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The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation.

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Title: The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation.
Authors: Buttgereit T; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Aulenbacher F; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Gutsche A; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Kolkhir P; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Weller K; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Vera Ayala C; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Magerl M; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Farkas H; Hungarian Angioedema Center of Reference and Excellence (ACARE), Department of Internal Medicine and Haematology, Semmelweis University, Budapest, Hungary., Grumach AS; Angioedema Center of Reference and Excellence (ACARE), Clinical Immunology, University Center Faculdade de Medicina Do ABC, Santo André, Brazil., Aygören-Pürsün E; Department of Pediatrics, University Hospital Frankfurt, Goethe University Frankfurt, Frankfurt, Germany., Bara N; Romanian Hereditary Angioedema Expertise Centre, Centru Clinic Mediquest, Sangeorgiu de Mures, Romania., Ben-Shoshan M; Division of Allergy, Immunology and Dermatology, Department of Pediatrics, Montreal Children's Hospital, McGill University, Montreal, Quebec, Canada., Bernstein J; Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, Angioedema Center of Reference and Excellence (ACARE), University of Cincinnati College of Medicine, Cincinnati, Ohio, USA., Betschel S; Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, Ontario, Canada., Bouillet L; Angioedema Center of Reference and Excellence (ACARE), National Reference Center of Angioedema CREAK, Grenoble, France.; Internal Medicine Department, Grenoble University Hospital, Grenoble, France., Caballero T; Angioedema Center of Reference and Excellence (ACARE), Hereditary Angioedema National Reference Center (CSUR), Department of Allergy, La Paz University Hospital, Hospital La Paz Institute for Health Research (IdiPAZ - Group 44), Biomedical Research Network on Rare Diseases (CIBERER U754), Madrid, Spain., Cancian M; Angioedema Center of Reference and Excellence (ACARE), Departmental Unit of Allergology, University Hospital of Padua, Padua, Italy., Castaldo AJ; HAE International - HAEi, Fairfax City, Virginia, USA., Cimbollek S; Hospital U. Virgen del Rocío, Sevilla, Spain., Cohn DM; Angioedema Center of Reference and Excellence (ACARE), Amsterdam UMC, Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, University of Amsterdam, Amsterdam, Netherlands., Craig T; Angioedema Center of Reference and Excellence (ACARE), Department of Medicine, Pediatrics and Biomedical Sciences, Pennsylvania State University, Hershey, Pennsylvania, USA.; International Hospital, Times City, Hanoi, Vietnam., Fomina D; Angioedema Center of Reference and Excellence (ACARE), Moscow Clinical and Research Center of Allergology and Immunology, Clinical Hospital No 52, Moscow Healthcare Department, Moscow, Russia.; Department of Clinical Immunology and Allergology, I. M. Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russia.; Department of Pulmonology, Astana Medical University, Astana, Kazakhstan., Gelincik A; Angioedema Center of Reference and Excellence (ACARE), Division of Immunology and Allergic Diseases, Department of Internal Medicine, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey., Grivcheva-Panovska V; Angioedema Center of Reference and Excellence (ACARE), University Clinic of Dermatology, Ss Cyril and Methodius University, Skopje, Macedonia., Jindal A; Angioedema Center of Reference and Excellence (ACARE), Allergy Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Post-Graduate Institute of Medical Education and Research (PGIMER), Chandigarh, India., Katelaris C; Angioedema Center of Reference and Excellence (ACARE), Western Sydney University and Campbelltown Hospital, Campbelltown, New South Wales, Australia., Kessel A; Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Bnai Zion Medical Center and the Bruce and Ruth Rappaport Faculty of Medicine, Technion, Haifa, Israel., Kinaciyan T; Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Medical University of Vienna, Vienna, Austria., Longhurst HJ; Department of Medicine, University of Auckland, Auckland, New Zealand.; Department of Immunology, Auckland City Hospital, Auckland, New Zealand., Martinez-Saguer I; Pediatrics, Haemophilia Centre Rhine Main (HZRM), Moerfelden-Walldorf, Germany., Riedl M; Division of Rheumatology, Allergy, and Immunology, University of California San Diego, La Jolla, California, USA., Schöffl C; Department of Dermatology, Medical University of Graz, Graz, Austria., Staubach P; Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, University Medical Center Mainz, Mainz, Germany., Zanichelli A; Departamento di Scienze Biomediche per la Salute, Università Degli Studi di Milano, Milan, Italy.; Operative Unit of Medicine, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy., Zhi Y; Department of Allergy, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China., Balle Boysen H; HAE International - HAEi, Fairfax City, Virginia, USA., Fok JS; Angioedema Center of Reference and Excellence (ACARE), Department of Respiratory Medicine and General Medicine, Box Hill Hospital, Eastern Health, Melbourne, Victoria, Australia.; Monash Lung, Sleep and Allergy/Immunology, Monash Medical Centre, Melbourne, Victoria, Australia.; Eastern Health Clinical School, Monash University, Melbourne, Victoria, Australia., Li PH; Angioedema Center of Reference and Excellence (ACARE), Division of Rheumatology and Clinical Immunology, Department of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong, Hong Kong., Hakl R; Department of Clinical Immunology and Allergology, St. Anne's University Hospital in Brno and Faculty of Medicine, Masaryk University, Brno, Czech Republic., Hide M; Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Graduate School of Biomedical & Health Sciences, Hiroshima University, Hiroshima, Japan.; Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan., Peter J; Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Department of Medicine, University of Cape Town, Cape Town, South Africa.; Allergy and Immunology Unit, University of Cape Town Lung Institute, Cape Town, South Africa., Maurer M; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.
