View in EDS

ECFS standards of care on CFTR-related disorders: Towards a comprehensive program for affected individuals.

Saved in:
Bibliographic Details
Title: ECFS standards of care on CFTR-related disorders: Towards a comprehensive program for affected individuals.
Authors: De Wachter E; Cystic Fibrosis Center, Pediatric Pulmonology department, Universitair Ziekenhuis Brussel, Vrije Universiteit Brussel, Brussels, Belgium. Electronic address: elke.dewachter@uzbrussel.be., De Boeck K; Department of Pediatrics, University of Leuven, Leuven, Belgium., Sermet-Gaudelus I; INSERM U1151, Institut Necker Enfants Malades, Paris, France; Université de Paris, Paris, France; Centre de référence Maladies Rares, Mucoviscidose et maladies apparentées. Hôpital Necker Enfants malades, Paris, France., Simmonds NJ; Adult Cystic Fibrosis Centre, Royal Brompton Hospital and Imperial College, London, UK., Munck A; Paediatric Cystic Fibrosis centre, Hôpital Necker Enfants Malades, AP-HP Paris, France., Naehrlich L; Department of Pediatrics, Justus-Liebig-University Giessen, Germany., Barben J; Paediatric Pulmonology & CF Centre, Children's Hospital of Eastern Switzerland, St. Gallen, Switzerland., Boyd C; Patient representative., Veen SJ; Patient representative., Carr SB; Department of Paediatric Respiratory Medicine, Royal Brompton Hospital, and Imperial College, London, UK., Fajac I; Assistance Publique-Hôpitaux de Paris, Thoracic Department and National Cystic Fibrosis Reference Centre, Cochin Hospital, 75014 Paris, France; Université Paris Cité, Inserm U1016, Institut Cochin, 75014 Paris, France., Farrell PM; Departments of Pediatrics and Population Health Sciences, University of Wisconsin School of Medicine and Public Health, Madison, WI 53792, USA., Girodon E; Service de Médecine Génomique des Maladies de Système et d'Organe, APHP.Centre - Université de Paris Cité, Hôpital Cochin, Paris, France., Gonska T; Division of Pediatric Gastroenterology, Hepatology, Nutrition, Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada; Program of Translational Medicine, Research institute, Hospital for Sick Children, Toronto, Canada., Grody WW; Departments of Pathology & Laboratory Medicine, Pediatrics, and Human Genetics, UCLA School of Medicine, Los Angeles, California 90095-1732, USA., Jain M; Northwestern University Feinberg School of Medicine, Pulmonary Critical Care, Chicago, Illinois, United States., Jung A; University Children`s Hospital Zurich, Steinwiesstrasse 75, CH-8032 Zurich, Switzerland., Kerem E; Department of Pediatrics and CF Center, Hadassah Hebrew University medical Center, Jerusalem, Israel., Raraigh KS; Department of Genetic Medicine, Johns Hopkins University, Baltimore, MD 21287, USA., van Koningsbruggen-Rietschel S; CF Center Cologne, Children´s Hospital, Faculty of Medicine, University Hospital Cologne, Cologne, Germany., Waller MD; Department of Adult Cystic Fibrosis and Respiratory Medicine, King's College Hospital NHS Foundation Trust, London, United Kingdom; Centre for Human & Applied Physiological Sciences, King's College London, London, United Kingdom., Southern KW; Department of Women's and Children's Health, University of Liverpool, Alder Hey Children's Hospital, Liverpool, UK., Castellani C; IRCCS Istituto Giannina Gaslini, Cystic Fibrosis Center, Genoa, Italy.
Corporate Authors: ECFS Diagnostic Network Working Group
Source: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2024 May; Vol. 23 (3), pp. 388-397. Date of Electronic Publication: 2024 Feb 22.
