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The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States.

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Title: The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States.
Authors: Alsaied T; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA., Allen KY; Division of Cardiology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Feinberg Northwestern University School of Medicine, Chicago, IL, USA., Anderson JB; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA., Anixt JS; Division of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; Department of Pediatrics, University of Cincinnati, Cincinnati, OH, USA., Brown DW; Department of Cardiology, Boston Children's Hospital, Boston, MA, USA.; Department of Pediatrics, Harvard Medical School, Boston, MA, USA., Cetta F; Department of Pediatric Cardiology, The Mayo Clinic, Rochester, MN, USA., Cordina R; Royal Prince Alfred Hospital, Sydney, Australia., D'udekem Y; Children's National Cardiac Surgery and Heart Institute, Washington, DC, USA., Didier M; Sisters by Heart Organization, El Segundo, CA, USA.; The National Pediatric Cardiology Quality Improvent Collaborative, Cincinnati, OH, USA., Ginde S; Department of Cardiology, The Children's Hospital of Wisconsin, Milwaukee, WI, USA., Di Maria MV; Heart Institute, Children's Hospital Colorado, Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA., Eversole M; The Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Goldberg D; Department of Pediatric Cardiology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA., Goldstein BH; Heart Institute, UPMC Children's Hospital of Pittsburgh, Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA., Hoffmann E; Additional Ventures, Palo Alto, CA, USA., Kovacs AH; Knight Cardiovascular Institute, Oregon Health & Science University, Portland, OR, USA., Lannon C; The Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; American Board of Pediatrics, Chapel Hill, NC, USA., Lihn S; Sisters by Heart Organization, El Segundo, CA, USA.; The National Pediatric Cardiology Quality Improvent Collaborative, Cincinnati, OH, USA., Lubert AM; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA., Marino BS; Division of Cardiology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Feinberg Northwestern University School of Medicine, Chicago, IL, USA., Mullen E; The Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; American Board of Pediatrics, Chapel Hill, NC, USA.; Data Management and Analysis Center, Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Pickles D; One Brave Idea at American Heart Association, Boston, MA, USA., Rathod RH; Department of Cardiology, Boston Children's Hospital, Boston, MA, USA.; Department of Pediatrics, Harvard Medical School, Boston, MA, USA., Rychik J; Department of Pediatric Cardiology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA., Tweddell JS; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA.; Department of Cardiothoracic Surgery, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA., Wooton S; The Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; American Board of Pediatrics, Chapel Hill, NC, USA., Wright G; Department of Pediatric Cardiology, Stanford University, Palo Alto, CA, USA., Younoszai A; Heart Institute, Children's Hospital Colorado, Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA., Glenn T; Rady Children's Hospital, Department of Pediatric Cardiology, San Diego, California., Wilmoth A; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA., Schumacher K; Congenital Heart Center, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.
Source: Cardiology in the young [Cardiol Young] 2020 Aug; Vol. 30 (8), pp. 1070-1075. Date of Electronic Publication: 2020 Jul 08.
Publication Type: Journal Article
Journal Info: Publisher: Cambridge University Press Country of Publication: England NLM ID: 9200019 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1467-1107 (Electronic) Linking ISSN: 10479511 NLM ISO Abbreviation: Cardiol Young Subsets: MEDLINE
Database: MEDLINE Ultimate
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Lurie Children's Hospital of Chicago, Chicago, IL, USA.; Department of Pediatrics, Feinberg Northwestern University School of Medicine, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Mullen+E%22">Mullen E</searchLink>; The Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; American Board of Pediatrics, Chapel Hill, NC, USA.; Data Management and Analysis Center, Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Pickles+D%22">Pickles D</searchLink>; One Brave Idea at American Heart Association, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Rathod+RH%22">Rathod RH</searchLink>; Department of Cardiology, Boston Children's Hospital, Boston, MA, USA.; Department of Pediatrics, Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Rychik+J%22">Rychik J</searchLink>; Department of Pediatric Cardiology, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Tweddell+JS%22">Tweddell JS</searchLink>; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA.; Department of Cardiothoracic Surgery, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Wooton+S%22">Wooton S</searchLink>; The Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.; American Board of Pediatrics, Chapel Hill, NC, USA.<br /><searchLink fieldCode="AU" term="%22Wright+G%22">Wright G</searchLink>; Department of Pediatric Cardiology, Stanford University, Palo Alto, CA, USA.<br /><searchLink fieldCode="AU" term="%22Younoszai+A%22">Younoszai A</searchLink>; Heart Institute, Children's Hospital Colorado, Department of Pediatrics, University of Colorado School of Medicine, Aurora, CO, USA.<br /><searchLink fieldCode="AU" term="%22Glenn+T%22">Glenn T</searchLink>; Rady Children's Hospital, Department of Pediatric Cardiology, San Diego, California.<br /><searchLink fieldCode="AU" term="%22Wilmoth+A%22">Wilmoth A</searchLink>; Heart Institute, Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Schumacher+K%22">Schumacher K</searchLink>; Congenital Heart Center, C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.
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