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The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease.

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Title: The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease.
Authors: McConkie-Rosell A; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Schoch K; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Sullivan J; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Cope H; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Spillmann R; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Palmer CGS; Department of Psychiatry and Biobehavioral Sciences, UCLA Semel Institute, Los Angeles, California., Pena L; Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Department of Pediatrics, University of Cincinnati School of Medicine., Jiang YH; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Daniels N; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Walley N; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Tan KG; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina., Hooper SR; Department of Allied Health Sciences, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina., Shashi V; Department of Pediatrics, Division of Medical Genetics, Duke University School of Medicine, Durham, North Carolina.
Corporate Authors: Undiagnosed Diseases Network; Undiagnosed Diseases Network, NIH Common Fund, Bethesda, Maryland.
Source: Clinical genetics [Clin Genet] 2019 Dec; Vol. 96 (6), pp. 521-531. Date of Electronic Publication: 2019 Oct 08.
Publication Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Munksgaard Country of Publication: Denmark NLM ID: 0253664 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1399-0004 (Electronic) Linking ISSN: 00099163 NLM ISO Abbreviation: Clin Genet Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="CA" term="%22Undiagnosed+Diseases+Network%22">Undiagnosed Diseases Network</searchLink>; Undiagnosed Diseases Network, NIH Common Fund, Bethesda, Maryland.
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