Publication Type: Journal Article; Review
Journal Info: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101128966 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5010 (Electronic) Linking ISSN: 15691993 NLM ISO Abbreviation: J Cyst Fibros Subsets: MEDLINE
Database: MEDLINE Ultimate
FullText Text:
  Availability: 0
Header DbId: mdl
DbLabel: MEDLINE Ultimate
An: 38388234
AccessLevel: 2
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: ECFS standards of care on CFTR-related disorders: Towards a comprehensive program for affected individuals.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AU" term="%22De+Wachter+E%22">De Wachter E</searchLink>; Cystic Fibrosis Center, Pediatric Pulmonology department, Universitair Ziekenhuis Brussel, Vrije Universiteit Brussel, Brussels, Belgium. Electronic address: elke.dewachter@uzbrussel.be.<br /><searchLink fieldCode="AU" term="%22De+Boeck+K%22">De Boeck K</searchLink>; Department of Pediatrics, University of Leuven, Leuven, Belgium.<br /><searchLink fieldCode="AU" term="%22Sermet-Gaudelus+I%22">Sermet-Gaudelus I</searchLink>; INSERM U1151, Institut Necker Enfants Malades, Paris, France; Université de Paris, Paris, France; Centre de référence Maladies Rares, Mucoviscidose et maladies apparentées. Hôpital Necker Enfants malades, Paris, France.<br /><searchLink fieldCode="AU" term="%22Simmonds+NJ%22">Simmonds NJ</searchLink>; Adult Cystic Fibrosis Centre, Royal Brompton Hospital and Imperial College, London, UK.<br /><searchLink fieldCode="AU" term="%22Munck+A%22">Munck A</searchLink>; Paediatric Cystic Fibrosis centre, Hôpital Necker Enfants Malades, AP-HP Paris, France.<br /><searchLink fieldCode="AU" term="%22Naehrlich+L%22">Naehrlich L</searchLink>; Department of Pediatrics, Justus-Liebig-University Giessen, Germany.<br /><searchLink fieldCode="AU" term="%22Barben+J%22">Barben J</searchLink>; Paediatric Pulmonology & CF Centre, Children's Hospital of Eastern Switzerland, St. Gallen, Switzerland.<br /><searchLink fieldCode="AU" term="%22Boyd+C%22">Boyd C</searchLink>; Patient representative.<br /><searchLink fieldCode="AU" term="%22Veen+SJ%22">Veen SJ</searchLink>; Patient representative.<br /><searchLink fieldCode="AU" term="%22Carr+SB%22">Carr SB</searchLink>; Department of Paediatric Respiratory Medicine, Royal Brompton Hospital, and Imperial College, London, UK.<br /><searchLink fieldCode="AU" term="%22Fajac+I%22">Fajac I</searchLink>; Assistance Publique-Hôpitaux de Paris, Thoracic Department and National Cystic Fibrosis Reference Centre, Cochin Hospital, 75014 Paris, France; Université Paris Cité, Inserm U1016, Institut Cochin, 75014 Paris, France.<br /><searchLink fieldCode="AU" term="%22Farrell+PM%22">Farrell PM</searchLink>; Departments of Pediatrics and Population Health Sciences, University of Wisconsin School of Medicine and Public Health, Madison, WI 53792, USA.<br /><searchLink fieldCode="AU" term="%22Girodon+E%22">Girodon E</searchLink>; Service de Médecine Génomique des Maladies de Système et d'Organe, APHP.Centre - Université de Paris Cité, Hôpital Cochin, Paris, France.<br /><searchLink fieldCode="AU" term="%22Gonska+T%22">Gonska T</searchLink>; Division of Pediatric Gastroenterology, Hepatology, Nutrition, Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada; Program of Translational Medicine, Research institute, Hospital for Sick Children, Toronto, Canada.<br /><searchLink fieldCode="AU" term="%22Grody+WW%22">Grody WW</searchLink>; Departments of Pathology & Laboratory Medicine, Pediatrics, and Human Genetics, UCLA School of Medicine, Los Angeles, California 90095-1732, USA.<br /><searchLink fieldCode="AU" term="%22Jain+M%22">Jain M</searchLink>; Northwestern University Feinberg School of Medicine, Pulmonary Critical Care, Chicago, Illinois, United States.<br /><searchLink fieldCode="AU" term="%22Jung+A%22">Jung A</searchLink>; University Children`s Hospital Zurich, Steinwiesstrasse 75, CH-8032 Zurich, Switzerland.<br /><searchLink fieldCode="AU" term="%22Kerem+E%22">Kerem E</searchLink>; Department of Pediatrics and CF Center, Hadassah Hebrew University medical Center, Jerusalem, Israel.<br /><searchLink fieldCode="AU" term="%22Raraigh+KS%22">Raraigh KS</searchLink>; Department of Genetic Medicine, Johns Hopkins University, Baltimore, MD 21287, USA.<br /><searchLink fieldCode="AU" term="%22van+Koningsbruggen-Rietschel+S%22">van Koningsbruggen-Rietschel S</searchLink>; CF Center Cologne, Children´s Hospital, Faculty of Medicine, University Hospital Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Waller+MD%22">Waller MD</searchLink>; Department of Adult Cystic Fibrosis and Respiratory Medicine, King's College Hospital NHS Foundation Trust, London, United Kingdom; Centre for Human & Applied Physiological Sciences, King's College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Southern+KW%22">Southern KW</searchLink>; Department of Women's and Children's Health, University of Liverpool, Alder Hey Children's Hospital, Liverpool, UK.<br /><searchLink fieldCode="AU" term="%22Castellani+C%22">Castellani C</searchLink>; IRCCS Istituto Giannina Gaslini, Cystic Fibrosis Center, Genoa, Italy.
