Percepción de profesionales de enfermería sobre la relación terapéutica con la familia del paciente con complejidad médica permanente en Unidades de Cuidados Intensivos.

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Title: Percepción de profesionales de enfermería sobre la relación terapéutica con la familia del paciente con complejidad médica permanente en Unidades de Cuidados Intensivos.
Alternate Title: Nurses’ perception of the therapeutic relationship with the family and the child with permanent medical complexity in the Pediatric Intensive Care Unit.
Authors: Cárdenas Álvarez, Vanessa1, Ulloa Herrera, Mariel1, Mora Peña, Carla1, Villa-Velásquez, Jenifer2,3 jenifer.villa@uach.cl
Source: Andes Pediatrica. Feb2025, Vol. 96 Issue 2, p235-242. 8p.
Subjects: NURSES, PEDIATRIC intensive care, YOUTH health, PATIENT care, QUALITATIVE research, PARENTING, SOCIAL networks, PATIENT-professional relations
Abstract (English): Nursing is responsible for care and for involving families in it, fostering and strengthening the bond, as well as managing the use of resources efficiently for the patient’s health, through the delivery of continuous, compassionate, and safe care. Objective: To know the perception of nurses regarding the therapeutic relationship with the family of the child with medical complexity (CMC) in the Pediatric Intensive Care Units (PICUs). Patients and Method: Qualitative research with case study design, involving six nurses working in two PICUs in southern Chile. Data were collected through a semistructured interview. Thematic analysis was performed, using the Atlas.ti.24 software. The rigor of the study was ensured through qualitative research criteria and the ethical requirements of Ezekiel Emanuel. Results: Four main themes emerge: “Nurses’ experiences in the care of CMC”, “Factors that intervene in the care of pediatric patients”, “Nurse-family relationship”, and “Elements that influence professional work”, where it was observed how the patient’s health condition determines the type of experience lived, the factors that positively or negatively influence the bond established with the family, and the patient care. Conclusion: For the integral development of pediatric CMC, it is recommended that family members be supported and integrated into the healthcare team, allowing the extension of support networks. [ABSTRACT FROM AUTHOR]
Abstract (Spanish): Enfermería tiene la responsabilidad del cuidado y de hacer partícipe a las familias en este, fomentando y fortaleciendo el vínculo, además de gestionar la utilización de los recursos de forma eficiente en pro de la salud del paciente, mediante la entrega de cuidados continuos, compasivos y seguros. Objetivo: Conocer la percepción de profesionales de Enfermería respecto a la relación terapéutica con la familia del paciente con Complejidad Médica Permanente (CMP) en Unidades de Cuidados Intensivos Pediátricas (UCIP). Pacientes y Método: Investigación cualitativa con diseño de estudio de caso, participan seis enfermeras que ejercen en dos UCIP de la zona sur de Chile. Se recogen datos a través de una entrevista semiestructurada. Se realiza análisis temático, utilizando como herramienta el Software Atlas.ti.24. Se cautela el rigor del estudio por medio de criterios de investigación cualitativa y requisitos éticos de Ezequiel Emanuel. Resultados: Emergen cuatro temas principales; “Experiencias de las enfermeras en el cuidado de los pacientes pediátricos con CMP”, “Factores que intervienen en la atención de los pacientes pediátricos”, “Relación enfermera y familia”, y “Elementos que influyen en el quehacer profesional”. Se observa cómo la condición de salud de los pacientes determina el tipo de experiencia vivida, se presentan factores que influyen positiva y negativamente en el vínculo que se establece con la familia y la atención del infante. Conclusión: Para el desarrollo integral de los pacientes con CMP se recomienda que los familiares se apoyen e integren en el equipo sanitario, permitiendo extender redes de apoyo. [ABSTRACT FROM AUTHOR]
Copyright of Andes Pediatrica is the property of Revista Chilena de Pediatria and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Percepción de profesionales de enfermería sobre la relación terapéutica con la familia del paciente con complejidad médica permanente en Unidades de Cuidados Intensivos.
– Name: TitleAlt
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  Data: Nurses’ perception of the therapeutic relationship with the family and the child with permanent medical complexity in the Pediatric Intensive Care Unit.
