Introduction: Breast cancer is considered a chronic disease that has considerable impact on the quality of life (QoL) of the patients. Yet, there is not a totally satisfactory evaluation system reflecting the complexity of the breast cancer condition. Furthermore, most instruments are more addressed towards early-stage disease than advanced disease. Objective: To describe the methodology used to measure the QoL of life and coping strategies in a representative group of breast cancer patients including metastatic and non-metastatic patients. Methodology: Prospective study including patients with breast cancer at different stages of the disease recruited at the Medical Oncology Department of the Catalan Oncology Institute (ICO) previous informed consent. A protocol of approximately one hour face-to-face interview is run to collect sociodemographic information and to answer the questions of several QoL scales such as the QLCA-AFex Font, QLQ-C30, QLQ-BR23, HADS, DME, BRCS, MINI-MAC, LOT-R and OE questionnaires, complemented by a semi-structured interview. Results: From June 2017 to March 2020, 257 patients were included in the study. Mean age 57.9 years (SD 10.1), mostly women (98.8%), with children (87.9%) and married (65.4%). According to clinical status 75.5% were non-metastatic and 24.5% metastatic. Protocol compliance was achieved in more than 90% in all questionnaires without differences between metastatic and no metastatic patients. Conclusions: This multidimensional protocol enables us to make an integral assessment of the QoL of the patients and their unmet needs, as well as to reflect the patients' concerns, both in early and advanced stages of the disease, complementing currently available assessment methods. In the next future a complied questionnaire with the most challenging questions could be developed to be useful as a routine instrument in clinical practice. [ABSTRACT FROM AUTHOR] |
| Abstract (Spanish): | Introducción: El cáncer de mama es considerado una enfermedad crónica que impacta de modo importante en la calidad de vida (QoL) de las pacientes. En la actualidad no se dispone de un sistema de evaluación totalmente satisfactorio que refleje la complejidad del cáncer de mama. Además, la mayoría de instrumentos están más orientados a la enfermedad en estadios iniciales que a la enfermedad avanzada. Objetivo: Describir la metodología utilizada para evaluar la calidad de vida y las estrategias de afrontamiento en un grupo representativo de cáncer de mama que incluye tanto pacientes metastásicas como no metastásicas. Método: Estudio prospectivo en pacientes con cáncer de mama del Servicio de Oncología Médica del Institut Català d'Oncologia (ICO) en diferentes estadios de la enfermedad, previo consentimiento informado. Se les aplica un protocolo de aproximadamente una hora de entrevista presencial donde se recoge su información sociodemográfica, y se contestan varios cuestionarios de calidad de vida como el cuestionario QLCA-AFex Font, QLQ-C30, QLQ-BR23 HADS, DME, BRCS, MINI-MAC, LOT-R y OE, que se completan con una entrevista semiestructurada. Resultados: De junio de 2017 a marzo de 2020, 257 pacientes han sido incluidas en el estudio. La media de edad es de 57,9 años (SD 10,1), la mayoría son mujeres (98,8%), con hijos (87,9%) y casadas (65,4%). Respecto al estadiaje clínico 75,5% son no-metastásicas y 24,5% metastásicas. El cumplimiento del protocolo se consiguió en más del 90% de los cuestionarios sin diferencias entre pacientes metastásicas y no metastásicas. Conclusión: Este protocolo multidimensional permite hacer una evaluación integral de la calidad de vida, así como reflejar las necesidades no atendidas y las preocupaciones que muestran las pacientes tanto en estadio precoz como avanzado, complementando los sistemas de valoración actualmente disponibles. Después del análisis de los resultados de este estudio sería interesante poder obtener un cuestionario único con las preguntas más relevantes que pudiera ser aplicado a la práctica clínica. [ABSTRACT FROM AUTHOR] |
| Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | MedicLatina |