– Name: AuthorCorporate
  Label: Corporate Authors
  Group: Au
  Data: <searchLink fieldCode="CA" term="%22ECFS+Diagnostic+Network+Working+Group%22">ECFS Diagnostic Network Working Group</searchLink>
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22101128966%22">Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society</searchLink> [J Cyst Fibros] 2024 May; Vol. 23 (3), pp. 388-397. <i>Date of Electronic Publication: </i>2024 Feb 22.
– Name: TypePub
  Label: Publication Type
  Group: TypPub
  Data: Journal Article; Review
– Name: TitleSource
  Label: Journal Info
  Group: Src
  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier%22">Elsevier </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>101128966 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1873-5010 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215691993%22">15691993 </searchLink><i>NLM ISO Abbreviation: </i>J Cyst Fibros <i>Subsets: </i>MEDLINE
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=mdl&AN=38388234
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1016/j.jcf.2024.01.012
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        StartPage: 388
    Titles:
      – TitleFull: ECFS standards of care on CFTR-related disorders: Towards a comprehensive program for affected individuals.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: De Wachter E
      – PersonEntity:
          Name:
            NameFull: De Boeck K
      – PersonEntity:
          Name:
            NameFull: Sermet-Gaudelus I
      – PersonEntity:
          Name:
            NameFull: Simmonds NJ
      – PersonEntity:
          Name:
            NameFull: Munck A
      – PersonEntity:
          Name:
            NameFull: Naehrlich L
      – PersonEntity:
          Name:
            NameFull: Barben J
      – PersonEntity:
          Name:
            NameFull: Boyd C
      – PersonEntity:
          Name:
            NameFull: Veen SJ
      – PersonEntity:
          Name:
            NameFull: Carr SB
      – PersonEntity:
          Name:
            NameFull: Fajac I
      – PersonEntity:
          Name:
            NameFull: Farrell PM
      – PersonEntity:
          Name:
            NameFull: Girodon E
      – PersonEntity:
          Name:
            NameFull: Gonska T
      – PersonEntity:
          Name:
            NameFull: Grody WW
      – PersonEntity:
          Name:
            NameFull: Jain M
      – PersonEntity:
          Name:
            NameFull: Jung A
      – PersonEntity:
          Name:
            NameFull: Kerem E
      – PersonEntity:
          Name:
            NameFull: Raraigh KS
      – PersonEntity:
          Name:
            NameFull: van Koningsbruggen-Rietschel S
      – PersonEntity:
          Name:
            NameFull: Waller MD
      – PersonEntity:
          Name:
            NameFull: Southern KW
      – PersonEntity:
          Name:
            NameFull: Castellani C
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 05
              Text: 2024 May
              Type: published
              Y: 2024
          Identifiers:
            – Type: issn-electronic
              Value: 1873-5010
          Numbering:
            – Type: volume
              Value: 23
            – Type: issue
              Value: 3
          Titles:
            – TitleFull: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
              Type: main
ResultId 1