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Ethical and coordinative challenges in setting up a national cohort study during the COVID-19 pandemic in Germany.

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Title: Ethical and coordinative challenges in setting up a national cohort study during the COVID-19 pandemic in Germany.
Authors: Tilch K; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany. tilch.katharina@gmail.com., Pütz SM; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany., Appel K; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany., Kraus M; Helmholtz Center Munich, Institute of Epidemiology, Research Unit Molecular Epidemiology, Munich, Germany.; German Center for Cardiovascular Research (DZHK), Partner Site Munich, Munich, Germany., Lorenz-Depiereux B; Helmholtz Center Munich, Institute of Epidemiology, Research Unit Molecular Epidemiology, Munich, Germany., Pilgram L; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.; Department of Nephrology and Medical Intensive Care, Charité - Universitätsmedizin Berlin, Berlin, Germany., Anton G; Helmholtz Center Munich, Institute of Epidemiology, Research Unit Molecular Epidemiology, Munich, Germany.; German Centre for Infection Research (DZIF), Partner Site Munich, Munich, Germany., Berger S; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Department of Infectious Diseases, Respiratory Medicine and Critical Care, Berlin, Germany., Geisler R; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany., Haas K; Institute of Clinical Epidemiology and Biometry, University of Würzburg, Julius Maximilian University of Würzburg, Würzburg, Germany.; University Hospital Würzburg, Institute for Medical Data Science (ImDS), Josef-Schneider Straße 2, 97080, Würzburg, Germany., Illig T; Hannover Unified Biobank, Hannover Medical School, Hannover, Germany., Krefting D; Department of Medical Informatics, University Medical Center Göttingen, Göttingen, Germany., Lorbeer R; German Center for Cardiovascular Research (DZHK), Partner Site Munich, Munich, Germany.; Deutsches Herzzentrum der Charité, Medical Heart Center of Charité and German Heart Institute Berlin, Institute of Computer-Assisted Cardiovascular Medicine, Berlin, Germany.; Department of Radiology, University Hospital LMU Munich, Munich, Germany., Mitrov L; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany., Muenchhoff M; German Centre for Infection Research (DZIF), Partner Site Munich, Munich, Germany.; Max Von Pettenkofer Institute & GeneCenter, Virology, Faculty of Medicine, Ludwig-Maximilians University, Munich, Germany., Nauck M; Institute of Clinical Chemistry and Laboratory Medicine, University Medicine Greifswald, Greifswald, Germany., Pley C; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Department of Infectious Diseases, Respiratory Medicine and Critical Care, Berlin, Germany., Reese JP; Institute of Clinical Epidemiology and Biometry, University of Würzburg, Julius Maximilian University of Würzburg, Würzburg, Germany.; University Hospital Würzburg, Institute for Medical Data Science (ImDS), Josef-Schneider Straße 2, 97080, Würzburg, Germany., Rieg S; Division of Infectious Diseases, Department of Medicine II, Medical Centre - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany., Scherer M; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany., Stecher M; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany.; German Center for Infection Research (DZIF), Partner-Site Cologne-Bonn, Cologne, Germany., Stellbrink C; Bielefeld University, Medical School and University Medical Center East Westphalia-Lippe, Klinikum Bielefeld, Academic Department of Cardiology and Internal Intensive Care Medicine, Bielefeld, Germany., Valentin H; Trusted Third Party of the University Medicine Greifswald, Ellernholzstr. 1-2, 17475, Greifswald, Germany., Winter C; School of Medicine, Institute of Clinical Chemistry and Pathobiochemistry, Technical University of Munich, Munich, Germany.; TranslaTUM, Center for Translational Cancer Research, Technical University of Munich, Munich, Germany., Witzenrath M; Department of Nephrology and Medical Intensive Care, Charité - Universitätsmedizin Berlin, Berlin, Germany.; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Department of Infectious Diseases, Respiratory Medicine and Critical Care, Berlin, Germany.; German Center for Lung Research (DZL), Berlin, Germany., Vehreschild JJ; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.; German Center for Infection Research (DZIF), Partner-Site Cologne-Bonn, Cologne, Germany.; Department I for Internal Medicine, Faculty of Medicine, University Hospital of Cologne, University of Cologne, Cologne, Germany.
Source: BMC medical ethics [BMC Med Ethics] 2023 Oct 17; Vol. 24 (1), pp. 84. Date of Electronic Publication: 2023 Oct 17.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101088680 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6939 (Electronic) Linking ISSN: 14726939 NLM ISO Abbreviation: BMC Med Ethics Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Ethical and coordinative challenges in setting up a national cohort study during the COVID-19 pandemic in Germany.