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| Items | – Name: Title Label: Title Group: Ti Data: Desarrollo de una estrategia holística para la valoración de la calidad de vida en pacientes con cáncer de mama en las distintas etapas de la enfermedad. – Name: TitleAlt Label: Alternate Title Group: TiAlt Data: Development of a holistic strategy for the assessment of the quality of life in patients with breast cancer in the different stages of the disease. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Gómez-Villarroya%2C+Lorena%22">Gómez-Villarroya, Lorena</searchLink><relatesTo>1</relatesTo><i> lorena.gomezv@e-campus.uab.cat</i><br /><searchLink fieldCode="AR" term="%22Serra-Arumí%2C+Clara%22">Serra-Arumí, Clara</searchLink><relatesTo>1,2</relatesTo><i> clara.serraa@e-campus.uab.cat</i><br /><searchLink fieldCode="AR" term="%22Báez-Sáez%2C+Coral%22">Báez-Sáez, Coral</searchLink><relatesTo>1</relatesTo><i> coral.baez@e-campus.uab.cat</i><br /><searchLink fieldCode="AR" term="%22Mena+Cervigon%2C+Marisa%22">Mena Cervigon, Marisa</searchLink><relatesTo>3,4</relatesTo><i> mmena.iconcologia@gmail.com</i><br /><searchLink fieldCode="AR" term="%22Tous+Belmonte%2C+Sara%22">Tous Belmonte, Sara</searchLink><relatesTo>3,4</relatesTo><i> stous@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Morey+Cortes%2C+Francisca%22">Morey Cortes, Francisca</searchLink><relatesTo>3,4</relatesTo><i> fmorey@idibell.cat</i><br /><searchLink fieldCode="AR" term="%22Rodríguez+Bruzos%2C+Eva%22">Rodríguez Bruzos, Eva</searchLink><relatesTo>5</relatesTo><i> evarb71@hotmail.com</i><br /><searchLink fieldCode="AR" term="%22Gil%2C+Miguel+Gil%22">Gil, Miguel Gil</searchLink><relatesTo>6</relatesTo><i> mgilgil@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Pernas+Simón%2C+Sonia%22">Pernas Simón, Sonia</searchLink><relatesTo>6</relatesTo><i> spernas@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Vethencourt+Casado%2C+Andrea%22">Vethencourt Casado, Andrea</searchLink><relatesTo>6</relatesTo><i> acvethencourt@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Vázquez+Fernández%2C+Silvia%22">Vázquez Fernández, Silvia</searchLink><relatesTo>6</relatesTo><i> silviavazquez@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Stradella%2C+Agostina%22">Stradella, Agostina</searchLink><relatesTo>6</relatesTo><i> astradella@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Falo+Zamora%2C+Catalina%22">Falo Zamora, Catalina</searchLink><relatesTo>6</relatesTo><i> cfalo@iconcologia.net</i><br /><searchLink fieldCode="AR" term="%22Font+Guiteras%2C+Antoni%22">Font Guiteras, Antoni</searchLink><relatesTo>5</relatesTo><i> Antonio.Font@uab.cat</i> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Psicooncologia%22">Psicooncologia</searchLink>. ene-jun2021, Vol. 18 Issue 1, p117-136. 20p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22RESEARCH+methodology%22">RESEARCH methodology</searchLink><br /><searchLink fieldCode="DE" term="%22METASTASIS%22">METASTASIS</searchLink><br /><searchLink fieldCode="DE" term="%22INTERVIEWING%22">INTERVIEWING</searchLink><br /><searchLink fieldCode="DE" term="%22CANCER+patients%22">CANCER patients</searchLink><br /><searchLink fieldCode="DE" term="%22PSYCHOLOGICAL+tests%22">PSYCHOLOGICAL tests</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITY+of+life%22">QUALITY of life</searchLink><br /><searchLink fieldCode="DE" term="%22QUESTIONNAIRES%22">QUESTIONNAIRES</searchLink><br /><searchLink fieldCode="DE" term="%22PSYCHOLOGICAL+adaptation%22">PSYCHOLOGICAL adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22BREAST+tumors%22">BREAST tumors</searchLink><br /><searchLink fieldCode="DE" term="%22LONGITUDINAL+method%22">LONGITUDINAL method</searchLink> – Name: Abstract Label: Abstract (English) Group: Ab Data: Introduction: Breast cancer is considered a chronic disease that has considerable impact on the quality of life (QoL) of the patients. Yet, there is not a totally satisfactory evaluation system reflecting the complexity of the breast cancer condition. Furthermore, most instruments are more addressed towards early-stage disease than advanced disease. Objective: To describe the methodology used to measure the QoL of life and coping strategies in a representative group of breast cancer patients including metastatic and non-metastatic patients. Methodology: Prospective study including patients with breast cancer at different stages of the disease recruited at the Medical Oncology Department of the Catalan Oncology Institute (ICO) previous informed consent. A protocol of approximately one hour face-to-face interview is run to collect sociodemographic information and to answer the questions of several QoL scales such as the QLCA-AFex Font, QLQ-C30, QLQ-BR23, HADS, DME, BRCS, MINI-MAC, LOT-R and OE questionnaires, complemented by a semi-structured interview. Results: From June 2017 to March 2020, 257 patients were included in the study. Mean age 57.9 years (SD 10.1), mostly women (98.8%), with children (87.9%) and married (65.4%). According to clinical status 75.5% were non-metastatic and 24.5% metastatic. Protocol compliance was achieved in more than 90% in all questionnaires without