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Exploring the impact of pediatric short bowel syndrome on parent well-being using a disease-specific pilot survey.

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Title: Exploring the impact of pediatric short bowel syndrome on parent well-being using a disease-specific pilot survey.
Authors: Neumann ML; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, Nebraska, USA.; Department of Communication Studies, University of Nebraska-Lincoln, Lincoln, Nebraska, USA.; The Gutsy Perspective, Huntsville, Alabama, USA., Allen JY; The Gutsy Perspective, Huntsville, Alabama, USA.; Department of Psychology, Birmingham-Southern College, Birmingham, Alabama, USA., Ladner A; The Gutsy Perspective, Huntsville, Alabama, USA., Kakani S; The Gutsy Perspective, Huntsville, Alabama, USA., Weaver MS; Department of Pediatrics, Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, Nebraska, USA.; National Center for Ethics in Health Care, US Department of Veterans Affairs, Washington, DC, USA., Mercer DF; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, Nebraska, USA.
Source: Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition [Nutr Clin Pract] 2024 Feb; Vol. 39 (1), pp. 154-167. Date of Electronic Publication: 2023 May 28.
Publication Type: Journal Article
Journal Info: Publisher: Wiley Country of Publication: United States NLM ID: 8606733 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1941-2452 (Electronic) Linking ISSN: 08845336 NLM ISO Abbreviation: Nutr Clin Pract Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Neumann+ML%22">Neumann ML</searchLink>; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, Nebraska, USA.; Department of Communication Studies, University of Nebraska-Lincoln, Lincoln, Nebraska, USA.; The Gutsy Perspective, Huntsville, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Allen+JY%22">Allen JY</searchLink>; The Gutsy Perspective, Huntsville, Alabama, USA.; Department of Psychology, Birmingham-Southern College, Birmingham, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Ladner+A%22">Ladner A</searchLink>; The Gutsy Perspective, Huntsville, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Kakani+S%22">Kakani S</searchLink>; The Gutsy Perspective, Huntsville, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Weaver+MS%22">Weaver MS</searchLink>; Department of Pediatrics, Division of Pediatric Palliative Care, Children's Hospital and Medical Center, Omaha, Nebraska, USA.; National Center for Ethics in Health Care, US Department of Veterans Affairs, Washington, DC, USA.<br /><searchLink fieldCode="AU" term="%22Mercer+DF%22">Mercer DF</searchLink>; Department of Surgery, Division of Transplant Surgery, University of Nebraska Medical Center, Omaha, Nebraska, USA.
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        Value: 10.1002/ncp.11008
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              Text: 2024 Feb
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