A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey. - Boyce D; Robinson M; Cedarbaum JM; Shank LM; McDermott CJ; van Eijk RPA (Amyotrophic lateral sclerosis & frontotemporal degeneration, 2023)