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An International Pediatric-Onset Opsoclonus-Myoclonus Ataxia Syndrome Registry and Clinical Research Network: Development, Progress, and Vision.

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Title: An International Pediatric-Onset Opsoclonus-Myoclonus Ataxia Syndrome Registry and Clinical Research Network: Development, Progress, and Vision.
Authors: Kerr LM; Department of Neurology, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts., Ryan ME; Biostatistics and Research Design Center, Institutional Centers for Clinical and Translational Research, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts., Lim M; Guy's and St. Thomas' NHS Foundation Trust, London, UK., Hearn S; Oxford University Hospitals NHS Foundation Trust, Oxford, UK., Klein A; Department of Neurology, Universitäts-Kinderspital beider Basel, Basel, Switzerland., Deiva K; Hôpitaux Universitaires Paris Sud-Bicêtre, Paris, France., Hopkins SE; Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania., Bacchus MK; Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania., Sokol EA; Division of Hematology, Oncology, and Stem Cell Transplantation, Ann & Robert H. Lurie Children's Hospital of Chicago, Northwestern University Feinberg School of Medicine, Chicago, Illinois., Waanders AJ; Division of Hematology, Oncology, and Stem Cell Transplantation, Ann & Robert H. Lurie Children's Hospital of Chicago, Northwestern University Feinberg School of Medicine, Chicago, Illinois., Mitchell WG; Division of Neurology, Children's Hospital Los Angeles, Keck School of Medicine of University of Southern California, Los Angeles, California., Khakoo Y; Department of Pediatrics, Memorial Sloan Kettering Cancer Center, New York, New York; Department of Pediatrics, Weill Cornell Medical College, New York, New York., Lotze TE; Department of Neurology, Texas Children's Hospital, Houston, Texas., Zhang B; Department of Neurology, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts; Biostatistics and Research Design Center, Institutional Centers for Clinical and Translational Research, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts. Electronic address: bo.zhang@childrens.harvard.edu., Gorman MP; Department of Neurology, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts. Electronic address: mark.gorman@childrens.harvard.edu.
Source: Pediatric neurology [Pediatr Neurol] 2023 Nov; Vol. 148, pp. 145-147. Date of Electronic Publication: 2023 May 16.
Publication Type: Letter; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Elsevier Science Publishing Country of Publication: United States NLM ID: 8508183 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5150 (Electronic) Linking ISSN: 08878994 NLM ISO Abbreviation: Pediatr Neurol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: An International Pediatric-Onset Opsoclonus-Myoclonus Ataxia Syndrome Registry and Clinical Research Network: Development, Progress, and Vision.
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        Text: English
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              Text: 2023 Nov
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