Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.
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| Title: | Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death. |
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| Authors: | Amendola LM; Clinical and research genetic counselor in the University of Washington, Division of Medical Genetics. Ms. Amendola received her M.S. in Genetic Counseling in Houston, Texas at the University of Texas, Graduate School of Biomedical Sciences., Horike-Pyne M; Research Coordinator in the Division of Medical Genetics at the University of Washington, Seattle. She received her M.P.H. at the University of Massachusetts, Amherst, and is a scientist board member for two Institutional Review Boards (IRBs) in Seattle., Trinidad SB; Research scientist in the Department of Bioethics and Humanities at the University of Washington. She holds a master's degree from the Interdisciplinary Program in Health and Humanities at Michigan State University., Fullerton SM; Associate Professor of Bioethics and Humanities at the University of Washington and Adjunct Associate Professor of Epidemiology and Genome Sciences. She completed a Ph.D. in Human Population Genetics at the University of Oxford, U.K., and a postdoctoral fellowship in the Ethical, Legal, and Social Implications (ELSI) of genetic research at the Pennsylvania State University., Evans BJ; Professor of Law and holds the George Butler Research professorship at University of Houston Law Center, where she is the Director of the Center for Biotechnology & Law. She earned her Ph.D. at Stanford University and J.D. at Yale Law School., Burke W; Professor of Bioethics and Humanities at the University of Washington and Adjunct Professor of Medicine (Medical Genetics). She completed a Ph.D. in Genetics and an M.D. at the University of Washington where she also trained in Internal Medicine., Jarvik GP; Head of the Division of Medical Genetics and holds the Arno G. Motulsky Chair of Medicine at the University of Washington, Seattle, where she is a Professor of Medicine (Medical Genetics) and Genome Sciences. She received her Ph.D. in Human Genetics at the University of Michigan and her M.D. at the University of Iowa in the Medical Scientists Training Program. She completed her residency in Internal Medicine at the Hospital of the University of Pennsylvania and her fellowship in Medical Genetics at the University of Washington. |
| Source: | The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2015 Fall; Vol. 43 (3), pp. 476-85. |
| Publication Type: | Journal Article; Research Support, N.I.H., Extramural |
| Journal Info: | Publisher: Cambridge University Press Country of Publication: England NLM ID: 9315583 Publication Model: Print Cited Medium: Internet ISSN: 1748-720X (Electronic) Linking ISSN: 10731105 NLM ISO Abbreviation: J Law Med Ethics |
| Database: | MEDLINE Ultimate |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 26479557 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Amendola+LM%22">Amendola LM</searchLink>; Clinical and research genetic counselor in the University of Washington, Division of Medical Genetics. Ms. Amendola received her M.S. in Genetic Counseling in Houston, Texas at the University of Texas, Graduate School of Biomedical Sciences.<br /><searchLink fieldCode="AU" term="%22Horike-Pyne+M%22">Horike-Pyne M</searchLink>; Research Coordinator in the Division of Medical Genetics at the University of Washington, Seattle. She received her M.P.H. at the University of Massachusetts, Amherst, and is a scientist board member for two Institutional Review Boards (IRBs) in Seattle.<br /><searchLink fieldCode="AU" term="%22Trinidad+SB%22">Trinidad SB</searchLink>; Research scientist in the Department of Bioethics and Humanities at the University of Washington. She holds a master's degree from the Interdisciplinary Program in Health and Humanities at Michigan State University.<br /><searchLink fieldCode="AU" term="%22Fullerton+SM%22">Fullerton SM</searchLink>; Associate Professor of Bioethics and Humanities at the University of Washington and Adjunct Associate Professor of Epidemiology and Genome Sciences. She completed a Ph.D. in Human Population Genetics at the University of Oxford, U.K., and a postdoctoral fellowship in the Ethical, Legal, and Social Implications (ELSI) of genetic research at the Pennsylvania State University.<br /><searchLink fieldCode="AU" term="%22Evans+BJ%22">Evans BJ</searchLink>; Professor of Law and holds the George Butler Research professorship at University of Houston Law Center, where she is the Director of the Center for Biotechnology & Law. She earned her Ph.D. at Stanford University and J.D. at Yale Law School.<br /><searchLink fieldCode="AU" term="%22Burke+W%22">Burke W</searchLink>; Professor of Bioethics and Humanities at the University of Washington and Adjunct Professor of Medicine (Medical Genetics). She completed a Ph.D. in Genetics and an M.D. at the University of Washington where she also trained in Internal Medicine.<br /><searchLink fieldCode="AU" term="%22Jarvik+GP%22">Jarvik GP</searchLink>; Head of the Division of Medical Genetics and holds the Arno G. Motulsky Chair of Medicine at the University of Washington, Seattle, where she is a Professor of Medicine (Medical Genetics) and Genome Sciences. She received her Ph.D. in Human Genetics at the University of Michigan and her M.D. at the University of Iowa in the Medical Scientists Training Program. She completed her residency in Internal Medicine at the Hospital of the University of Pennsylvania and her fellowship in Medical Genetics at the University of Washington. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%229315583%22">The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics</searchLink> [J Law Med Ethics] 2015 Fall; Vol. 43 (3), pp. 476-85. – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article; Research Support, N.I.H., Extramural – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Cambridge+University+Press%22">Cambridge University Press </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9315583 <i>Publication Model: </i>Print <i>Cited Medium: </i>Internet <i>ISSN: </i>1748-720X (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2210731105%22">10731105 </searchLink><i>NLM ISO Abbreviation: </i>J Law Med Ethics |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=26479557 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/jlme.12290 Languages: – Code: eng Text: English PhysicalDescription: Pagination: StartPage: 476 Titles: – TitleFull: Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Amendola LM – PersonEntity: Name: NameFull: Horike-Pyne M – PersonEntity: Name: NameFull: Trinidad SB – PersonEntity: Name: NameFull: Fullerton SM – PersonEntity: Name: NameFull: Evans BJ – PersonEntity: Name: NameFull: Burke W – PersonEntity: Name: NameFull: Jarvik GP IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: 2015 Fall Type: published Y: 2015 Identifiers: – Type: issn-electronic Value: 1748-720X Numbering: – Type: volume Value: 43 – Type: issue Value: 3 Titles: – TitleFull: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics Type: main |
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