The observational EURACAN prospective clinical registry dedicated to epithelioid hemangioendothelioma: The protocol of an international and collaborative effort on an ultra-rare entity.
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| Title: | The observational EURACAN prospective clinical registry dedicated to epithelioid hemangioendothelioma: The protocol of an international and collaborative effort on an ultra-rare entity. |
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| Authors: | Frezza AM; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy., Leonard H; EHE Rare Cancer Charity, London, United Kingdom., Aggerholm-Pedersen N; Department of Oncology, Aarhus University Hospital, Aarhus, Denmark., Badalamenti G; Department of Surgical, Oncological and Oral Sciences, Section of Medical Oncology, University of Palermo, Palermo, Italy., Baili P; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Data Science Unit, Milan, Italy., Baldi GG; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy., Bauer S; Medical Oncology, University Hospital Essen, Essen, Germany., Bazzurri S; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy., Benzonelli I; Medical Oncology, Ospedale San Luigi, Orbassano, Italy., Bertuzzi A; Medical Oncology, IRCCS, Humanitas Research Hospital, Rozzano-Milano, Italy., Blay JY; Medical Oncology, Centre Léon Bérard, Lyon, France., Bianchi G; IRCCS Istituto Ortopedico Rizzoli, Clinica Ortopedica e Traumatologica III a Prevalente Indirizzo Oncologico, Bologna, Italy., Bonfarnuzzo S; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Data Science Unit, Milan, Italy., Bouvier C; Medical Oncology, Centre Léon Bérard, Lyon, France., Boye K; Medical Oncology, Oslo University Hospital, Oslo, Norway., Martin Broto J; Medical Oncology, Fundación Jimenez Diaz University Hospital, Madrid, Spain., Brunello A; Istituto Oncologico Veneto IOV-IRCCS, Medical Oncology 1, Padua, Italy., Campanacci D; Orthopaedic Oncology, Careggi University Hospital, Florence, Italy., Casali PG; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy., Cicala C; Medical Oncology, Hospital Universitari Vall d'Hebron, Spain., Crotti E; Medical Oncology, IRCCS, Humanitas Research Hospital, Rozzano-Milano, Italy., D'Ambrosio L; Medical Oncology, Ospedale San Luigi, Orbassano, Italy., Dei Tos AP; Department of Pathology, Azienda Ospedaliera di Padova, Padua, Italy., Dieckmann N; Medical Oncology, University Hospital Essen, Essen, Germany., Dufresne A; Medical Oncology, Centre Léon Bérard, Lyon, France., Elston S; Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom., Ferraresi V; Sarcomas and Rare Tumors Departmental Unit-IRCCS Regina Elena National Cancer Institute, Rome, Italy., Gabellini S; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy., Giani C; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy., Giannusa V; Department of Surgical, Oncological and Oral Sciences, Section of Medical Oncology, University of Palermo, Palermo, Italy., Gil Sanjines M; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy., Grassani T; Medical Oncology, Università Campus Bio-Medico, Rome, Italy., Gronchi A; Fondazione IRCCS Istituto Nazionale Tumori, Sarcoma Surgery, Milan, Italy., Lasalvia P; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy., Lindskog S; Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Hindi N; Medical Oncology, Fundación Jimenez Diaz University Hospital, Madrid, Spain., Ingrosso M; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy., Ivanescu A; EHE Italia, Milan, Italy., Jones R; Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom., Lugowska I; Maria Skłodowska Curie Institute-Oncology Centre, Early Phase Trial Unit, Warsaw, Poland., Ketzer J; Medical Oncology, University Hospital Essen, Essen, Germany., Mariuk-Jarema A; Maria Skłodowska Curie Institute-Oncology Centre, Early Phase Trial Unit, Warsaw, Poland., Mazzocca A; Medical Oncology, Università Campus Bio-Medico, Rome, Italy., Monteleone L; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy., Morosi C; Department of Radiology, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy., Napolitano A; Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom., Nardozza F; IRCCS Regina Elena National Cancer Institute, UOSD Clinical Trial Center, Biostatistics and Bioinformatics, Rome, Italy., Neri E; Orthopaedic Oncology, Careggi University Hospital, Florence, Italy., Nilsson M; Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Papakonstantinou A; Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden.; Department of Breast Cancer, Endocrine Tumors and Sarcoma, Karolinska Comprehensive Cancer Center, Karolinska University Hospital, Stockholm, Sweden., Pasquali S; Department of