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A qualitative evaluation of patient and parent experiences with an undiagnosed diseases program.

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Title: A qualitative evaluation of patient and parent experiences with an undiagnosed diseases program.
Authors: Siebold D; University of Alabama (UAB), School of Health Professions, Birmingham, Alabama, USA., Denton J; University of Alabama (UAB), School of Health Professions, Birmingham, Alabama, USA., Hurst ACE; UAB Department of Genetics, Birmingham, Alabama, USA., Moss I; UAB Department of Genetics, Birmingham, Alabama, USA., Korf B; UAB Department of Genetics, Birmingham, Alabama, USA.
Source: American journal of medical genetics. Part A [Am J Med Genet A] 2024 Feb; Vol. 194 (2), pp. 131-140. Date of Electronic Publication: 2023 Sep 26.
Publication Type: Journal Article
Journal Info: Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 101235741 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1552-4833 (Electronic) Linking ISSN: 15524825 NLM ISO Abbreviation: Am J Med Genet A Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Siebold+D%22">Siebold D</searchLink>; University of Alabama (UAB), School of Health Professions, Birmingham, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Denton+J%22">Denton J</searchLink>; University of Alabama (UAB), School of Health Professions, Birmingham, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Hurst+ACE%22">Hurst ACE</searchLink>; UAB Department of Genetics, Birmingham, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Moss+I%22">Moss I</searchLink>; UAB Department of Genetics, Birmingham, Alabama, USA.<br /><searchLink fieldCode="AU" term="%22Korf+B%22">Korf B</searchLink>; UAB Department of Genetics, Birmingham, Alabama, USA.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Wiley-Blackwell%22">Wiley-Blackwell </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101235741 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1552-4833 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215524825%22">15524825 </searchLink><i>NLM ISO Abbreviation: </i>Am J Med Genet A <i>Subsets: </i>MEDLINE
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        Value: 10.1002/ajmg.a.63417
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        Text: English
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      – TitleFull: A qualitative evaluation of patient and parent experiences with an undiagnosed diseases program.
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              Text: 2024 Feb
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