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Mitochondrial disease patient motivations and barriers to participate in clinical trials.

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Title: Mitochondrial disease patient motivations and barriers to participate in clinical trials.
Authors: Zolkipli-Cunningham Z; Division of Neurology, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America., Xiao R; Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, United States of America., Stoddart A; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Arcadia University, Glenside, Pennsylvania, United States of America.; Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America., McCormick EM; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America., Holberts A; Rare Diseases Clinical Research Network, Health Informatics Institute, University of South Florida, Tampa, Florida, United States of America., Burrill N; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America., McCormack S; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Division of Endocrinology and Diabetes, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States of America., Williams L; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America., Wang X; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America., Thompson JLP; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America., Falk MJ; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America.
Source: PloS one [PLoS One] 2018 May 17; Vol. 13 (5), pp. e0197513. Date of Electronic Publication: 2018 May 17 (Print Publication: 2018).
Publication Type: Comparative Study; Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Zolkipli-Cunningham+Z%22">Zolkipli-Cunningham Z</searchLink>; Division of Neurology, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Xiao+R%22">Xiao R</searchLink>; Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Stoddart+A%22">Stoddart A</searchLink>; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Arcadia University, Glenside, Pennsylvania, United States of America.; Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22McCormick+EM%22">McCormick EM</searchLink>; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Holberts+A%22">Holberts A</searchLink>; Rare Diseases Clinical Research Network, Health Informatics Institute, University of South Florida, Tampa, Florida, United States of America.<br /><searchLink fieldCode="AU" term="%22Burrill+N%22">Burrill N</searchLink>; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22McCormack+S%22">McCormack S</searchLink>; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Division of Endocrinology and Diabetes, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States of America.<br /><searchLink fieldCode="AU" term="%22Williams+L%22">Williams L</searchLink>; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America.<br /><searchLink fieldCode="AU" term="%22Wang+X%22">Wang X</searchLink>; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America.<br /><searchLink fieldCode="AU" term="%22Thompson+JLP%22">Thompson JLP</searchLink>; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America.<br /><searchLink fieldCode="AU" term="%22Falk+MJ%22">Falk MJ</searchLink>; Mitochondrial Medicine Frontier Program, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Division of Human Genetics, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America.; Department of Biostatistics, Mailman School of Public Health, Columbia University Medical Center, New York, New York, United States of America.
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