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  Data: <searchLink fieldCode="AR" term="%22Cárdenas+Álvarez%2C+Vanessa%22">Cárdenas Álvarez, Vanessa</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Ulloa+Herrera%2C+Mariel%22">Ulloa Herrera, Mariel</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Mora+Peña%2C+Carla%22">Mora Peña, Carla</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Villa-Velásquez%2C+Jenifer%22">Villa-Velásquez, Jenifer</searchLink><relatesTo>2,3</relatesTo><i> jenifer.villa@uach.cl</i>
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  Data: <searchLink fieldCode="JN" term="%22Andes+Pediatrica%22">Andes Pediatrica</searchLink>. Feb2025, Vol. 96 Issue 2, p235-242. 8p.
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  Data: <searchLink fieldCode="DE" term="%22NURSES%22">NURSES</searchLink><br /><searchLink fieldCode="DE" term="%22PEDIATRIC+intensive+care%22">PEDIATRIC intensive care</searchLink><br /><searchLink fieldCode="DE" term="%22YOUTH+health%22">YOUTH health</searchLink><br /><searchLink fieldCode="DE" term="%22PATIENT+care%22">PATIENT care</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITATIVE+research%22">QUALITATIVE research</searchLink><br /><searchLink fieldCode="DE" term="%22PARENTING%22">PARENTING</searchLink><br /><searchLink fieldCode="DE" term="%22SOCIAL+networks%22">SOCIAL networks</searchLink><br /><searchLink fieldCode="DE" term="%22PATIENT-professional+relations%22">PATIENT-professional relations</searchLink>
– Name: Abstract
  Label: Abstract (English)
  Group: Ab
  Data: Nursing is responsible for care and for involving families in it, fostering and strengthening the bond, as well as managing the use of resources efficiently for the patient’s health, through the delivery of continuous, compassionate, and safe care. Objective: To know the perception of nurses regarding the therapeutic relationship with the family of the child with medical complexity (CMC) in the Pediatric Intensive Care Units (PICUs). Patients and Method: Qualitative research with case study design, involving six nurses working in two PICUs in southern Chile. Data were collected through a semistructured interview. Thematic analysis was performed, using the Atlas.ti.24 software. The rigor of the study was ensured through qualitative research criteria and the ethical requirements of Ezekiel Emanuel. Results: Four main themes emerge: “Nurses’ experiences in the care of CMC”, “Factors that intervene in the care of pediatric patients”, “Nurse-family relationship”, and “Elements that influence professional work”, where it was observed how the patient’s health condition determines the type of experience lived, the factors that positively or negatively influence the bond established with the family, and the patient care. Conclusion: For the integral development of pediatric CMC, it is recommended that family members be supported and integrated into the healthcare team, allowing the extension of support networks. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label: Abstract (Spanish)
  Group: Ab
  Data: Enfermería tiene la responsabilidad del cuidado y de hacer partícipe a las familias en este, fomentando y fortaleciendo el vínculo, además de gestionar la utilización de los recursos de forma eficiente en pro de la salud del paciente, mediante la entrega de cuidados continuos, compasivos y seguros. Objetivo: Conocer la percepción de profesionales de Enfermería respecto a la relación terapéutica con la familia del paciente con Complejidad Médica Permanente (CMP) en Unidades de Cuidados Intensivos Pediátricas (UCIP). Pacientes y Método: Investigación cualitativa con diseño de estudio de caso, participan seis enfermeras que ejercen en dos UCIP de la zona sur de Chile. Se recogen datos a través de una entrevista semiestructurada. Se realiza análisis temático, utilizando como herramienta el Software Atlas.ti.24. Se cautela el rigor del estudio por medio de criterios de investigación cualitativa y requisitos éticos de Ezequiel Emanuel. Resultados: Emergen cuatro temas principales; “Experiencias de las enfermeras en el cuidado de los pacientes pediátricos con CMP”, “Factores que intervienen en la atención de los pacientes pediátricos”, “Relación enfermera y familia”, y “Elementos que influyen en el quehacer profesional”. Se observa cómo la condición de salud de los pacientes determina el tipo de experiencia vivida, se presentan factores que influyen positiva y negativamente en el vínculo que se establece con la familia y la atención del infante. Conclusión: Para el desarrollo integral de los pacientes con CMP se recomienda que los familiares se apoyen e integren en el equipo sanitario, permitiendo extender redes de apoyo. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Andes Pediatrica is the property of Revista Chilena de Pediatria and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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        Value: 10.32641/andespediatr.v96i2.5420
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      – Code: spa
        Text: Spanish
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      – SubjectFull: YOUTH health
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      – SubjectFull: PATIENT care
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              Text: Feb2025
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