Experimental Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori, Molecular Pharmacology Unit, Milan, Italy., Sbaraglia M; Department of Pathology, Azienda Ospedaliera di Padova, Padua, Italy., Scolari F; Orthopaedic Oncology, Careggi University Hospital, Florence, Italy., Szkandera J; Department of Internal Medicine, Division of Oncology, Medical University of Graz, Graz, Austria., Valverde C; Medical Oncology, Hospital Universitari Vall d'Hebron, Spain., Vincenzi B; Medical Oncology, Università Campus Bio-Medico, Rome, Italy., Vizzaccaro S; Istituto Oncologico Veneto IOV-IRCCS, Medical Oncology 1, Padua, Italy., Zuccheri F; IRCCS Istituto Ortopedico Rizzoli, Clinica Ortopedica e Traumatologica III a Prevalente Indirizzo Oncologico, Bologna, Italy., Stacchiotti S; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy., Trama A; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy. |
| Source: | PloS one [PLoS One] 2024 Aug 12; Vol. 19 (8), pp. e0308387. Date of Electronic Publication: 2024 Aug 12 (Print Publication: 2024). |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| Header | DbId: mdl DbLabel: MEDLINE Ultimate An: 39133752 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: The observational EURACAN prospective clinical registry dedicated to epithelioid hemangioendothelioma: The protocol of an international and collaborative effort on an ultra-rare entity. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AU" term="%22Frezza+AM%22">Frezza AM</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Leonard+H%22">Leonard H</searchLink>; EHE Rare Cancer Charity, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Aggerholm-Pedersen+N%22">Aggerholm-Pedersen N</searchLink>; Department of Oncology, Aarhus University Hospital, Aarhus, Denmark.<br /><searchLink fieldCode="AU" term="%22Badalamenti+G%22">Badalamenti G</searchLink>; Department of Surgical, Oncological and Oral Sciences, Section of Medical Oncology, University of Palermo, Palermo, Italy.<br /><searchLink fieldCode="AU" term="%22Baili+P%22">Baili P</searchLink>; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Data Science Unit, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Baldi+GG%22">Baldi GG</searchLink>; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy.<br /><searchLink fieldCode="AU" term="%22Bauer+S%22">Bauer S</searchLink>; Medical Oncology, University Hospital Essen, Essen, Germany.<br /><searchLink fieldCode="AU" term="%22Bazzurri+S%22">Bazzurri S</searchLink>; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy.<br /><searchLink fieldCode="AU" term="%22Benzonelli+I%22">Benzonelli I</searchLink>; Medical Oncology, Ospedale San Luigi, Orbassano, Italy.<br /><searchLink fieldCode="AU" term="%22Bertuzzi+A%22">Bertuzzi A</searchLink>; Medical Oncology, IRCCS, Humanitas Research Hospital, Rozzano-Milano, Italy.<br /><searchLink fieldCode="AU" term="%22Blay+JY%22">Blay JY</searchLink>; Medical Oncology, Centre Léon Bérard, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Bianchi+G%22">Bianchi G</searchLink>; IRCCS Istituto Ortopedico Rizzoli, Clinica Ortopedica e Traumatologica III a Prevalente Indirizzo Oncologico, Bologna, Italy.<br /><searchLink fieldCode="AU" term="%22Bonfarnuzzo+S%22">Bonfarnuzzo S</searchLink>; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Data Science Unit, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Bouvier+C%22">Bouvier C</searchLink>; Medical Oncology, Centre Léon Bérard, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Boye+K%22">Boye K</searchLink>; Medical Oncology, Oslo University Hospital, Oslo, Norway.<br /><searchLink fieldCode="AU" term="%22Martin+Broto+J%22">Martin Broto J</searchLink>; Medical Oncology, Fundación Jimenez Diaz University Hospital, Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Brunello+A%22">Brunello A</searchLink>; Istituto Oncologico Veneto IOV-IRCCS, Medical Oncology 1, Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Campanacci+D%22">Campanacci D</searchLink>; Orthopaedic Oncology, Careggi University Hospital, Florence, Italy.<br /><searchLink fieldCode="AU" term="%22Casali+PG%22">Casali PG</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Cicala+C%22">Cicala C</searchLink>; Medical Oncology, Hospital Universitari Vall d'Hebron, Spain.<br /><searchLink fieldCode="AU" term="%22Crotti+E%22">Crotti E</searchLink>; Medical Oncology, IRCCS, Humanitas Research Hospital, Rozzano-Milano, Italy.<br /><searchLink fieldCode="AU" term="%22D'Ambrosio+L%22">D'Ambrosio L</searchLink>; Medical Oncology, Ospedale San Luigi, Orbassano, Italy.<br /><searchLink fieldCode="AU" term="%22Dei+Tos+AP%22">Dei Tos AP</searchLink>; Department of Pathology, Azienda Ospedaliera di Padova, Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Dieckmann+N%22">Dieckmann N</searchLink>; Medical Oncology, University Hospital Essen, Essen, Germany.