A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH).
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| Title: | A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH). |
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| Authors: | Saraff V; Department of Paediatric Endocrinology and Diabetes, Birmingham Women's and Children's Hospital NHS Trust, Birmingham, United Kingdom.; Institute of Applied Health Research, University of Birmingham, Birmingham, United Kingdom., Boot AM; University Medical Center Groningen, University of Groningen, Groningen, The Netherlands., Linglart A; Assistance Publique Hôpitaux de Paris, Université Paris Saclay, Bicêtre Paris-Saclay Hospital, Le Kremlin Bicêtre, France., Semler O; Department of Pediatrics, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany., Harvengt P; XLH Belgium (Belgium XLH Patient Association), Waterloo, Belgium., Williams A; Kyowa Kirin International, Marlow, United Kingdom., Bailey KMA; OPEN Health, Marlow, United Kingdom., Glen F; OPEN Health, Marlow, United Kingdom., Davies EH; Aparito, Wrexham, United Kingdom., Wood S; Kyowa Kirin International, Marlow, United Kingdom., Greentree S; Kyowa Kirin International, Marlow, United Kingdom., Rylands AJ; Kyowa Kirin International, Marlow, United Kingdom. |
| Source: | PloS one [PLoS One] 2024 Jan 19; Vol. 19 (1), pp. e0295080. Date of Electronic Publication: 2024 Jan 19 (Print Publication: 2024). |
| Publication Type: | Journal Article; Clinical Trial Protocol; Research Support, Non-U.S. Gov't |
| Journal Info: | Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1932-6203 |
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| DOI: | 10.1371/journal.pone.0295080 |
