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Muerte súbita en el paciente pediátrico con epilepsia: factores de riesgo, estrategias de prevención y cómo abordarlo con las familias.

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Title: Muerte súbita en el paciente pediátrico con epilepsia: factores de riesgo, estrategias de prevención y cómo abordarlo con las familias.
Alternate Title: Sudden unexpected death in epilepsy: risk factors, pre vention strategies, and approaches for family engagement.
Authors: Guerrero Ruiz, Graciela del Pilar1 (AUTHOR) plrguerrero@yahoo.com
Source: Medicina (Buenos Aires). 2025 Supplement 4, Vol. 85, p10-15. 6p.
Subjects: CHILDHOOD epilepsy, SEIZURES (Medicine), INTERDISCIPLINARY research, PREVENTIVE medicine, DISEASE risk factors, FAMILY communication
Abstract (English): Sudden unexpected death in epilepsy (SUDEP) is an important cause of mortality in children with epilepsy, with a similar incidence to that of adults. Its epidemiol ogy and pathophysiology are not yet fully defined. This review article addresses SUDEP in the pediatric popu lation, describing its definition, epidemiology, patho physiology and associated risk factors with a particular focus on prevention strategies and communication to families. Risk factors such as the presence and fre quency of generalized tonic-clonic seizures -especially during sleep-, drug-resistant epilepsy, lack of nocturnal supervision and neurological comorbidities are empha sized. Proposed pathophysiological mechanisms include autonomic dysregulation, postictal respiratory depres sion and genetic susceptibility, particularly in develop mental and epileptic encephalopathies such as Dravet syndrome. Preventive strategies are centered on seizure control, nocturnal monitoring, caregiver education and a multidisciplinary approach. Knowledge and educa tion regarding the topic are often greater in specialized drug-resistant epilepsy centers, yet improvement is needed across all care settings. Informing families in a relevant and sensitive manner is highlighted, aiming to foster a trusting and supportive relationship. Although the risk of SUDEP cannot be completely eliminated, the implementation of evidence-based measures reduces its incidence. [ABSTRACT FROM AUTHOR]
Abstract (Spanish): La muerte súbita inesperada en epilepsia (SUDEP) es una causa importante de mortalidad en niños con epilepsia, presentando una incidencia similar a la de los adultos. Su epidemiología y fisiopatología aún no están completamente definidas. Este artículo de revisión aborda SUDEP en la población pediátrica, describiendo su definición, epidemiología, fisiopa tología y factores de riesgo con especial énfasis en las estrategias de prevención y en la comunicación a las familias. Se destacan factores de riesgo como la presencia y frecuencia de crisis tónico-clónicas generalizadas, primordialmente durante el sueño, epilepsia refractaria, falta de supervisión nocturna y comorbilidades neurológicas. La fisiopatología in cluye disfunción autonómica, depresión respiratoria postictal y predisposición genética, particularmen te en síndromes epilépticos del desarrollo como el síndrome de Dravet. Las estrategias preventivas se centran en el control de las crisis, el monitoreo noc turno, la educación familiar y el abordaje multidisci plinario. El conocimiento y la educación es mayor en centros especializados en epilepsia refractaria, pero es fundamental mejorarlos en todos los ámbitos. Se subraya la importancia de informar a las familias de manera pertinente y sensible, fomentando una relación de confianza y apoyo. Aunque el riesgo de SUDEP no puede eliminarse completamente, la implementación de medidas basadas en evidencia, reducen su incidencia. [ABSTRACT FROM AUTHOR]
Copyright of Medicina (Buenos Aires) is the property of Medicina (Buenos Aires) and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Muerte súbita en el paciente pediátrico con epilepsia: factores de riesgo, estrategias de prevención y cómo abordarlo con las familias.
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  Data: Sudden unexpected death in epilepsy: risk factors, pre vention strategies, and approaches for family engagement.
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  Data: <searchLink fieldCode="AR" term="%22Guerrero+Ruiz%2C+Graciela+del+Pilar%22">Guerrero Ruiz, Graciela del Pilar</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> plrguerrero@yahoo.com</i>
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  Data: <searchLink fieldCode="JN" term="%22Medicina+%28Buenos+Aires%29%22">Medicina (Buenos Aires)</searchLink>. 2025 Supplement 4, Vol. 85, p10-15. 6p.
