Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic.

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Title: Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic.
Authors: Smyth D; School of Medicine, Dentistry and Nursing, Office for Rare Conditions, University of Glasgow, Glasgow, United Kingdom., Hytiris M; School of Medicine, Dentistry and Nursing, Office for Rare Conditions, University of Glasgow, Glasgow, United Kingdom., Kelday C; Brittle Bone Society, Dundee, United Kingdom., McDonnell C; Department of Pediatric Endocrinology and Diabetes, Children's Health Ireland, Dublin, Ireland., Burren C; Department of Pediatric Endocrinology and Diabetes, Bristol Royal Hospital for Children, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom., Gardner A; Orthopedic Department, Royal Orthopedic Hospital, NHS Foundation Trust, Birmingham, United Kingdom., Mills L; Pediatric Department, Bristol Royal Hospital for Children, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom., Parekh S; Department of Pediatric Dentistry, UCL Eastman Dental Institute, University College London, London, United Kingdom., Semler O; Department of Pediatrics, University Hospital Cologne, University of Cologne, Cologne, Germany., Stewart A; Brittle Bone Society, Dundee, United Kingdom., Westerheim I; Osteogenesis Imperfecta Federation Europe, Oslo, Norway., Javaid MK; Nuffield Department of Orthopedics, Rheumatology and Musculoskeletal Sciences, Nuffield Orthopedic Center, University of Oxford, Oxford, United Kingdom., Osborne P; Brittle Bone Society, Dundee, United Kingdom., Ahmed SF; School of Medicine, Dentistry and Nursing, Office for Rare Conditions, University of Glasgow, Glasgow, United Kingdom.
Source: Frontiers in public health [Front Public Health] 2023 Jan 04; Vol. 10, pp. 951569. Date of Electronic Publication: 2023 Jan 04 (Print Publication: 2022).
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Frontiers Editorial Office Country of Publication: Switzerland NLM ID: 101616579 Publication Model: eCollection Cited Medium: Internet ISSN: 2296-2565 (Electronic) Linking ISSN: 22962565 NLM ISO Abbreviation: Front Public Health Subsets: MEDLINE
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  Data: Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic.
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  Data: <searchLink fieldCode="AU" term="%22Smyth+D%22">Smyth D</searchLink>; School of Medicine, Dentistry and Nursing, Office for Rare Conditions, University of Glasgow, Glasgow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Hytiris+M%22">Hytiris M</searchLink>; School of Medicine, Dentistry and Nursing, Office for Rare Conditions, University of Glasgow, Glasgow, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Kelday+C%22">Kelday C</searchLink>; Brittle Bone Society, Dundee, United Kingdom.<br /><searchLink fieldCode="AU" term="%22McDonnell+C%22">McDonnell C</searchLink>; Department of Pediatric Endocrinology and Diabetes, Children's Health Ireland, Dublin, Ireland.<br /><searchLink fieldCode="AU" term="%22Burren+C%22">Burren C</searchLink>; Department of Pediatric Endocrinology and Diabetes, Bristol Royal Hospital for Children, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Gardner+A%22">Gardner A</searchLink>; Orthopedic Department, Royal Orthopedic Hospital, NHS Foundation Trust, Birmingham, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Mills+L%22">Mills L</searchLink>; Pediatric Department, Bristol Royal Hospital for Children, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Parekh+S%22">Parekh S</searchLink>; Department of Pediatric Dentistry, UCL Eastman Dental Institute, University College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Semler+O%22">Semler O</searchLink>; Department of Pediatrics, University Hospital Cologne, University of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Stewart+A%22">Stewart A</searchLink>; Brittle Bone Society, Dundee, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Westerheim+I%22">Westerheim I</searchLink>; Osteogenesis Imperfecta Federation Europe, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Javaid+MK%22">Javaid MK</searchLink>; Nuffield Department of Orthopedics, Rheumatology and Musculoskeletal Sciences, Nuffield Orthopedic Center, University of Oxford, Oxford, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Osborne+P%22">Osborne P</searchLink>; Brittle Bone Society, Dundee, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Ahmed+SF%22">Ahmed SF</searchLink>; School of Medicine, Dentistry and Nursing, Office for Rare Conditions, University of Glasgow, Glasgow, United Kingdom.
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