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Sarcoidosis Illuminations on Living During COVID-19: Patient Experiences of Diagnosis, Management, and Survival Before and During the Pandemic.

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Title: Sarcoidosis Illuminations on Living During COVID-19: Patient Experiences of Diagnosis, Management, and Survival Before and During the Pandemic.
Authors: Saketkoo LA; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA.; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, LA, USA.; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, LA, USA.; Tulane University School of Medicine, New Orleans, LA, USA., Jensen K; Tulane University School of Medicine, New Orleans, LA, USA.; Oregon Health and Science University School of Medicine, Portland, OR, USA., Nikoletou D; Kingston University, St. George's University of London, London, UK., Newton JJ; Sarcoidosis UK, London, UK., Rivera FJ; Foundation for Sarcoidosis Research, Chicago, IL, USA.; National Sarcoidosis Support Group, Long Island, NY, USA., Howie M; Sarcoidosis UK, London, UK.; Burdwood Surgery, Patient Participation Group Chair, Berkshire, UK.; CGI UK, Space Defense & Intelligence (Cyber Security Operations) - Senior Security Consultant & Mental Health First Aider, London, UK., Reese RK; Foundation for Sarcoidosis Research, Chicago, IL, USA.; National Sarcoidosis Support Group, Long Island, NY, USA.; Sarcoidosis Awareness Foundation of Louisiana, Baton Rouge, LA, USA., Goodman M; New Orleans Sarcoidosis Support Group, New Orleans, LA, USA., Hart PB; Sarcoidosis for Beginners National Support Group, New York, NY, USA.; Holistic Approach to Sarcoidosis National Support Group, Certified Health & Wellness Coach, International Association of Professionals, New York, NY, USA., Bembry W; Tulane University School of Medicine, New Orleans, LA, USA., Russell A; AR Transcripts and Design, Holmfirth, UK., Lian I; Tulane University School of Medicine, New Orleans, LA, USA., Lammi MR; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA.; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, LA, USA.; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, LA, USA., Scholand MB; University of Utah, Pulmonary Fibrosis Center, Salt Lake City, UT, USA., Russell AM; University of Exeter, College of Medicine and Health, Exeter, UK.; Royal Devon and Exeter NHS Foundation Trust, Devon, UK.
Source: Journal of patient experience [J Patient Exp] 2022 Mar 24; Vol. 9, pp. 23743735221075556. Date of Electronic Publication: 2022 Mar 24 (Print Publication: 2022).
Publication Type: Journal Article
Journal Info: Publisher: Sage Country of Publication: United States NLM ID: 101688338 Publication Model: eCollection Cited Medium: Print ISSN: 2374-3735 (Print) Linking ISSN: 23743735 NLM ISO Abbreviation: J Patient Exp Subsets: PubMed not MEDLINE
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  Data: Sarcoidosis Illuminations on Living During COVID-19: Patient Experiences of Diagnosis, Management, and Survival Before and During the Pandemic.
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  Data: <searchLink fieldCode="AU" term="%22Saketkoo+LA%22">Saketkoo LA</searchLink>; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA.; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, LA, USA.; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, LA, USA.; Tulane University School of Medicine, New Orleans, LA, USA.<br /><searchLink fieldCode="AU" term="%22Jensen+K%22">Jensen K</searchLink>; Tulane University School of Medicine, New Orleans, LA, USA.; Oregon Health and Science University School of Medicine, Portland, OR, USA.<br /><searchLink fieldCode="AU" term="%22Nikoletou+D%22">Nikoletou D</searchLink>; Kingston University, St. George's University of London, London, UK.<br /><searchLink fieldCode="AU" term="%22Newton+JJ%22">Newton JJ</searchLink>; Sarcoidosis UK, London, UK.<br /><searchLink fieldCode="AU" term="%22Rivera+FJ%22">Rivera FJ</searchLink>; Foundation for Sarcoidosis Research, Chicago, IL, USA.; National Sarcoidosis Support Group, Long Island, NY, USA.<br /><searchLink fieldCode="AU" term="%22Howie+M%22">Howie M</searchLink>; Sarcoidosis UK, London, UK.; Burdwood Surgery, Patient Participation Group Chair, Berkshire, UK.; CGI UK, Space Defense & Intelligence (Cyber Security Operations) - Senior Security Consultant & Mental Health First Aider, London, UK.<br /><searchLink fieldCode="AU" term="%22Reese+RK%22">Reese RK</searchLink>; Foundation for Sarcoidosis Research, Chicago, IL, USA.; National Sarcoidosis Support Group, Long Island, NY, USA.; Sarcoidosis Awareness Foundation of Louisiana, Baton Rouge, LA, USA.<br /><searchLink fieldCode="AU" term="%22Goodman+M%22">Goodman M</searchLink>; New Orleans Sarcoidosis Support Group, New Orleans, LA, USA.<br /><searchLink fieldCode="AU" term="%22Hart+PB%22">Hart PB</searchLink>; Sarcoidosis for Beginners National Support Group, New York, NY, USA.; Holistic Approach to Sarcoidosis National Support Group, Certified Health & Wellness Coach, International Association of Professionals, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Bembry+W%22">Bembry W</searchLink>; Tulane University School of Medicine, New Orleans, LA, USA.<br /><searchLink fieldCode="AU" term="%22Russell+A%22">Russell A</searchLink>; AR Transcripts and Design, Holmfirth, UK.<br /><searchLink fieldCode="AU" term="%22Lian+I%22">Lian I</searchLink>; Tulane University School of Medicine, New Orleans, LA, USA.<br /><searchLink fieldCode="AU" term="%22Lammi+MR%22">Lammi MR</searchLink>; New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center, New Orleans, LA, USA.; University Medical Center - Comprehensive Pulmonary Hypertension Center and Interstitial Lung Disease Clinic Programs, New Orleans, LA, USA.; Louisiana State University School of Medicine, Section of Pulmonary Medicine, New Orleans, LA, USA.<br /><searchLink fieldCode="AU" term="%22Scholand+MB%22">Scholand MB</searchLink>; University of Utah, Pulmonary Fibrosis Center, Salt Lake City, UT, USA.<br /><searchLink fieldCode="AU" term="%22Russell+AM%22">Russell AM</searchLink>; University of Exeter, College of Medicine and Health, Exeter, UK.; Royal Devon and Exeter NHS Foundation Trust, Devon, UK.
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