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Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa.

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Title: Towards a roadmap for COSEB: the next steps in harmonization of outcomes for epidermolysis bullosa.
Authors: Korte EWH; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands., Pasmooij AMG; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.; Dutch Medicines Evaluation Board, Utrecht, the Netherlands.; Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Utrecht, The Netherlands., Bolling MC; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands., Hickey S; DEBRA Ireland, Dublin, Ireland., Hussain S; DEBRA UK, Bracknell, UK., Kiritsi D; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.; First Department of Dermatology, Faculty of Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece., Kottner J; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany., Prinsen CAC; CHORD COUSIN Collaboration, Department of Dermatology, Amsterdam Public Health, Infection and Immunology, AUMC, Location AMC, University of Amsterdam, Amsterdam, the Netherlands., Sauvestre A; DEBRA France, Marseille, France., Sendin G; DEBRA Austria, Vienna, Austria., Spuls PI; Department of Dermatology, Amsterdam Public Health, Infection and Immunology, AUMC, Location AMC, University of Amsterdam, Amsterdam, the Netherlands., Tarrats N; DEBRA Spain, Marbella, Spain., Wally V; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Welponer T; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., Laimer M; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria., van den Akker PC; Department of Genetics, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
Corporate Authors: COSEB Consortium
Source: The British journal of dermatology [Br J Dermatol] 2024 Aug 14; Vol. 191 (3), pp. 463-465.
Publication Type: Editorial
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 0004041 Publication Model: Print Cited Medium: Internet ISSN: 1365-2133 (Electronic) Linking ISSN: 00070963 NLM ISO Abbreviation: Br J Dermatol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Korte+EWH%22">Korte EWH</searchLink>; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Pasmooij+AMG%22">Pasmooij AMG</searchLink>; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.; Dutch Medicines Evaluation Board, Utrecht, the Netherlands.; Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences (UIPS), Utrecht University, Utrecht, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Bolling+MC%22">Bolling MC</searchLink>; Department of Dermatology, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Hickey+S%22">Hickey S</searchLink>; DEBRA Ireland, Dublin, Ireland.<br /><searchLink fieldCode="AU" term="%22Hussain+S%22">Hussain S</searchLink>; DEBRA UK, Bracknell, UK.<br /><searchLink fieldCode="AU" term="%22Kiritsi+D%22">Kiritsi D</searchLink>; Department of Dermatology, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.; First Department of Dermatology, Faculty of Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece.<br /><searchLink fieldCode="AU" term="%22Kottner+J%22">Kottner J</searchLink>; Charité-Universitätsmedizin Berlin, Institute of Clinical Nursing Science, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Prinsen+CAC%22">Prinsen CAC</searchLink>; CHORD COUSIN Collaboration, Department of Dermatology, Amsterdam Public Health, Infection and Immunology, AUMC, Location AMC, University of Amsterdam, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Sauvestre+A%22">Sauvestre A</searchLink>; DEBRA France, Marseille, France.<br /><searchLink fieldCode="AU" term="%22Sendin+G%22">Sendin G</searchLink>; DEBRA Austria, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Spuls+PI%22">Spuls PI</searchLink>; Department of Dermatology, Amsterdam Public Health, Infection and Immunology, AUMC, Location AMC, University of Amsterdam, Amsterdam, the Netherlands.<br /><searchLink fieldCode="AU" term="%22Tarrats+N%22">Tarrats N</searchLink>; DEBRA Spain, Marbella, Spain.<br /><searchLink fieldCode="AU" term="%22Wally+V%22">Wally V</searchLink>; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Welponer+T%22">Welponer T</searchLink>; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22Laimer+M%22">Laimer M</searchLink>; Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria.<br /><searchLink fieldCode="AU" term="%22van+den+Akker+PC%22">van den Akker PC</searchLink>; Department of Genetics, UMCG Center of Expertise for Blistering Diseases, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
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