Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.

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Title: Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.
Authors: Amendola LM; Clinical and research genetic counselor in the University of Washington, Division of Medical Genetics. Ms. Amendola received her M.S. in Genetic Counseling in Houston, Texas at the University of Texas, Graduate School of Biomedical Sciences., Horike-Pyne M; Research Coordinator in the Division of Medical Genetics at the University of Washington, Seattle. She received her M.P.H. at the University of Massachusetts, Amherst, and is a scientist board member for two Institutional Review Boards (IRBs) in Seattle., Trinidad SB; Research scientist in the Department of Bioethics and Humanities at the University of Washington. She holds a master's degree from the Interdisciplinary Program in Health and Humanities at Michigan State University., Fullerton SM; Associate Professor of Bioethics and Humanities at the University of Washington and Adjunct Associate Professor of Epidemiology and Genome Sciences. She completed a Ph.D. in Human Population Genetics at the University of Oxford, U.K., and a postdoctoral fellowship in the Ethical, Legal, and Social Implications (ELSI) of genetic research at the Pennsylvania State University., Evans BJ; Professor of Law and holds the George Butler Research professorship at University of Houston Law Center, where she is the Director of the Center for Biotechnology & Law. She earned her Ph.D. at Stanford University and J.D. at Yale Law School., Burke W; Professor of Bioethics and Humanities at the University of Washington and Adjunct Professor of Medicine (Medical Genetics). She completed a Ph.D. in Genetics and an M.D. at the University of Washington where she also trained in Internal Medicine., Jarvik GP; Head of the Division of Medical Genetics and holds the Arno G. Motulsky Chair of Medicine at the University of Washington, Seattle, where she is a Professor of Medicine (Medical Genetics) and Genome Sciences. She received her Ph.D. in Human Genetics at the University of Michigan and her M.D. at the University of Iowa in the Medical Scientists Training Program. She completed her residency in Internal Medicine at the Hospital of the University of Pennsylvania and her fellowship in Medical Genetics at the University of Washington.
Source: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2015 Fall; Vol. 43 (3), pp. 476-85.
Publication Type: Journal Article; Research Support, N.I.H., Extramural
Journal Info: Publisher: Cambridge University Press Country of Publication: England NLM ID: 9315583 Publication Model: Print Cited Medium: Internet ISSN: 1748-720X (Electronic) Linking ISSN: 10731105 NLM ISO Abbreviation: J Law Med Ethics
Database: MEDLINE Ultimate
Description
ISSN:1748-720X
DOI:10.1111/jlme.12290