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Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study.

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Title: Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study.
Authors: Keeley J; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia., Benson-Goldberg S; Center for Literacy and Disability Studies, Department of Health Sciences, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Saldaris J; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia., Lariviere J; Assistive Tech 4 ALL, Inc., Rancho Cordova, California, USA., Leonard H; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia., Marsh ED; Division of Neurology, Children's Hospital of Philadelphia, School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA., Demarest ST; Department of Pediatrics and Neurology, School of Medicine, University of Colorado Precision Medicine Institute, Children's Hospital Colorado, Aurora, Colorado, USA., Benke TA; Children's Hospital Colorado, Paediatrics and Neurology, University of Colorado School of Medicine, Aurora, Colorado, USA., Jacoby P; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia., Downs J; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.; Curtin School of Allied Health, Faculty of Health Sciences, Curtin University, Perth, Western Australia, Australia.
Source: American journal of medical genetics. Part A [Am J Med Genet A] 2024 Jul; Vol. 194 (7), pp. e63570. Date of Electronic Publication: 2024 Feb 29.
Publication Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 101235741 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1552-4833 (Electronic) Linking ISSN: 15524825 NLM ISO Abbreviation: Am J Med Genet A Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study.
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  Data: <searchLink fieldCode="AU" term="%22Keeley+J%22">Keeley J</searchLink>; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Benson-Goldberg+S%22">Benson-Goldberg S</searchLink>; Center for Literacy and Disability Studies, Department of Health Sciences, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.<br /><searchLink fieldCode="AU" term="%22Saldaris+J%22">Saldaris J</searchLink>; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Lariviere+J%22">Lariviere J</searchLink>; Assistive Tech 4 ALL, Inc., Rancho Cordova, California, USA.<br /><searchLink fieldCode="AU" term="%22Leonard+H%22">Leonard H</searchLink>; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Marsh+ED%22">Marsh ED</searchLink>; Division of Neurology, Children's Hospital of Philadelphia, School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.<br /><searchLink fieldCode="AU" term="%22Demarest+ST%22">Demarest ST</searchLink>; Department of Pediatrics and Neurology, School of Medicine, University of Colorado Precision Medicine Institute, Children's Hospital Colorado, Aurora, Colorado, USA.<br /><searchLink fieldCode="AU" term="%22Benke+TA%22">Benke TA</searchLink>; Children's Hospital Colorado, Paediatrics and Neurology, University of Colorado School of Medicine, Aurora, Colorado, USA.<br /><searchLink fieldCode="AU" term="%22Jacoby+P%22">Jacoby P</searchLink>; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Downs+J%22">Downs J</searchLink>; Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia.; Curtin School of Allied Health, Faculty of Health Sciences, Curtin University, Perth, Western Australia, Australia.
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  Data: <searchLink fieldCode="JN" term="%22101235741%22">American journal of medical genetics. Part A</searchLink> [Am J Med Genet A] 2024 Jul; Vol. 194 (7), pp. e63570. <i>Date of Electronic Publication: </i>2024 Feb 29.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Wiley-Blackwell%22">Wiley-Blackwell </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101235741 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1552-4833 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2215524825%22">15524825 </searchLink><i>NLM ISO Abbreviation: </i>Am J Med Genet A <i>Subsets: </i>MEDLINE
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        Value: 10.1002/ajmg.a.63570
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              Text: 2024 Jul
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