Source: Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology [Clin Exp Allergy] 2024 Sep; Vol. 54 (9), pp. 712-716. Date of Electronic Publication: 2024 Jun 24.
Publication Type: Journal Article
Journal Info: Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 8906443 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1365-2222 (Electronic) Linking ISSN: 09547894 NLM ISO Abbreviation: Clin Exp Allergy Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation.
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  Data: <searchLink fieldCode="AU" term="%22Buttgereit+T%22">Buttgereit T</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Aulenbacher+F%22">Aulenbacher F</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Gutsche+A%22">Gutsche A</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Kolkhir+P%22">Kolkhir P</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Weller+K%22">Weller K</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Vera+Ayala+C%22">Vera Ayala C</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Magerl+M%22">Magerl M</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Farkas+H%22">Farkas H</searchLink>; Hungarian Angioedema Center of Reference and Excellence (ACARE), Department of Internal Medicine and Haematology, Semmelweis University, Budapest, Hungary.<br /><searchLink fieldCode="AU" term="%22Grumach+AS%22">Grumach AS</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Clinical Immunology, University Center Faculdade de Medicina Do ABC, Santo André, Brazil.<br /><searchLink fieldCode="AU" term="%22Aygören-Pürsün+E%22">Aygören-Pürsün E</searchLink>; Department of Pediatrics, University Hospital Frankfurt, Goethe University Frankfurt, Frankfurt, Germany.<br /><searchLink fieldCode="AU" term="%22Bara+N%22">Bara N</searchLink>; Romanian Hereditary Angioedema Expertise Centre, Centru Clinic Mediquest, Sangeorgiu de Mures, Romania.<br /><searchLink fieldCode="AU" term="%22Ben-Shoshan+M%22">Ben-Shoshan M</searchLink>; Division of Allergy, Immunology and Dermatology, Department of Pediatrics, Montreal Children's Hospital, McGill University, Montreal, Quebec, Canada.<br /><searchLink fieldCode="AU" term="%22Bernstein+J%22">Bernstein J</searchLink>; Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, Angioedema Center of Reference and Excellence (ACARE), University of Cincinnati College of Medicine, Cincinnati, Ohio, USA.<br /><searchLink fieldCode="AU" term="%22Betschel+S%22">Betschel S</searchLink>; Department of Medicine, St. Michael's Hospital, University of Toronto, Toronto, Ontario, Canada.<br /><searchLink fieldCode="AU" term="%22Bouillet+L%22">Bouillet L</searchLink>; Angioedema Center of Reference and Excellence (ACARE), National Reference Center of Angioedema CREAK, Grenoble, France.; Internal Medicine Department, Grenoble University Hospital, Grenoble, France.<br /><searchLink fieldCode="AU" term="%22Caballero+T%22">Caballero T</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Hereditary Angioedema National Reference Center (CSUR), Department of Allergy, La Paz University Hospital, Hospital La Paz Institute for Health Research (IdiPAZ - Group 44), Biomedical Research Network on Rare Diseases (CIBERER U754), Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Cancian+M%22">Cancian M</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Departmental Unit of Allergology, University Hospital of Padua, Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Castaldo+AJ%22">Castaldo AJ</searchLink>; HAE International - HAEi, Fairfax City, Virginia, USA.<br /><searchLink fieldCode="AU" term="%22Cimbollek+S%22">Cimbollek S</searchLink>; Hospital U. Virgen del Rocío, Sevilla, Spain.<br /><searchLink fieldCode="AU" term="%22Cohn+DM%22">Cohn DM</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Amsterdam UMC, Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, University of Amsterdam, Amsterdam, Netherlands.<br /><searchLink fieldCode="AU" term="%22Craig+T%22">Craig T</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Department of Medicine, Pediatrics and Biomedical Sciences, Pennsylvania State University, Hershey, Pennsylvania, USA.; International Hospital, Times City, Hanoi, Vietnam.<br /><searchLink fieldCode="AU" term="%22Fomina+D%22">Fomina D</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Moscow Clinical and Research Center of Allergology and Immunology, Clinical Hospital No 52, Moscow Healthcare Department, Moscow, Russia.; Department of Clinical Immunology and Allergology, I. M. Sechenov First Moscow State Medical University (Sechenov University), Moscow, Russia.; Department of Pulmonology, Astana Medical University, Astana, Kazakhstan.<br /><searchLink fieldCode="AU" term="%22Gelincik+A%22">Gelincik A</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Division of Immunology and Allergic Diseases, Department of Internal Medicine, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.