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PATHFINDER-CHD: prospective registry on adults with congenital heart disease, abnormal ventricular function, and/or heart failure as a foundation for establishing rehabilitative, prehabilitative, preventive, and health-promoting measures: rationale, aims, design and methods.

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Title: PATHFINDER-CHD: prospective registry on adults with congenital heart disease, abnormal ventricular function, and/or heart failure as a foundation for establishing rehabilitative, prehabilitative, preventive, and health-promoting measures: rationale, aims, design and methods.
Authors: Freilinger S; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Kaemmerer H; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Pittrow RD; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Achenbach S; Department of Cardiology, Medizinische Klinik 2 - Kardiologie und Angiologie University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Baldus S; Clinic III for Internal Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany., Dewald O; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Ewert P; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Freiberger A; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Gorenflo M; Department of Paediatric Cardiology and Congenital Heart Disease Center for Child and Adolescent Health, Medical Center-University of Heidelberg, Faculty of Medicine, University of Heidelberg, Heidelberg, Germany., Harig F; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Hohmann C; Clinic III for Internal Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany., Holdenrieder S; Institute of Laboratory Medicine, Deutsches Herzzentrum München, Technical University Munich, München, Germany., Hörer J; Department for Congenital and Paediatric Surgery, German Heart Center Munich, Technical University Munich, München, Germany.; Division for Congenital and Pediatric Heart Surgery, University Hospital of Munich (LMU), Munich, Germany.; European Pediatric Heart Center, Munich, Germany., Huntgeburth M; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Hübler M; University Heart & Vascular Center, Hamburg, Germany., Kohls N; Faculty of Applied Natural Sciences and Health, Division of Health Promotion, University of Applied Sciences and Arts Coburg, Coburg, Germany., Klawonn F; Helmholtz Centre for Infection Research, Biostatistics Research Group, Brunswick, Germany., Kozlik-Feldmann R; University Heart & Vascular Center, Hamburg, Germany., Kaulitz R; Department of Pediatric Cardiology, University Children's Hospital, University of Tübingen, Tübingen, Germany., Loßnitzer D; Department of Paediatric Cardiology and Congenital Heart Disease Center for Child and Adolescent Health, Medical Center-University of Heidelberg, Faculty of Medicine, University of Heidelberg, Heidelberg, Germany., Mellert F; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Nagdyman N; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Nordmeyer J; Department of Pediatric Cardiology, University Children's Hospital, University of Tübingen, Tübingen, Germany., Pittrow BA; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Pittrow LB; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., Rickers C; University Heart & Vascular Center, Hamburg, Germany., Rosenkranz S; Clinic III for Internal Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany., Schelling J; General Medical Practice Martinsried, Planegg, Germany., Sinning C; University Heart & Vascular Center, Hamburg, Germany., Suleiman MN; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany., von Kodolitsch Y; University Heart & Vascular Center, Hamburg, Germany., von Scheidt F; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany., Kaemmerer-Suleiman AS; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany. ann-sophie.kaemmerer@uk-erlangen.de.
Source: BMC cardiovascular disorders [BMC Cardiovasc Disord] 2024 Mar 26; Vol. 24 (1), pp. 181. Date of Electronic Publication: 2024 Mar 26.
Publication Type: Multicenter Study; Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 100968539 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2261 (Electronic) Linking ISSN: 14712261 NLM ISO Abbreviation: BMC Cardiovasc Disord Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: PATHFINDER-CHD: prospective registry on adults with congenital heart disease, abnormal ventricular function, and/or heart failure as a foundation for establishing rehabilitative, prehabilitative, preventive, and health-promoting measures: rationale, aims, design and methods.
