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Emerging roles and opportunities for rare disease patient advocacy groups.

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Title: Emerging roles and opportunities for rare disease patient advocacy groups.
Authors: Patterson AM; Department of Genetic Medicine, Johns Hopkins Hospital, Baltimore, MD 21287, USA., O'Boyle M; Coalition of Patient Advocacy Groups, Rare Diseases Clinical Research Network, Arlington, VA, USA., VanNoy GE; Center for Mendelian Genomics and Program in Medical and Population Genetics, Broad Institute of MIT and Harvard, Cambridge, MA, USA., Dies KA; Rosamund Stone Zander Translational Neuroscience Center, Boston Children's Hospital, Boston, MA, USA.
Source: Therapeutic advances in rare disease [Ther Adv Rare Dis] 2023 Apr 24; Vol. 4, pp. 26330040231164425. Date of Electronic Publication: 2023 Apr 24 (Print Publication: 2023).
Publication Type: Journal Article
Journal Info: Publisher: Sage Country of Publication: England NLM ID: 9918557474706676 Publication Model: eCollection Cited Medium: Internet ISSN: 2633-0040 (Electronic) Linking ISSN: 26330040 NLM ISO Abbreviation: Ther Adv Rare Dis Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Patterson+AM%22">Patterson AM</searchLink>; Department of Genetic Medicine, Johns Hopkins Hospital, Baltimore, MD 21287, USA.<br /><searchLink fieldCode="AU" term="%22O'Boyle+M%22">O'Boyle M</searchLink>; Coalition of Patient Advocacy Groups, Rare Diseases Clinical Research Network, Arlington, VA, USA.<br /><searchLink fieldCode="AU" term="%22VanNoy+GE%22">VanNoy GE</searchLink>; Center for Mendelian Genomics and Program in Medical and Population Genetics, Broad Institute of MIT and Harvard, Cambridge, MA, USA.<br /><searchLink fieldCode="AU" term="%22Dies+KA%22">Dies KA</searchLink>; Rosamund Stone Zander Translational Neuroscience Center, Boston Children's Hospital, Boston, MA, USA.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Sage%22">Sage </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9918557474706676 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2633-0040 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2226330040%22">26330040 </searchLink><i>NLM ISO Abbreviation: </i>Ther Adv Rare Dis <i>Subsets: </i>PubMed not MEDLINE
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