<br /><searchLink fieldCode="AU" term="%22Grivcheva-Panovska+V%22">Grivcheva-Panovska V</searchLink>; Angioedema Center of Reference and Excellence (ACARE), University Clinic of Dermatology, Ss Cyril and Methodius University, Skopje, Macedonia.<br /><searchLink fieldCode="AU" term="%22Jindal+A%22">Jindal A</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Allergy Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre, Post-Graduate Institute of Medical Education and Research (PGIMER), Chandigarh, India.<br /><searchLink fieldCode="AU" term="%22Katelaris+C%22">Katelaris C</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Western Sydney University and Campbelltown Hospital, Campbelltown, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Kessel+A%22">Kessel A</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Bnai Zion Medical Center and the Bruce and Ruth Rappaport Faculty of Medicine, Technion, Haifa, Israel.<br /><searchLink fieldCode="AU" term="%22Kinaciyan+T%22">Kinaciyan T</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Medical University of Vienna, Vienna, Austria.<br /><searchLink fieldCode="AU" term="%22Longhurst+HJ%22">Longhurst HJ</searchLink>; Department of Medicine, University of Auckland, Auckland, New Zealand.; Department of Immunology, Auckland City Hospital, Auckland, New Zealand.<br /><searchLink fieldCode="AU" term="%22Martinez-Saguer+I%22">Martinez-Saguer I</searchLink>; Pediatrics, Haemophilia Centre Rhine Main (HZRM), Moerfelden-Walldorf, Germany.<br /><searchLink fieldCode="AU" term="%22Riedl+M%22">Riedl M</searchLink>; Division of Rheumatology, Allergy, and Immunology, University of California San Diego, La Jolla, California, USA.<br /><searchLink fieldCode="AU" term="%22Schöffl+C%22">Schöffl C</searchLink>; Department of Dermatology, Medical University of Graz, Graz, Austria.<br /><searchLink fieldCode="AU" term="%22Staubach+P%22">Staubach P</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, University Medical Center Mainz, Mainz, Germany.<br /><searchLink fieldCode="AU" term="%22Zanichelli+A%22">Zanichelli A</searchLink>; Departamento di Scienze Biomediche per la Salute, Università Degli Studi di Milano, Milan, Italy.; Operative Unit of Medicine, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Zhi+Y%22">Zhi Y</searchLink>; Department of Allergy, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing, China.<br /><searchLink fieldCode="AU" term="%22Balle+Boysen+H%22">Balle Boysen H</searchLink>; HAE International - HAEi, Fairfax City, Virginia, USA.<br /><searchLink fieldCode="AU" term="%22Fok+JS%22">Fok JS</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Department of Respiratory Medicine and General Medicine, Box Hill Hospital, Eastern Health, Melbourne, Victoria, Australia.; Monash Lung, Sleep and Allergy/Immunology, Monash Medical Centre, Melbourne, Victoria, Australia.; Eastern Health Clinical School, Monash University, Melbourne, Victoria, Australia.<br /><searchLink fieldCode="AU" term="%22Li+PH%22">Li PH</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Division of Rheumatology and Clinical Immunology, Department of Medicine, Queen Mary Hospital, University of Hong Kong, Hong Kong, Hong Kong.<br /><searchLink fieldCode="AU" term="%22Hakl+R%22">Hakl R</searchLink>; Department of Clinical Immunology and Allergology, St. Anne's University Hospital in Brno and Faculty of Medicine, Masaryk University, Brno, Czech Republic.<br /><searchLink fieldCode="AU" term="%22Hide+M%22">Hide M</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Graduate School of Biomedical & Health Sciences, Hiroshima University, Hiroshima, Japan.; Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan.<br /><searchLink fieldCode="AU" term="%22Peter+J%22">Peter J</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Department of Medicine, University of Cape Town, Cape Town, South Africa.; Allergy and Immunology Unit, University of Cape Town Lung Institute, Cape Town, South Africa.<br /><searchLink fieldCode="AU" term="%22Maurer+M%22">Maurer M</searchLink>; Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität Zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.
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            NameFull: Hakl R
      – PersonEntity:
          Name:
            NameFull: Hide M
      – PersonEntity:
          Name:
            NameFull: Peter J
      – PersonEntity:
          Name:
            NameFull: Maurer M
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 09
              Text: 2024 Sep
              Type: published
              Y: 2024
          Identifiers:
            – Type: issn-electronic
              Value: 1365-2222
          Numbering:
            – Type: volume
              Value: 54
            – Type: issue
              Value: 9
          Titles:
            – TitleFull: Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology
              Type: main
ResultId 1