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Patient and family experience with transthyretin amyloid cardiomyopathy (ATTR-CM) and polyneuropathy (ATTR-PN) amyloidosis: results of two focus groups.

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Title: Patient and family experience with transthyretin amyloid cardiomyopathy (ATTR-CM) and polyneuropathy (ATTR-PN) amyloidosis: results of two focus groups.
Authors: Rintell D; BridgeBio, Palo Alto, CA, USA. dr@bridgebio.com., Heath D; Amyloidosis Research Consortium, Newton, MA, USA., Braga Mendendez F; Alianza Argentina de Pacientes, Buenos Aires, Argentina., Cross E; Cross Associates, Woodland Park, NJ, USA., Cross T; Cross Associates, Woodland Park, NJ, USA., Knobel V; Eidos Therapeutics, San Francisco, CA, USA., Gagnon B; Eidos Therapeutics, San Francisco, CA, USA., Turtle C; Eidos Therapeutics, San Francisco, CA, USA., Cohen A; Eidos Therapeutics, San Francisco, CA, USA., Kalmykov E; Eidos Therapeutics, San Francisco, CA, USA., Fox J; Eidos Therapeutics, San Francisco, CA, USA.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2021 Feb 08; Vol. 16 (1), pp. 70. Date of Electronic Publication: 2021 Feb 08.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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PubType: Academic Journal
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  Data: Patient and family experience with transthyretin amyloid cardiomyopathy (ATTR-CM) and polyneuropathy (ATTR-PN) amyloidosis: results of two focus groups.
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  Data: <searchLink fieldCode="AU" term="%22Rintell+D%22">Rintell D</searchLink>; BridgeBio, Palo Alto, CA, USA. dr@bridgebio.com.<br /><searchLink fieldCode="AU" term="%22Heath+D%22">Heath D</searchLink>; Amyloidosis Research Consortium, Newton, MA, USA.<br /><searchLink fieldCode="AU" term="%22Braga+Mendendez+F%22">Braga Mendendez F</searchLink>; Alianza Argentina de Pacientes, Buenos Aires, Argentina.<br /><searchLink fieldCode="AU" term="%22Cross+E%22">Cross E</searchLink>; Cross Associates, Woodland Park, NJ, USA.<br /><searchLink fieldCode="AU" term="%22Cross+T%22">Cross T</searchLink>; Cross Associates, Woodland Park, NJ, USA.<br /><searchLink fieldCode="AU" term="%22Knobel+V%22">Knobel V</searchLink>; Eidos Therapeutics, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Gagnon+B%22">Gagnon B</searchLink>; Eidos Therapeutics, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Turtle+C%22">Turtle C</searchLink>; Eidos Therapeutics, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Cohen+A%22">Cohen A</searchLink>; Eidos Therapeutics, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Kalmykov+E%22">Kalmykov E</searchLink>; Eidos Therapeutics, San Francisco, CA, USA.<br /><searchLink fieldCode="AU" term="%22Fox+J%22">Fox J</searchLink>; Eidos Therapeutics, San Francisco, CA, USA.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2021 Feb 08; Vol. 16 (1), pp. 70. <i>Date of Electronic Publication: </i>2021 Feb 08.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1186/s13023-021-01706-7
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      – TitleFull: Patient and family experience with transthyretin amyloid cardiomyopathy (ATTR-CM) and polyneuropathy (ATTR-PN) amyloidosis: results of two focus groups.
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              Text: 2021 Feb 08
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