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A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc.

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Title: A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc.
Authors: Saketkoo LA; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, USA; Tulane University School of Medicine, New Orleans, USA; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, USA; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, USA. Electronic address: lsaketk@tulane.edu., Frech T; Vanderbilt University Medical Center, Nashville, TN, USA., Varjú C; Department of Rheumatology and Immunology, Medical School, University of Pécs, Pécs, Hungary., Domsic R; University of Pittsburgh, Pittsburgh, PA, USA., Farrell J; Albany College of Pharmacy and Health Sciences, Albany, NY, USA; Steffens Scleroderma Foundation, Albany, NY, USA., Gordon JK; Department of Rheumatology at Hospital for Special Surgery, New York, NY, USA., Mihai C; Department of Rheumatology, University Hospital Zurich, University of Zurich, Zurich, Switzerland; Department of Internal Medicine and Rheumatology, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania., Sandorfi N; Perelman School of Medicine, Philadelphia, PA, USA., Shapiro L; Steffens Scleroderma Foundation, Albany, NY, USA; Division of Rheumatology, Albany Medical Center, Albany, NY, USA., Poole J; Occupational Therapy Graduate Program, University of New Mexico, Albuquerque, NM, USA., Volkmann ER; University of California, David Geffen School of Medicine, UCLA Scleroderma Program and UCLA CTD-ILD Program, Division of Rheumatology, Department of Medicine, Los Angeles, CA, USA., Lammi M; Ochsner Medical Center, New Orleans, LA, USA., McAnally K; Norton Thoracic Institute, St. Joseph's Hospital and Medical Centre, Phoenix, AZ, USA., Alexanderson H; Function Allied Health Professionals, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University Hospital, Stockholm, Sweden; Department of Medicin, Solna, Karolinska Institutet, Stockholm, Sweden., Pettersson H; Function Allied Health Professionals, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University Hospital, Stockholm, Sweden; Department of Medicin, Solna, Karolinska Institutet, Stockholm, Sweden., Hant F; Division of Rheumatology, Medical University of South Caroline, SC, USA., Kuwana M; Department of Allergy and Rheumatology, Nippon Medical School Graduate School of Medicine, Tokyo, Japan., Shah AA; Department of Medicine, Johns Hopkins University, Baltimore, MD, USA., Smith V; Department of Internal Medicine, Ghent University, and Department of Rheumatology, Ghent University Hospital, Ghent, Belgium., Hsu V; Rutgers- RWJ Scleroderma Program, New Brunswick, NJ, USA., Kowal-Bielecka O; Department of Rheumatology and Internal Medicine, Medical University of Bialystok, Bialystok, Poland., Assassi S; Rheumatology, University of Texas Health Science Center at Houston, Houston, TX, USA., Cutolo M; Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, University of Genova, IRCCS Polyclinic San Martino Hospital, Genova, Italy., Kayser C; Escola Paulista de Medicina, Federal University of São Paulo (UNIFESP) São Paulo, SP, Brazil., Shanmugam VK; Department of Rheumatology, George Washington University, School of Medicine and Health Sciences, Washington, DC, USA., Vonk MC; Department of the rheumatic diseases, Radboud University Medical Center, Nijmegen, the Netherlands., Fligelstone K; Patient Research Partner, Scleroderma & Raynaud Society UK (SRUK), London, UK; Royal Free Hospital, London, UK., Baldwin N; Patient Research Partner, Scleroderma Foundation, Chicago, IL, USA., Connolly K; Scleroderma Foundation, Danvers, MA, USA., Ronnow A; Federation of European Scleroderma Associations, Copenhagen, Denmark; Federation of European Scleroderma Associations, Budapest, Hungary; Federation of European Scleroderma Associations, London, UK., Toth B; Federation of European Scleroderma Associations, Copenhagen, Denmark; Federation of European Scleroderma Associations, Budapest, Hungary; Federation of European Scleroderma Associations, London, UK., Suave M; Scleroderma Canada, Canada., Farrington S; Patient Research Partner, Scleroderma & Raynaud Society UK (SRUK), London, UK; Federation of European Scleroderma Associations, Copenhagen, Denmark; Federation of European Scleroderma Associations, Budapest, Hungary; Federation of European Scleroderma Associations, London, UK., Bernstein EJ; Columbia University/New York-Presbyterian Scleroderma Program, Division of Rheumatology, Department of Medicine, Columbia University College of Physicians and Surgeons, New York, NY, USA., Crofford LJ; Vanderbilt University Medical Center, Nashville, TN, USA., Czirják L; Department of Rheumatology and Immunology, Medical School, University of Pécs, Pécs, Hungary., Jensen K; Tulane University School of Medicine, New Orleans, USA; Oregon Health and Science University, Portland, OR, USA., Hinchclif M; Yale School of Medicine, Department of Internal Medicine, Section of Rheumatology, Allergy & Immunology, USA., Hudson M; Division of heumatology and Department of Medicine, Jewish General Hospital and McGill University, Montreal, QC, Canada., Lammi MR; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, USA; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, USA; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, USA., Mansour J; Tulane University School of Medicine, New Orleans, USA., Morgan ND; Department of Medicine, Johns Hopkins University, Baltimore, MD, USA., Mendoza F; Rheumatology Division, Department of Medicine, Thomas Jefferson University, Philadelphia, PA, USA., Nikpour M; Jefferson Institute of Molecular Medicine and Scleroderma Center, Thomas Jefferson University, Philadelphia, PA, USA., Pauling J; University of Melbourne, Melbourne at St. Vincent's Hospital Melbourne, Victoria, Australia., Riemekasten G; Royal National Hospital for Rheumatic Diseases, Bath, UK; University of Lübeck, University Clinic of Schleswig-Holstein, Dept Rheumatology and Clinical Immunology, Lübeck, Germany., Russell AM; University of Exeter, College of Medicine and Health, Exeter, UK., Scholand MB; University of Utah, Division of Pulmonary Medicine, Pulmonary Fibrosis Center, Salt Lake City, UT, USA., Seigart E; Department of Rheumatology and Clinical Immunology Charité - Universitätsmedizin Berlin and Berlin Institute of Health, Berlin, Germany., Rodriguez-Reyna TS; Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico., Hummers L; Department of Medicine, Johns Hopkins University, Baltimore, MD, USA., Walker U; Dept. of Rheumatology, Basel University Hospital, Basel, Switzerland., Steen V; Division of Rheumatology, Department of Medicine, Georgetown University, Washington, DC, USA.
Source: Best practice & research. Clinical rheumatology [Best Pract Res Clin Rheumatol] 2021 Sep; Vol. 35 (3), pp. 101707. Date of Electronic Publication: 2021 Sep 15.
Publication Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Review
Journal Info: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101121149 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1532-1770 (Electronic) Linking ISSN: 15216942 NLM ISO Abbreviation: Best Pract Res Clin Rheumatol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: A comprehensive framework for navigating patient care in systemic sclerosis: A global response to the need for improving the practice of diagnostic and preventive strategies in SSc.
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  Data: <searchLink fieldCode="AU" term="%22Saketkoo+LA%22">Saketkoo LA</searchLink>; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, USA; Tulane University School of Medicine, New Orleans, USA; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, USA; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, USA. 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            NameFull: Steen V
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 09
              Text: 2021 Sep
              Type: published
              Y: 2021
          Identifiers:
            – Type: issn-electronic
              Value: 1532-1770
          Numbering:
            – Type: volume
              Value: 35
            – Type: issue
              Value: 3
          Titles:
            – TitleFull: Best practice & research. Clinical rheumatology
              Type: main
ResultId 1