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  Data: <searchLink fieldCode="AU" term="%22Tilch+K%22">Tilch K</searchLink>; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany. tilch.katharina@gmail.com.<br /><searchLink fieldCode="AU" term="%22Pütz+SM%22">Pütz SM</searchLink>; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Appel+K%22">Appel K</searchLink>; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Kraus+M%22">Kraus M</searchLink>; Helmholtz Center Munich, Institute of Epidemiology, Research Unit Molecular Epidemiology, Munich, Germany.; German Center for Cardiovascular Research (DZHK), Partner Site Munich, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Lorenz-Depiereux+B%22">Lorenz-Depiereux B</searchLink>; Helmholtz Center Munich, Institute of Epidemiology, Research Unit Molecular Epidemiology, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Pilgram+L%22">Pilgram L</searchLink>; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.; Department of Nephrology and Medical Intensive Care, Charité - Universitätsmedizin Berlin, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Anton+G%22">Anton G</searchLink>; Helmholtz Center Munich, Institute of Epidemiology, Research Unit Molecular Epidemiology, Munich, Germany.; German Centre for Infection Research (DZIF), Partner Site Munich, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Berger+S%22">Berger S</searchLink>; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Department of Infectious Diseases, Respiratory Medicine and Critical Care, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Geisler+R%22">Geisler R</searchLink>; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Haas+K%22">Haas K</searchLink>; Institute of Clinical Epidemiology and Biometry, University of Würzburg, Julius Maximilian University of Würzburg, Würzburg, Germany.; University Hospital Würzburg, Institute for Medical Data Science (ImDS), Josef-Schneider Straße 2, 97080, Würzburg, Germany.<br /><searchLink fieldCode="AU" term="%22Illig+T%22">Illig T</searchLink>; Hannover Unified Biobank, Hannover Medical School, Hannover, Germany.<br /><searchLink fieldCode="AU" term="%22Krefting+D%22">Krefting D</searchLink>; Department of Medical Informatics, University Medical Center Göttingen, Göttingen, Germany.<br /><searchLink fieldCode="AU" term="%22Lorbeer+R%22">Lorbeer R</searchLink>; German Center for Cardiovascular Research (DZHK), Partner Site Munich, Munich, Germany.; Deutsches Herzzentrum der Charité, Medical Heart Center of Charité and German Heart Institute Berlin, Institute of Computer-Assisted Cardiovascular Medicine, Berlin, Germany.; Department of Radiology, University Hospital LMU Munich, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Mitrov+L%22">Mitrov L</searchLink>; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Muenchhoff+M%22">Muenchhoff M</searchLink>; German Centre for Infection Research (DZIF), Partner Site Munich, Munich, Germany.; Max Von Pettenkofer Institute & GeneCenter, Virology, Faculty of Medicine, Ludwig-Maximilians University, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Nauck+M%22">Nauck M</searchLink>; Institute of Clinical Chemistry and Laboratory Medicine, University Medicine Greifswald, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Pley+C%22">Pley C</searchLink>; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Department of Infectious Diseases, Respiratory Medicine and Critical Care, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Reese+JP%22">Reese JP</searchLink>; Institute of Clinical Epidemiology and Biometry, University of Würzburg, Julius Maximilian University of Würzburg, Würzburg, Germany.; University Hospital Würzburg, Institute for Medical Data Science (ImDS), Josef-Schneider Straße 2, 97080, Würzburg, Germany.<br /><searchLink fieldCode="AU" term="%22Rieg+S%22">Rieg S</searchLink>; Division of Infectious Diseases, Department of Medicine II, Medical Centre - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.<br /><searchLink fieldCode="AU" term="%22Scherer+M%22">Scherer M</searchLink>; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.<br /><searchLink fieldCode="AU" term="%22Stecher+M%22">Stecher M</searchLink>; Faculty of Medicine, Department I of Internal Medicine, Center for Integrated Oncology, Aachen Bonn Cologne Duesseldorf, University of Cologne, University Hospital Cologne, Cologne, Germany.; German Center for Infection Research (DZIF), Partner-Site Cologne-Bonn, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Stellbrink+C%22">Stellbrink C</searchLink>; Bielefeld University, Medical School and University Medical Center East Westphalia-Lippe, Klinikum Bielefeld, Academic Department of Cardiology and Internal Intensive Care Medicine, Bielefeld, Germany.<br /><searchLink fieldCode="AU" term="%22Valentin+H%22">Valentin H</searchLink>; Trusted Third Party of the University Medicine Greifswald, Ellernholzstr. 1-2, 17475, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Winter+C%22">Winter C</searchLink>; School of Medicine, Institute of Clinical Chemistry and Pathobiochemistry, Technical University of Munich, Munich, Germany.; TranslaTUM, Center for Translational Cancer Research, Technical University of Munich, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Witzenrath+M%22">Witzenrath M</searchLink>; Department of Nephrology and Medical Intensive Care, Charité - Universitätsmedizin Berlin, Berlin, Germany.; Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Department of Infectious Diseases, Respiratory Medicine and Critical Care, Berlin, Germany.; German Center for Lung Research (DZL), Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Vehreschild+JJ%22">Vehreschild JJ</searchLink>; Department of Internal Medicine, Hematology/Oncology, Goethe University Frankfurt, Frankfurt am Main, Germany.; German Center for Infection Research (DZIF), Partner-Site Cologne-Bonn, Cologne, Germany.; Department I for Internal Medicine, Faculty of Medicine, University Hospital of Cologne, University of Cologne, Cologne, Germany.
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