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An EU task force to assess the burden of rare diseases.

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Title: An EU task force to assess the burden of rare diseases.
Authors: Kolkhir P; Institute of Allergology, Charité-Universitätsmedizin Berlin, Berlin, Germany. pavel.kolkhir@charite.de.; Allergology and Immunology, Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Berlin, Germany. pavel.kolkhir@charite.de., Grad DA; Department of Public Health, Babeş-Bolyai University, Cluj-Napoca, Romania., Charalampous P; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands., Oliveira CC; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands., Mechili EA; Department of Healthcare, Faculty of Health, University of Vlora, Vlora, Albania.; School of Medicine, University of Crete, Heraklion, Greece., Unim B; Department of Cardiovascular, Endocrine-Metabolic Diseases and Aging, Istituto Superiore di Sanità, Rome, Italy., Pearce DA; Pediatrics & Rare Diseases Group, Sanford Research, Sioux Falls, SD, USA.; Sanford Health, Sioux Falls, SD, USA.; Sanford School of Medicine, University of South Dakota, Sioux Falls, SD, USA., Maurer M; Institute of Allergology, Charité-Universitätsmedizin Berlin, Berlin, Germany.; Allergology and Immunology, Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Berlin, Germany., Devleesschauwer B; Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium.; Department of Translational Physiology, Infectiology and Public Health, Ghent University, Merelbeke, Belgium., Haagsma J; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands.
Source: Nature medicine [Nat Med] 2023 Mar; Vol. 29 (3), pp. 516-517.
Publication Type: Letter
Journal Info: Publisher: Nature Publishing Company Country of Publication: United States NLM ID: 9502015 Publication Model: Print Cited Medium: Internet ISSN: 1546-170X (Electronic) Linking ISSN: 10788956 NLM ISO Abbreviation: Nat Med Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Kolkhir+P%22">Kolkhir P</searchLink>; Institute of Allergology, Charité-Universitätsmedizin Berlin, Berlin, Germany. pavel.kolkhir@charite.de.; Allergology and Immunology, Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Berlin, Germany. pavel.kolkhir@charite.de.<br /><searchLink fieldCode="AU" term="%22Grad+DA%22">Grad DA</searchLink>; Department of Public Health, Babeş-Bolyai University, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Charalampous+P%22">Charalampous P</searchLink>; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Oliveira+CC%22">Oliveira CC</searchLink>; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Mechili+EA%22">Mechili EA</searchLink>; Department of Healthcare, Faculty of Health, University of Vlora, Vlora, Albania.; School of Medicine, University of Crete, Heraklion, Greece.<br /><searchLink fieldCode="AU" term="%22Unim+B%22">Unim B</searchLink>; Department of Cardiovascular, Endocrine-Metabolic Diseases and Aging, Istituto Superiore di Sanità, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Pearce+DA%22">Pearce DA</searchLink>; Pediatrics & Rare Diseases Group, Sanford Research, Sioux Falls, SD, USA.; Sanford Health, Sioux Falls, SD, USA.; Sanford School of Medicine, University of South Dakota, Sioux Falls, SD, USA.<br /><searchLink fieldCode="AU" term="%22Maurer+M%22">Maurer M</searchLink>; Institute of Allergology, Charité-Universitätsmedizin Berlin, Berlin, Germany.; Allergology and Immunology, Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Devleesschauwer+B%22">Devleesschauwer B</searchLink>; Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium.; Department of Translational Physiology, Infectiology and Public Health, Ghent University, Merelbeke, Belgium.<br /><searchLink fieldCode="AU" term="%22Haagsma+J%22">Haagsma J</searchLink>; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, the Netherlands.
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              Text: 2023 Mar
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