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Historical Patterns of Diagnosis, Treatments, and Outcome of Epilepsy Associated With Tuberous Sclerosis Complex: Results From TOSCA Registry.

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Title: Historical Patterns of Diagnosis, Treatments, and Outcome of Epilepsy Associated With Tuberous Sclerosis Complex: Results From TOSCA Registry.
Authors: Nabbout R; Department of Pediatric Neurology, Reference Centre for Rare Epilepsies, Member of EPICARE Network, Necker Enfants Malades Hospital, Université de Paris, Institut Imagine (Inserm U1163), Paris, France., Belousova E; Department of Pediatrics, Research and Clinical Institute of Pediatrics, Pirogov Russian National Research Medical University, Moscow, Russia., Benedik MP; Department of Pediatric Neurology, SPS Paediatric Clinic, Ljubljana, Slovenia., Carter T; Tuberous Sclerosis Association, Nottingham, United Kingdom., Cottin V; Department of Respiratory Medicine, Hôpital Louis Pradel, Claude Bernard University Lyon 1, Lyon, France., Curatolo P; Department of Neurology, Tor Vergata University Hospital, Rome, Italy., Dahlin M; Neuropediatric Unit, Karolinska University Hospital, Stockholm, Sweden., D'Amato L; Novartis Farma S.p.A., Origgio, Italy., Beaure d'Augères G; Tuberous Sclerosis Association of Bourneville, Gradignan, France., de Vries PJ; Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa., Ferreira JC; Neurologia Pediátrica, Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal., Feucht M; Department of Pediatrics and Adolescent Medicine, Medical University of Vienna (Affiliated Partner of the ERN EpiCARE), Vienna, Austria., Fladrowski C; Tuberous Sclerosis Association ONLUS, Milan, Italy.; European Tuberous Sclerosis Complex Association, Dattein, Germany., Hertzberg C; Zentrum für Sozialpädiatrie und Neuropädiatrie (DBZ), Vivantes Hospital Neukoelln, Berlin, Germany., Jozwiak S; Department of Child Neurology, Medical University of Warsaw, Warsaw, Poland.; Department of Neurology and Epileptology, The Children's Memorial Health Institute, Warsaw, Poland., Lawson JA; Department of Neurology, The Tuberous Sclerosis Multidisciplinary Management Clinic, Sydney Children's Hospital, Randwick, NSW, Australia., Macaya A; Department of Pediatric Neurology, Vall d'Hebron University Hospital, Barcelona, Spain., Marques R; Novartis Farma S.p.A., Origgio, Italy.; Institute of Biomedicine, University of Leon, León, Spain., O'Callaghan F; Paediatric Neuroscience, Institute of Child Health, University College London, London, United Kingdom., Qin J; Department of Pediatrics, Peking University People's Hospital, Beijing, China., Sauter M; Klinkverbund Allgäu gGmbH Hospital, Kempten, Germany., Shah S; Novartis Healthcare Pvt. Ltd., Hyderabad, India., Takahashi Y; National Epilepsy Center, National Hospital Organization (NHO), Shizuoka Institute of Epilepsy and Neurological Disorders, Shizuoka, Japan., Touraine R; Department of Genetics, Centre Hospitalier Universitaire (CHU)-Hôpital Nord, Saint Etienne, France., Youroukos S; First Department of Paediatrics, Athens University Medical School, St. Sophia Children's Hospital, Athens, Greece., Zonnenberg B; Department of Internal Medicine, University Medical Center, Utrecht, Netherlands., Jansen AC; Pediatric Neurology Unit, Department of Pediatrics, UZ Brussel Vrije Universiteit Brussel (VUB), Brussels, Belgium., Kingswood JC; Cardiology Clinical Academic Group, Molecular and Clinical Sciences Research Centre, St Georges University of London, London, United Kingdom.
Source: Frontiers in neurology [Front Neurol] 2021 Sep 08; Vol. 12, pp. 697467. Date of Electronic Publication: 2021 Sep 08 (Print Publication: 2021).
