Información a pacientes: cuándo y qué información suministrar.

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Title: Información a pacientes: cuándo y qué información suministrar.
Alternate Title: Patient information: what type and when should it be provided?
Authors: Frutos, Miguel Ángel1 mangel.frutos.sspa@juntadeandalucia.es, Cabello, Mercedes1
Source: Nefrologia. 2010, Vol. 30 Issue S2, p39-46. 8p. 1 Color Photograph, 1 Chart, 1 Graph.
Subjects: KIDNEY transplantation, QUALITY of life, MEDICAL informatics, MEDICAL records, NEPHROLOGY, MEDICAL ethics, ORGAN donors
Abstract (English): The living donor kidney transplant should be considered a priority option providing better quality of life and survival for those needing renal replacement therapy. To increase their number, both nephrologists and patients, should be informed more and better, offering this option compared with LDKT alternatives (dialysis or kidney transplant from a deceased donor). The clinical nephrology consultations or specific pre-dialysis are the space where in stages 3 and 4 of renal failure should be started on LDKT informational approaches. Later, when seeking more detailed information and/or evaluation of potential donors, this could be provided at times and spaces specifically reserved for awareness professionals with the use of brochures or Internet addresses. Information should focus especially on the additional benefits of pre-emptive LDKT, the risks of nephrectomy and long term controls for the donor. Finally, donor, recipient and family should know that the donation will only be justified and may be accepted if the studies of risk/benefit for the donor and recipient have been faithfully evaluated according to the highest ethical standards. [ABSTRACT FROM AUTHOR]
Abstract (Spanish): El trasplante renal de donante vivo (TRDV) se debe ofrecer como opción terapéutica prioritaria porque proporciona mejores resultados en calidad de vida y supervivencia para quienes precisan tratamiento renal sustitutivo. Para aumentar su número, es preciso informar más y mejor, tanto a nefrólogos como a pacientes, ofreciendo la opción del TRDV junto a las alternativas de tratamiento con diálisis o trasplante renal de donante fallecido. Las consultas de nefrología clínica o las específicas de prediálisis son el espacio donde en estadios 3 y 4 de insuficiencia renal se deben iniciar planteamientos informativos sobre TRDV. Posteriormente, caso de solicitar información más detallada y/o valoración de potenciales donantes, ésta se podría facilitar en momentos y espacios específicamente reservados por profesionales concienciados, siendo de ayuda la utilización de folletos informativos o direcciones de Internet. La información debería incidir especialmente en los beneficios adicionales del TRDV anticipado, los riesgos que supone la intervención de nefrectomía, y los cuidados y controles que necesitará el donante. Finalmente, donante, receptor y familiares deben saber que la donación sólo estará justificada, y podrá ser aceptada, si los estudios de riesgo/beneficio para donante y receptor han sido fielmente evaluados de acuerdo a los mejores estándares éticos. [ABSTRACT FROM AUTHOR]
Copyright of Nefrologia is the property of Revista Nefrologia and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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Items – Name: Title
  Label: Title
  Group: Ti
  Data: Información a pacientes: cuándo y qué información suministrar.
– Name: TitleAlt
  Label: Alternate Title
  Group: TiAlt
  Data: Patient information: what type and when should it be provided?
