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Cancer survivor perspectives on sharing patient-generated health data with central cancer registries.

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Title: Cancer survivor perspectives on sharing patient-generated health data with central cancer registries.
Authors: Smith TG; Behavioral and Epidemiology Research Group, American Cancer Society, 250 Williams Street, Atlanta, GA, 30303, USA. tenbroeck.smith@cancer.org., Dunn ME; Westat, Rockville, MD, USA., Levin KY; Westat, Rockville, MD, USA., Tsakraklides SP; Westat, Rockville, MD, USA., Mitchell SA; National Cancer Institute, Bethesda, MD, USA., van de Poll-Franse LV; Division of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands.; Department of Medical and Clinical Psychology, Center of Research on Psychology in Somatic Diseases (CoRPS), Tilburg University, Tilburg, The Netherlands.; Department of Research, Netherlands Comprehensive Cancer Organisation, Utrecht, The Netherlands., Ward KC; Emory University, Atlanta, GA, USA., Wiggins CL; New Mexico Tumor Registry, Albuquerque, NM, USA., Wu XC; Louisiana Tumor Registry/ School of Public Health Epidemiology Program, Louisiana State University Health Sciences Center, New Orleans, LA, USA., Hurlbert M; Metastatic Breast Cancer Alliance, New York, NY, USA., Aaronson NK; Division of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2019 Nov; Vol. 28 (11), pp. 2957-2967. Date of Electronic Publication: 2019 Aug 09.
Publication Type: Journal Article
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Cancer survivor perspectives on sharing patient-generated health data with central cancer registries.
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  Data: <searchLink fieldCode="AU" term="%22Smith+TG%22">Smith TG</searchLink>; Behavioral and Epidemiology Research Group, American Cancer Society, 250 Williams Street, Atlanta, GA, 30303, USA. tenbroeck.smith@cancer.org.<br /><searchLink fieldCode="AU" term="%22Dunn+ME%22">Dunn ME</searchLink>; Westat, Rockville, MD, USA.<br /><searchLink fieldCode="AU" term="%22Levin+KY%22">Levin KY</searchLink>; Westat, Rockville, MD, USA.<br /><searchLink fieldCode="AU" term="%22Tsakraklides+SP%22">Tsakraklides SP</searchLink>; Westat, Rockville, MD, USA.<br /><searchLink fieldCode="AU" term="%22Mitchell+SA%22">Mitchell SA</searchLink>; National Cancer Institute, Bethesda, MD, USA.<br /><searchLink fieldCode="AU" term="%22van+de+Poll-Franse+LV%22">van de Poll-Franse LV</searchLink>; Division of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands.; Department of Medical and Clinical Psychology, Center of Research on Psychology in Somatic Diseases (CoRPS), Tilburg University, Tilburg, The Netherlands.; Department of Research, Netherlands Comprehensive Cancer Organisation, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Ward+KC%22">Ward KC</searchLink>; Emory University, Atlanta, GA, USA.<br /><searchLink fieldCode="AU" term="%22Wiggins+CL%22">Wiggins CL</searchLink>; New Mexico Tumor Registry, Albuquerque, NM, USA.<br /><searchLink fieldCode="AU" term="%22Wu+XC%22">Wu XC</searchLink>; Louisiana Tumor Registry/ School of Public Health Epidemiology Program, Louisiana State University Health Sciences Center, New Orleans, LA, USA.<br /><searchLink fieldCode="AU" term="%22Hurlbert+M%22">Hurlbert M</searchLink>; Metastatic Breast Cancer Alliance, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Aaronson+NK%22">Aaronson NK</searchLink>; Division of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Netherlands%22">Springer Netherlands </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>9210257 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1573-2649 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209629343%22">09629343 </searchLink><i>NLM ISO Abbreviation: </i>Qual Life Res <i>Subsets: </i>MEDLINE
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              Text: 2019 Nov
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