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A beautiful struggle: Parent-perceived impact of short bowel syndrome on child and family wellbeing.

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Title: A beautiful struggle: Parent-perceived impact of short bowel syndrome on child and family wellbeing.
Authors: Neumann ML; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, 983285 Nebraska Medical Center Omaha, Omaha, NE 68198-3285, USA; Department of Communication Studies, University of Nebraska- Lincoln, Lincoln, NE, USA. Electronic address: marie.neumann@unmc.edu., Allen JY; Department of Psychology, Birmingham-Southern College, Birmingham, AL, USA., Kakani S; Alabama Rare, Huntsville, AL, USA., Ladner A; Department of Epidemiology, RTI Health Solutions, Research Triangle Park, NC, USA., Rauen MH; The Global Gastroschisis Foundation, Raleigh, NC, USA., Weaver MS; Department of Pediatrics, Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, NE, USA; National Center for Ethics in Healthcare, Washington DC, USA., Mercer DF; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, 983285 Nebraska Medical Center Omaha, Omaha, NE 68198-3285, USA.
Source: Journal of pediatric surgery [J Pediatr Surg] 2022 Sep; Vol. 57 (9), pp. 149-157. Date of Electronic Publication: 2021 Oct 01.
Publication Type: Journal Article
Journal Info: Publisher: Saunders Country of Publication: United States NLM ID: 0052631 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1531-5037 (Electronic) Linking ISSN: 00223468 NLM ISO Abbreviation: J Pediatr Surg Subsets: MEDLINE
Database: MEDLINE Ultimate
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PubType: Academic Journal
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  Data: A beautiful struggle: Parent-perceived impact of short bowel syndrome on child and family wellbeing.
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  Data: <searchLink fieldCode="AU" term="%22Neumann+ML%22">Neumann ML</searchLink>; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, 983285 Nebraska Medical Center Omaha, Omaha, NE 68198-3285, USA; Department of Communication Studies, University of Nebraska- Lincoln, Lincoln, NE, USA. Electronic address: marie.neumann@unmc.edu.<br /><searchLink fieldCode="AU" term="%22Allen+JY%22">Allen JY</searchLink>; Department of Psychology, Birmingham-Southern College, Birmingham, AL, USA.<br /><searchLink fieldCode="AU" term="%22Kakani+S%22">Kakani S</searchLink>; Alabama Rare, Huntsville, AL, USA.<br /><searchLink fieldCode="AU" term="%22Ladner+A%22">Ladner A</searchLink>; Department of Epidemiology, RTI Health Solutions, Research Triangle Park, NC, USA.<br /><searchLink fieldCode="AU" term="%22Rauen+MH%22">Rauen MH</searchLink>; The Global Gastroschisis Foundation, Raleigh, NC, USA.<br /><searchLink fieldCode="AU" term="%22Weaver+MS%22">Weaver MS</searchLink>; Department of Pediatrics, Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, NE, USA; National Center for Ethics in Healthcare, Washington DC, USA.<br /><searchLink fieldCode="AU" term="%22Mercer+DF%22">Mercer DF</searchLink>; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, 983285 Nebraska Medical Center Omaha, Omaha, NE 68198-3285, USA.
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  Data: <searchLink fieldCode="JN" term="%220052631%22">Journal of pediatric surgery</searchLink> [J Pediatr Surg] 2022 Sep; Vol. 57 (9), pp. 149-157. <i>Date of Electronic Publication: </i>2021 Oct 01.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Saunders%22">Saunders </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>0052631 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1531-5037 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2200223468%22">00223468 </searchLink><i>NLM ISO Abbreviation: </i>J Pediatr Surg <i>Subsets: </i>MEDLINE
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      – Type: doi
        Value: 10.1016/j.jpedsurg.2021.09.039
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        Text: English
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              Text: 2022 Sep
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              Y: 2022
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