Publication Type: Journal Article
Journal Info: Publisher: Frontiers Research Foundation Country of Publication: Switzerland NLM ID: 101546899 Publication Model: eCollection Cited Medium: Print ISSN: 1664-2295 (Print) Linking ISSN: 16642295 NLM ISO Abbreviation: Front Neurol Subsets: PubMed not MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Nabbout+R%22">Nabbout R</searchLink>; Department of Pediatric Neurology, Reference Centre for Rare Epilepsies, Member of EPICARE Network, Necker Enfants Malades Hospital, Université de Paris, Institut Imagine (Inserm U1163), Paris, France.<br /><searchLink fieldCode="AU" term="%22Belousova+E%22">Belousova E</searchLink>; Department of Pediatrics, Research and Clinical Institute of Pediatrics, Pirogov Russian National Research Medical University, Moscow, Russia.<br /><searchLink fieldCode="AU" term="%22Benedik+MP%22">Benedik MP</searchLink>; Department of Pediatric Neurology, SPS Paediatric Clinic, Ljubljana, Slovenia.<br /><searchLink fieldCode="AU" term="%22Carter+T%22">Carter T</searchLink>; Tuberous Sclerosis Association, Nottingham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Cottin+V%22">Cottin V</searchLink>; Department of Respiratory Medicine, Hôpital Louis Pradel, Claude Bernard University Lyon 1, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Curatolo+P%22">Curatolo P</searchLink>; Department of Neurology, Tor Vergata University Hospital, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Dahlin+M%22">Dahlin M</searchLink>; Neuropediatric Unit, Karolinska University Hospital, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22D'Amato+L%22">D'Amato L</searchLink>; Novartis Farma S.p.A., Origgio, Italy.<br /><searchLink fieldCode="AU" term="%22Beaure+d'Augères+G%22">Beaure d'Augères G</searchLink>; Tuberous Sclerosis Association of Bourneville, Gradignan, France.<br /><searchLink fieldCode="AU" term="%22de+Vries+PJ%22">de Vries PJ</searchLink>; Division of Child and Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.<br /><searchLink fieldCode="AU" term="%22Ferreira+JC%22">Ferreira JC</searchLink>; Neurologia Pediátrica, Centro Hospitalar Lisboa Ocidental, Lisbon, Portugal.<br /><searchLink fieldCode="AU" term="%22Feucht+M%22">Feucht M</searchLink>; Department of Pediatrics and Adolescent Medicine, Medical University of Vienna (Affiliated Partner of the ERN EpiCARE), Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Fladrowski+C%22">Fladrowski C</searchLink>; Tuberous Sclerosis Association ONLUS, Milan, Italy.; European Tuberous Sclerosis Complex Association, Dattein, Germany.<br /><searchLink fieldCode="AU" term="%22Hertzberg+C%22">Hertzberg C</searchLink>; Zentrum für Sozialpädiatrie und Neuropädiatrie (DBZ), Vivantes Hospital Neukoelln, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Jozwiak+S%22">Jozwiak S</searchLink>; Department of Child Neurology, Medical University of Warsaw, Warsaw, Poland.; Department of Neurology and Epileptology, The Children's Memorial Health Institute, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Lawson+JA%22">Lawson JA</searchLink>; Department of Neurology, The Tuberous Sclerosis Multidisciplinary Management Clinic, Sydney Children's Hospital, Randwick, NSW, Australia.<br /><searchLink fieldCode="AU" term="%22Macaya+A%22">Macaya A</searchLink>; Department of Pediatric Neurology, Vall d'Hebron University Hospital, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Marques+R%22">Marques R</searchLink>; Novartis Farma S.p.A., Origgio, Italy.; Institute of Biomedicine, University of Leon, León, Spain.<br /><searchLink fieldCode="AU" term="%22O'Callaghan+F%22">O'Callaghan F</searchLink>; Paediatric Neuroscience, Institute of Child Health, University College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Qin+J%22">Qin J</searchLink>; Department of Pediatrics, Peking University People's Hospital, Beijing, China.<br /><searchLink fieldCode="AU" term="%22Sauter+M%22">Sauter M</searchLink>; Klinkverbund Allgäu gGmbH Hospital, Kempten, Germany.<br /><searchLink fieldCode="AU" term="%22Shah+S%22">Shah S</searchLink>; Novartis Healthcare Pvt. Ltd., Hyderabad, India.<br /><searchLink fieldCode="AU" term="%22Takahashi+Y%22">Takahashi Y</searchLink>; National Epilepsy Center, National Hospital Organization (NHO), Shizuoka Institute of Epilepsy and Neurological Disorders, Shizuoka, Japan.<br /><searchLink fieldCode="AU" term="%22Touraine+R%22">Touraine R</searchLink>; Department of Genetics, Centre Hospitalier Universitaire (CHU)-Hôpital Nord, Saint Etienne, France.<br /><searchLink fieldCode="AU" term="%22Youroukos+S%22">Youroukos S</searchLink>; First Department of Paediatrics, Athens University Medical School, St. Sophia Children's Hospital, Athens, Greece.<br /><searchLink fieldCode="AU" term="%22Zonnenberg+B%22">Zonnenberg B</searchLink>; Department of Internal Medicine, University Medical Center, Utrecht, Netherlands.<br /><searchLink fieldCode="AU" term="%22Jansen+AC%22">Jansen AC</searchLink>; Pediatric Neurology Unit, Department of Pediatrics, UZ Brussel Vrije Universiteit Brussel (VUB), Brussels, Belgium.<br /><searchLink fieldCode="AU" term="%22Kingswood+JC%22">Kingswood JC</searchLink>; Cardiology Clinical Academic Group, Molecular and Clinical Sciences Research Centre, St Georges University of London, London, United Kingdom.
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