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  Data: <searchLink fieldCode="DE" term="%22CHILDHOOD+epilepsy%22">CHILDHOOD epilepsy</searchLink><br /><searchLink fieldCode="DE" term="%22SEIZURES+%28Medicine%29%22">SEIZURES (Medicine)</searchLink><br /><searchLink fieldCode="DE" term="%22INTERDISCIPLINARY+research%22">INTERDISCIPLINARY research</searchLink><br /><searchLink fieldCode="DE" term="%22PREVENTIVE+medicine%22">PREVENTIVE medicine</searchLink><br /><searchLink fieldCode="DE" term="%22DISEASE+risk+factors%22">DISEASE risk factors</searchLink><br /><searchLink fieldCode="DE" term="%22FAMILY+communication%22">FAMILY communication</searchLink>
– Name: Abstract
  Label: Abstract (English)
  Group: Ab
  Data: Sudden unexpected death in epilepsy (SUDEP) is an important cause of mortality in children with epilepsy, with a similar incidence to that of adults. Its epidemiol ogy and pathophysiology are not yet fully defined. This review article addresses SUDEP in the pediatric popu lation, describing its definition, epidemiology, patho physiology and associated risk factors with a particular focus on prevention strategies and communication to families. Risk factors such as the presence and fre quency of generalized tonic-clonic seizures -especially during sleep-, drug-resistant epilepsy, lack of nocturnal supervision and neurological comorbidities are empha sized. Proposed pathophysiological mechanisms include autonomic dysregulation, postictal respiratory depres sion and genetic susceptibility, particularly in develop mental and epileptic encephalopathies such as Dravet syndrome. Preventive strategies are centered on seizure control, nocturnal monitoring, caregiver education and a multidisciplinary approach. Knowledge and educa tion regarding the topic are often greater in specialized drug-resistant epilepsy centers, yet improvement is needed across all care settings. Informing families in a relevant and sensitive manner is highlighted, aiming to foster a trusting and supportive relationship. Although the risk of SUDEP cannot be completely eliminated, the implementation of evidence-based measures reduces its incidence. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label: Abstract (Spanish)
  Group: Ab
  Data: La muerte súbita inesperada en epilepsia (SUDEP) es una causa importante de mortalidad en niños con epilepsia, presentando una incidencia similar a la de los adultos. Su epidemiología y fisiopatología aún no están completamente definidas. Este artículo de revisión aborda SUDEP en la población pediátrica, describiendo su definición, epidemiología, fisiopa tología y factores de riesgo con especial énfasis en las estrategias de prevención y en la comunicación a las familias. Se destacan factores de riesgo como la presencia y frecuencia de crisis tónico-clónicas generalizadas, primordialmente durante el sueño, epilepsia refractaria, falta de supervisión nocturna y comorbilidades neurológicas. La fisiopatología in cluye disfunción autonómica, depresión respiratoria postictal y predisposición genética, particularmen te en síndromes epilépticos del desarrollo como el síndrome de Dravet. Las estrategias preventivas se centran en el control de las crisis, el monitoreo noc turno, la educación familiar y el abordaje multidisci plinario. El conocimiento y la educación es mayor en centros especializados en epilepsia refractaria, pero es fundamental mejorarlos en todos los ámbitos. Se subraya la importancia de informar a las familias de manera pertinente y sensible, fomentando una relación de confianza y apoyo. Aunque el riesgo de SUDEP no puede eliminarse completamente, la implementación de medidas basadas en evidencia, reducen su incidencia. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Medicina (Buenos Aires) is the property of Medicina (Buenos Aires) and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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    Languages:
      – Code: spa
        Text: Spanish
    PhysicalDescription:
      Pagination:
        PageCount: 6
        StartPage: 10
    Subjects:
      – SubjectFull: CHILDHOOD epilepsy
        Type: general
      – SubjectFull: SEIZURES (Medicine)
        Type: general
      – SubjectFull: INTERDISCIPLINARY research
        Type: general
      – SubjectFull: PREVENTIVE medicine
        Type: general
      – SubjectFull: DISEASE risk factors
        Type: general
      – SubjectFull: FAMILY communication
        Type: general
    Titles:
      – TitleFull: Muerte súbita en el paciente pediátrico con epilepsia: factores de riesgo, estrategias de prevención y cómo abordarlo con las familias.
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            – D: 02
              M: 07
              Text: 2025 Supplement 4
              Type: published
              Y: 2025
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              Value: 85
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