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Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions.

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Title: Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions.
Authors: Bogetz JF; Department of Pediatrics (J.F.B.), Division of Bioethics and Palliative Care, University of Washington School of Medicine; Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA. Electronic address: jori.bogetz@seattlechildrens.org., Strub B; Biostatistics (B.S., M.C.B., J.M.G.), Epidemiology and Analytics in Research (BEAR) Core, Seattle Children's Research Institute, Seattle, WA, USA., Bradford MC; Biostatistics (B.S., M.C.B., J.M.G.), Epidemiology and Analytics in Research (BEAR) Core, Seattle Children's Research Institute, Seattle, WA, USA., McGalliard J; Biostatistics (B.S., M.C.B., J.M.G.), Epidemiology and Analytics in Research (BEAR) Core, Seattle Children's Research Institute, Seattle, WA, USA., Shipman K; Center for Clinical and Translational Research (K.S.), Seattle Children's Research Institute, Seattle, WA, USA; Center for Clinical Immunotherapies (K.S.), University of Pennsylvania, Philadelphia, PA, USA., Jeyte A; Behavioral and Clinical Outcomes Research Program (A.J.), Seattle Children's Research Institute, Seattle WA, USA., Patneaude A; Division of Bioethics and Palliative Care (A.P.), Seattle Children's Hospital, Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, University of Washington School of Social Work, Seattle, WA, USA., Johnston EE; Department of Pediatrics (E.E.J.), Division of Pediatric Hematology-Oncology, University of Alabama at Birmingham School of Medicine; Institute for Cancer Outcomes and Survivorship, UAB School of Medicine, Birmingham, AL, USA., Ananth P; Department of Pediatrics, Yale School of Medicine (P.A.), Yale Cancer Outcomes, Public Policy and Effectiveness Research (COPPER) Center, New Haven, CT, USA., Thienprayoon R; Department of Anesthesia (R.T.), Division of Palliative Care, University of Cincinnati College of Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA., Rosenberg AR; Department of Psychosocial Oncology and Palliative Care (A.R.R.), Department of Pediatrics, Department of Pediatrics Harvard Medical School, Dana Farber Cancer Institute, Boston Children's Hospital, Boston, MA, USA.
Source: Journal of pain and symptom management [J Pain Symptom Manage] 2024 Nov; Vol. 68 (5), pp. 488-498.e1. Date of Electronic Publication: 2024 Aug 02.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 8605836 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-6513 (Electronic) Linking ISSN: 08853924 NLM ISO Abbreviation: J Pain Symptom Manage Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Bogetz+JF%22">Bogetz JF</searchLink>; Department of Pediatrics (J.F.B.), Division of Bioethics and Palliative Care, University of Washington School of Medicine; Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, WA, USA. Electronic address: jori.bogetz@seattlechildrens.org.<br /><searchLink fieldCode="AU" term="%22Strub+B%22">Strub B</searchLink>; Biostatistics (B.S., M.C.B., J.M.G.), Epidemiology and Analytics in Research (BEAR) Core, Seattle Children's Research Institute, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Bradford+MC%22">Bradford MC</searchLink>; Biostatistics (B.S., M.C.B., J.M.G.), Epidemiology and Analytics in Research (BEAR) Core, Seattle Children's Research Institute, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22McGalliard+J%22">McGalliard J</searchLink>; Biostatistics (B.S., M.C.B., J.M.G.), Epidemiology and Analytics in Research (BEAR) Core, Seattle Children's Research Institute, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Shipman+K%22">Shipman K</searchLink>; Center for Clinical and Translational Research (K.S.), Seattle Children's Research Institute, Seattle, WA, USA; Center for Clinical Immunotherapies (K.S.), University of Pennsylvania, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Jeyte+A%22">Jeyte A</searchLink>; Behavioral and Clinical Outcomes Research Program (A.J.), Seattle Children's Research Institute, Seattle WA, USA.<br /><searchLink fieldCode="AU" term="%22Patneaude+A%22">Patneaude A</searchLink>; Division of Bioethics and Palliative Care (A.P.), Seattle Children's Hospital, Treuman Katz Center for Pediatric Bioethics and Palliative Care, Seattle Children's Research Institute, University of Washington School of Social Work, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Johnston+EE%22">Johnston EE</searchLink>; Department of Pediatrics (E.E.J.), Division of Pediatric Hematology-Oncology, University of Alabama at Birmingham School of Medicine; Institute for Cancer Outcomes and Survivorship, UAB School of Medicine, Birmingham, AL, USA.<br /><searchLink fieldCode="AU" term="%22Ananth+P%22">Ananth P</searchLink>; Department of Pediatrics, Yale School of Medicine (P.A.), Yale Cancer Outcomes, Public Policy and Effectiveness Research (COPPER) Center, New Haven, CT, USA.<br /><searchLink fieldCode="AU" term="%22Thienprayoon+R%22">Thienprayoon R</searchLink>; Department of Anesthesia (R.T.), Division of Palliative Care, University of Cincinnati College of Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Rosenberg+AR%22">Rosenberg AR</searchLink>; Department of Psychosocial Oncology and Palliative Care (A.R.R.), Department of Pediatrics, Department of Pediatrics Harvard Medical School, Dana Farber Cancer Institute, Boston Children's Hospital, Boston, MA, USA.
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  Data: <searchLink fieldCode="JN" term="%228605836%22">Journal of pain and symptom management</searchLink> [J Pain Symptom Manage] 2024 Nov; Vol. 68 (5), pp. 488-498.e1. <i>Date of Electronic Publication: </i>2024 Aug 02.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Elsevier%22">Elsevier </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>8605836 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1873-6513 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2208853924%22">08853924 </searchLink><i>NLM ISO Abbreviation: </i>J Pain Symptom Manage <i>Subsets: </i>MEDLINE
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        Value: 10.1016/j.jpainsymman.2024.07.034
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      – Code: eng
        Text: English
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      – TitleFull: Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions.
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              Text: 2024 Nov
              Type: published
              Y: 2024
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              Value: 68
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