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A core outcome domain set to assess cutaneous neurofibromas related to neurofibromatosis type 1 in clinical trials.

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Title: A core outcome domain set to assess cutaneous neurofibromas related to neurofibromatosis type 1 in clinical trials.
Authors: Fertitta L; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.; INSERM U955 , 94010, Créteil, France., Bergqvist C; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France., Sarin KY; Department of Dermatology, Stanford Medicine, Stanford University, Redwood City, CA, USA., Plotkin SR; Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, MA, USA., Moertel C; Department of Pediatrics, University of Minnesota, Minneapolis, MN, USA., Petersen AK; Department of Rehabilitation and Development, Randall Children's Hospital at Legacy Emanuel Medical Center, Portland, OR, 97227, USA., Cannon A; School of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.; InformedDNA, Inc., St Petersburg, FL, USA., Berman Y; Clinical Genetics, Royal North Shore Hospital, St Leonards, NSW, Australia and University of Sydney, Sydney, Australia., Pichard DC; Dermatology Branch, National Institutes of Arthritis, Musculoskeletal, and Skin Diseases.; Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute; National Institutes of Health, Bethesda, MD, USA., Röhl C; NF Patients United - Global Network of NF Support Groups, Vienna, Austria., Lessing A; Neurofibromatosis Northeast, Burlington, MA, USA., Brizion B; Centre de documentation de l'AP-HP, AP-HP, Paris, France., Peiffer B; Department of Dermatology., Ravaud P; Center for Clinical Epidemiology, Hôtel-Dieu Hospital (AP-HP), Paris, France.; Université de Paris, CRESS, INSERM, INRA , F-75004 Paris, France., Tran VT; Center for Clinical Epidemiology, Hôtel-Dieu Hospital (AP-HP), Paris, France.; Université de Paris, CRESS, INSERM, INRA , F-75004 Paris, France., Armand ML; Department of Dermatology., Moryousef S; Department of Dermatology., Ferkal S; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France., Jannic A; Department of Dermatology., Ezzedine K; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.; Université Paris-Est Créteil (UPEC), 94010 Créteil, France., Wolkenstein P; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.; INSERM U955, 94010, Créteil, France.; Université Paris-Est Créteil (UPEC), 94010 Créteil, France.
Corporate Authors: Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) international collaboration
Source: The British journal of dermatology [Br J Dermatol] 2024 Jan 23; Vol. 190 (2), pp. 216-225.
Publication Type: Systematic Review; Journal Article
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 0004041 Publication Model: Print Cited Medium: Internet ISSN: 1365-2133 (Electronic) Linking ISSN: 00070963 NLM ISO Abbreviation: Br J Dermatol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Fertitta+L%22">Fertitta L</searchLink>; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.; INSERM U955 , 94010, Créteil, France.<br /><searchLink fieldCode="AU" term="%22Bergqvist+C%22">Bergqvist C</searchLink>; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.<br /><searchLink fieldCode="AU" term="%22Sarin+KY%22">Sarin KY</searchLink>; Department of Dermatology, Stanford Medicine, Stanford University, Redwood City, CA, USA.<br /><searchLink fieldCode="AU" term="%22Plotkin+SR%22">Plotkin SR</searchLink>; Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Moertel+C%22">Moertel C</searchLink>; Department of Pediatrics, University of Minnesota, Minneapolis, MN, USA.<br /><searchLink fieldCode="AU" term="%22Petersen+AK%22">Petersen AK</searchLink>; Department of Rehabilitation and Development, Randall Children's Hospital at Legacy Emanuel Medical Center, Portland, OR, 97227, USA.<br /><searchLink fieldCode="AU" term="%22Cannon+A%22">Cannon A</searchLink>; School of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.; InformedDNA, Inc., St Petersburg, FL, USA.<br /><searchLink fieldCode="AU" term="%22Berman+Y%22">Berman Y</searchLink>; Clinical Genetics, Royal North Shore Hospital, St Leonards, NSW, Australia and University of Sydney, Sydney, Australia.<br /><searchLink fieldCode="AU" term="%22Pichard+DC%22">Pichard DC</searchLink>; Dermatology Branch, National Institutes of Arthritis, Musculoskeletal, and Skin Diseases.; Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute; National Institutes of Health, Bethesda, MD, USA.<br /><searchLink fieldCode="AU" term="%22Röhl+C%22">Röhl C</searchLink>; NF Patients United - Global Network of NF Support Groups, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Lessing+A%22">Lessing A</searchLink>; Neurofibromatosis Northeast, Burlington, MA, USA.<br /><searchLink fieldCode="AU" term="%22Brizion+B%22">Brizion B</searchLink>; Centre de documentation de l'AP-HP, AP-HP, Paris, France.<br /><searchLink fieldCode="AU" term="%22Peiffer+B%22">Peiffer B</searchLink>; Department of Dermatology.<br /><searchLink fieldCode="AU" term="%22Ravaud+P%22">Ravaud P</searchLink>; Center for Clinical Epidemiology, Hôtel-Dieu Hospital (AP-HP), Paris, France.; Université de Paris, CRESS, INSERM, INRA , F-75004 Paris, France.<br /><searchLink fieldCode="AU" term="%22Tran+VT%22">Tran VT</searchLink>; Center for Clinical Epidemiology, Hôtel-Dieu Hospital (AP-HP), Paris, France.; Université de Paris, CRESS, INSERM, INRA , F-75004 Paris, France.<br /><searchLink fieldCode="AU" term="%22Armand+ML%22">Armand ML</searchLink>; Department of Dermatology.<br /><searchLink fieldCode="AU" term="%22Moryousef+S%22">Moryousef S</searchLink>; Department of Dermatology.<br /><searchLink fieldCode="AU" term="%22Ferkal+S%22">Ferkal S</searchLink>; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.<br /><searchLink fieldCode="AU" term="%22Jannic+A%22">Jannic A</searchLink>; Department of Dermatology.<br /><searchLink fieldCode="AU" term="%22Ezzedine+K%22">Ezzedine K</searchLink>; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.; Université Paris-Est Créteil (UPEC), 94010 Créteil, France.<br /><searchLink fieldCode="AU" term="%22Wolkenstein+P%22">Wolkenstein P</searchLink>; Department of Dermatology.; INSERM, Centre d'Investigation Clinique 1430; National Referral Center for Neurofibromatoses, -Henri-Mondor Hospital, Assistance Publique-Hôpitaux Paris (AP-HP) , 94010 Créteil, France.; INSERM U955, 94010, Créteil, France.; Université Paris-Est Créteil (UPEC), 94010 Créteil, France.
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