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  Data: <searchLink fieldCode="AU" term="%22Freilinger+S%22">Freilinger S</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Kaemmerer+H%22">Kaemmerer H</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Pittrow+RD%22">Pittrow RD</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Achenbach+S%22">Achenbach S</searchLink>; Department of Cardiology, Medizinische Klinik 2 - Kardiologie und Angiologie University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Baldus+S%22">Baldus S</searchLink>; Clinic III for Internal Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Dewald+O%22">Dewald O</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Ewert+P%22">Ewert P</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Freiberger+A%22">Freiberger A</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Gorenflo+M%22">Gorenflo M</searchLink>; Department of Paediatric Cardiology and Congenital Heart Disease Center for Child and Adolescent Health, Medical Center-University of Heidelberg, Faculty of Medicine, University of Heidelberg, Heidelberg, Germany.<br /><searchLink fieldCode="AU" term="%22Harig+F%22">Harig F</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Hohmann+C%22">Hohmann C</searchLink>; Clinic III for Internal Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Holdenrieder+S%22">Holdenrieder S</searchLink>; Institute of Laboratory Medicine, Deutsches Herzzentrum München, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Hörer+J%22">Hörer J</searchLink>; Department for Congenital and Paediatric Surgery, German Heart Center Munich, Technical University Munich, München, Germany.; Division for Congenital and Pediatric Heart Surgery, University Hospital of Munich (LMU), Munich, Germany.; European Pediatric Heart Center, Munich, Germany.<br /><searchLink fieldCode="AU" term="%22Huntgeburth+M%22">Huntgeburth M</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Hübler+M%22">Hübler M</searchLink>; University Heart & Vascular Center, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Kohls+N%22">Kohls N</searchLink>; Faculty of Applied Natural Sciences and Health, Division of Health Promotion, University of Applied Sciences and Arts Coburg, Coburg, Germany.<br /><searchLink fieldCode="AU" term="%22Klawonn+F%22">Klawonn F</searchLink>; Helmholtz Centre for Infection Research, Biostatistics Research Group, Brunswick, Germany.<br /><searchLink fieldCode="AU" term="%22Kozlik-Feldmann+R%22">Kozlik-Feldmann R</searchLink>; University Heart & Vascular Center, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Kaulitz+R%22">Kaulitz R</searchLink>; Department of Pediatric Cardiology, University Children's Hospital, University of Tübingen, Tübingen, Germany.<br /><searchLink fieldCode="AU" term="%22Loßnitzer+D%22">Loßnitzer D</searchLink>; Department of Paediatric Cardiology and Congenital Heart Disease Center for Child and Adolescent Health, Medical Center-University of Heidelberg, Faculty of Medicine, University of Heidelberg, Heidelberg, Germany.<br /><searchLink fieldCode="AU" term="%22Mellert+F%22">Mellert F</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Nagdyman+N%22">Nagdyman N</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Nordmeyer+J%22">Nordmeyer J</searchLink>; Department of Pediatric Cardiology, University Children's Hospital, University of Tübingen, Tübingen, Germany.<br /><searchLink fieldCode="AU" term="%22Pittrow+BA%22">Pittrow BA</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Pittrow+LB%22">Pittrow LB</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22Rickers+C%22">Rickers C</searchLink>; University Heart & Vascular Center, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Rosenkranz+S%22">Rosenkranz S</searchLink>; Clinic III for Internal Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.<br /><searchLink fieldCode="AU" term="%22Schelling+J%22">Schelling J</searchLink>; General Medical Practice Martinsried, Planegg, Germany.<br /><searchLink fieldCode="AU" term="%22Sinning+C%22">Sinning C</searchLink>; University Heart & Vascular Center, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22Suleiman+MN%22">Suleiman MN</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany.<br /><searchLink fieldCode="AU" term="%22von+Kodolitsch+Y%22">von Kodolitsch Y</searchLink>; University Heart & Vascular Center, Hamburg, Germany.<br /><searchLink fieldCode="AU" term="%22von+Scheidt+F%22">von Scheidt F</searchLink>; International Center for Adults With Congenital Heart Disease, Clinic for Congenital Heart Disease and Pediatric Cardiology, German Heart Center Munich, Technical University Munich, München, Germany.<br /><searchLink fieldCode="AU" term="%22Kaemmerer-Suleiman+AS%22">Kaemmerer-Suleiman AS</searchLink>; Department of Cardiac Surgery, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany. ann-sophie.kaemmerer@uk-erlangen.de.
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