differences between metastatic and no metastatic patients. Conclusions: This multidimensional protocol enables us to make an integral assessment of the QoL of the patients and their unmet needs, as well as to reflect the patients' concerns, both in early and advanced stages of the disease, complementing currently available assessment methods. In the next future a complied questionnaire with the most challenging questions could be developed to be useful as a routine instrument in clinical practice. [ABSTRACT FROM AUTHOR] – Name: Abstract Label: Abstract (Spanish) Group: Ab Data: Introducción: El cáncer de mama es considerado una enfermedad crónica que impacta de modo importante en la calidad de vida (QoL) de las pacientes. En la actualidad no se dispone de un sistema de evaluación totalmente satisfactorio que refleje la complejidad del cáncer de mama. Además, la mayoría de instrumentos están más orientados a la enfermedad en estadios iniciales que a la enfermedad avanzada. Objetivo: Describir la metodología utilizada para evaluar la calidad de vida y las estrategias de afrontamiento en un grupo representativo de cáncer de mama que incluye tanto pacientes metastásicas como no metastásicas. Método: Estudio prospectivo en pacientes con cáncer de mama del Servicio de Oncología Médica del Institut Català d'Oncologia (ICO) en diferentes estadios de la enfermedad, previo consentimiento informado. Se les aplica un protocolo de aproximadamente una hora de entrevista presencial donde se recoge su información sociodemográfica, y se contestan varios cuestionarios de calidad de vida como el cuestionario QLCA-AFex Font, QLQ-C30, QLQ-BR23 HADS, DME, BRCS, MINI-MAC, LOT-R y OE, que se completan con una entrevista semiestructurada. Resultados: De junio de 2017 a marzo de 2020, 257 pacientes han sido incluidas en el estudio. La media de edad es de 57,9 años (SD 10,1), la mayoría son mujeres (98,8%), con hijos (87,9%) y casadas (65,4%). Respecto al estadiaje clínico 75,5% son no-metastásicas y 24,5% metastásicas. El cumplimiento del protocolo se consiguió en más del 90% de los cuestionarios sin diferencias entre pacientes metastásicas y no metastásicas. Conclusión: Este protocolo multidimensional permite hacer una evaluación integral de la calidad de vida, así como reflejar las necesidades no atendidas y las preocupaciones que muestran las pacientes tanto en estadio precoz como avanzado, complementando los sistemas de valoración actualmente disponibles. Después del análisis de los resultados de este estudio sería interesante poder obtener un cuestionario único con las preguntas más relevantes que pudiera ser aplicado a la práctica clínica. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Psicooncologia is the property of Universidad Complutense de Madrid and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.5209/psic.74535 Languages: – Code: spa Text: Spanish PhysicalDescription: Pagination: PageCount: 20 StartPage: 117 Subjects: – SubjectFull: RESEARCH methodology Type: general – SubjectFull: METASTASIS Type: general – SubjectFull: INTERVIEWING Type: general – SubjectFull: CANCER patients Type: general – SubjectFull: PSYCHOLOGICAL tests Type: general – SubjectFull: QUALITY of life Type: general – SubjectFull: QUESTIONNAIRES Type: general – SubjectFull: PSYCHOLOGICAL adaptation Type: general – SubjectFull: BREAST tumors Type: general – SubjectFull: LONGITUDINAL method Type: general Titles: – TitleFull: Desarrollo de una estrategia holística para la valoración de la calidad de vida en pacientes con cáncer de mama en las distintas etapas de la enfermedad. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Gómez-Villarroya, Lorena – PersonEntity: Name: NameFull: Serra-Arumí, Clara – PersonEntity: Name: NameFull: Báez-Sáez, Coral – PersonEntity: Name: NameFull: Mena Cervigon, Marisa – PersonEntity: Name: NameFull: Tous Belmonte, Sara – PersonEntity: Name: NameFull: Morey Cortes, Francisca – PersonEntity: Name: NameFull: Rodríguez Bruzos, Eva – PersonEntity: Name: NameFull: Gil, Miguel Gil – PersonEntity: Name: NameFull: Pernas Simón, Sonia – PersonEntity: Name: NameFull: Vethencourt Casado, Andrea – PersonEntity: Name: NameFull: Vázquez Fernández, Silvia – PersonEntity: Name: NameFull: Stradella, Agostina – PersonEntity: Name: NameFull: Falo Zamora, Catalina – PersonEntity: Name: NameFull: Font Guiteras, Antoni IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Text: ene-jun2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 16967240 Numbering: – Type: volume Value: 18 – Type: issue Value: 1 Titles: – TitleFull: Psicooncologia Type: main |
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