GOunder/Desmoid Tumor Research Foundation DEsmoid Symptom/Impact Scale (GODDESS©): psychometric properties and clinically meaningful thresholds as assessed in the Phase 3 DeFi randomized controlled clinical trial. - Gounder MM; Atkinson TM; Bell T; Daskalopoulou C; Griffiths P; Martindale M; Smith LM; Lim A (Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023)