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Frutos%2C+Miguel+Ángel%22">Frutos, Miguel Ángel</searchLink><relatesTo>1</relatesTo><i> mangel.frutos.sspa@juntadeandalucia.es</i><br /><searchLink fieldCode="AR" term="%22Cabello%2C+Mercedes%22">Cabello, Mercedes</searchLink><relatesTo>1</relatesTo>
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Nefrologia%22">Nefrologia</searchLink>. 2010, Vol. 30 Issue S2, p39-46. 8p. 1 Color Photograph, 1 Chart, 1 Graph.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22KIDNEY+transplantation%22">KIDNEY transplantation</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITY+of+life%22">QUALITY of life</searchLink><br /><searchLink fieldCode="DE" term="%22MEDICAL+informatics%22">MEDICAL informatics</searchLink><br /><searchLink fieldCode="DE" term="%22MEDICAL+records%22">MEDICAL records</searchLink><br /><searchLink fieldCode="DE" term="%22NEPHROLOGY%22">NEPHROLOGY</searchLink><br /><searchLink fieldCode="DE" term="%22MEDICAL+ethics%22">MEDICAL ethics</searchLink><br /><searchLink fieldCode="DE" term="%22ORGAN+donors%22">ORGAN donors</searchLink>
– Name: Abstract
  Label: Abstract (English)
  Group: Ab
  Data: The living donor kidney transplant should be considered a priority option providing better quality of life and survival for those needing renal replacement therapy. To increase their number, both nephrologists and patients, should be informed more and better, offering this option compared with LDKT alternatives (dialysis or kidney transplant from a deceased donor). The clinical nephrology consultations or specific pre-dialysis are the space where in stages 3 and 4 of renal failure should be started on LDKT informational approaches. Later, when seeking more detailed information and/or evaluation of potential donors, this could be provided at times and spaces specifically reserved for awareness professionals with the use of brochures or Internet addresses. Information should focus especially on the additional benefits of pre-emptive LDKT, the risks of nephrectomy and long term controls for the donor. Finally, donor, recipient and family should know that the donation will only be justified and may be accepted if the studies of risk/benefit for the donor and recipient have been faithfully evaluated according to the highest ethical standards. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label: Abstract (Spanish)
  Group: Ab
  Data: El trasplante renal de donante vivo (TRDV) se debe ofrecer como opción terapéutica prioritaria porque proporciona mejores resultados en calidad de vida y supervivencia para quienes precisan tratamiento renal sustitutivo. Para aumentar su número, es preciso informar más y mejor, tanto a nefrólogos como a pacientes, ofreciendo la opción del TRDV junto a las alternativas de tratamiento con diálisis o trasplante renal de donante fallecido. Las consultas de nefrología clínica o las específicas de prediálisis son el espacio donde en estadios 3 y 4 de insuficiencia renal se deben iniciar planteamientos informativos sobre TRDV. Posteriormente, caso de solicitar información más detallada y/o valoración de potenciales donantes, ésta se podría facilitar en momentos y espacios específicamente reservados por profesionales concienciados, siendo de ayuda la utilización de folletos informativos o direcciones de Internet. La información debería incidir especialmente en los beneficios adicionales del TRDV anticipado, los riesgos que supone la intervención de nefrectomía, y los cuidados y controles que necesitará el donante. Finalmente, donante, receptor y familiares deben saber que la donación sólo estará justificada, y podrá ser aceptada, si los estudios de riesgo/beneficio para donante y receptor han sido fielmente evaluados de acuerdo a los mejores estándares éticos. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Nefrologia is the property of Revista Nefrologia and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.3265/Nefrologia.pre2010.Nov.10690
    Languages:
      – Code: spa
        Text: Spanish
    PhysicalDescription:
      Pagination:
        PageCount: 8
        StartPage: 39
    Subjects:
      – SubjectFull: KIDNEY transplantation
        Type: general
      – SubjectFull: QUALITY of life
        Type: general
      – SubjectFull: MEDICAL informatics
        Type: general
      – SubjectFull: MEDICAL records
        Type: general
      – SubjectFull: NEPHROLOGY
        Type: general
      – SubjectFull: MEDICAL ethics
        Type: general
      – SubjectFull: ORGAN donors
        Type: general
    Titles:
      – TitleFull: Información a pacientes: cuándo y qué información suministrar.
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          Name:
            NameFull: Frutos, Miguel Ángel
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            NameFull: Cabello, Mercedes
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          Dates:
            – D: 02
              M: 12
              Text: 2010
              Type: published
              Y: 2010
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              Value: 30
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              Value: S2
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