<br /><searchLink fieldCode="AU" term="%22Dufresne+A%22">Dufresne A</searchLink>; Medical Oncology, Centre Léon Bérard, Lyon, France.<br /><searchLink fieldCode="AU" term="%22Elston+S%22">Elston S</searchLink>; Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Ferraresi+V%22">Ferraresi V</searchLink>; Sarcomas and Rare Tumors Departmental Unit-IRCCS Regina Elena National Cancer Institute, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Gabellini+S%22">Gabellini S</searchLink>; Department of Oncology, Hospital of Prato, Azienda USL Toscana Centro, Prato, Italy.<br /><searchLink fieldCode="AU" term="%22Giani+C%22">Giani C</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Giannusa+V%22">Giannusa V</searchLink>; Department of Surgical, Oncological and Oral Sciences, Section of Medical Oncology, University of Palermo, Palermo, Italy.<br /><searchLink fieldCode="AU" term="%22Gil+Sanjines+M%22">Gil Sanjines M</searchLink>; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Grassani+T%22">Grassani T</searchLink>; Medical Oncology, Università Campus Bio-Medico, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Gronchi+A%22">Gronchi A</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Sarcoma Surgery, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Lasalvia+P%22">Lasalvia P</searchLink>; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Lindskog+S%22">Lindskog S</searchLink>; Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Hindi+N%22">Hindi N</searchLink>; Medical Oncology, Fundación Jimenez Diaz University Hospital, Madrid, Spain.<br /><searchLink fieldCode="AU" term="%22Ingrosso+M%22">Ingrosso M</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Ivanescu+A%22">Ivanescu A</searchLink>; EHE Italia, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Jones+R%22">Jones R</searchLink>; Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Lugowska+I%22">Lugowska I</searchLink>; Maria Skłodowska Curie Institute-Oncology Centre, Early Phase Trial Unit, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Ketzer+J%22">Ketzer J</searchLink>; Medical Oncology, University Hospital Essen, Essen, Germany.<br /><searchLink fieldCode="AU" term="%22Mariuk-Jarema+A%22">Mariuk-Jarema A</searchLink>; Maria Skłodowska Curie Institute-Oncology Centre, Early Phase Trial Unit, Warsaw, Poland.<br /><searchLink fieldCode="AU" term="%22Mazzocca+A%22">Mazzocca A</searchLink>; Medical Oncology, Università Campus Bio-Medico, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Monteleone+L%22">Monteleone L</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Morosi+C%22">Morosi C</searchLink>; Department of Radiology, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Napolitano+A%22">Napolitano A</searchLink>; Sarcoma Unit, The Royal Marsden NHS Foundation Trust, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Nardozza+F%22">Nardozza F</searchLink>; IRCCS Regina Elena National Cancer Institute, UOSD Clinical Trial Center, Biostatistics and Bioinformatics, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Neri+E%22">Neri E</searchLink>; Orthopaedic Oncology, Careggi University Hospital, Florence, Italy.<br /><searchLink fieldCode="AU" term="%22Nilsson+M%22">Nilsson M</searchLink>; Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.<br /><searchLink fieldCode="AU" term="%22Papakonstantinou+A%22">Papakonstantinou A</searchLink>; Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden.; Department of Breast Cancer, Endocrine Tumors and Sarcoma, Karolinska Comprehensive Cancer Center, Karolinska University Hospital, Stockholm, Sweden.<br /><searchLink fieldCode="AU" term="%22Pasquali+S%22">Pasquali S</searchLink>; Department of Experimental Oncology, Fondazione IRCCS Istituto Nazionale dei Tumori, Molecular Pharmacology Unit, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Sbaraglia+M%22">Sbaraglia M</searchLink>; Department of Pathology, Azienda Ospedaliera di Padova, Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Scolari+F%22">Scolari F</searchLink>; Orthopaedic Oncology, Careggi University Hospital, Florence, Italy.<br /><searchLink fieldCode="AU" term="%22Szkandera+J%22">Szkandera J</searchLink>; Department of Internal Medicine, Division of Oncology, Medical University of Graz, Graz, Austria.<br /><searchLink fieldCode="AU" term="%22Valverde+C%22">Valverde C</searchLink>; Medical Oncology, Hospital Universitari Vall d'Hebron, Spain.<br /><searchLink fieldCode="AU" term="%22Vincenzi+B%22">Vincenzi B</searchLink>; Medical Oncology, Università Campus Bio-Medico, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Vizzaccaro+S%22">Vizzaccaro S</searchLink>; Istituto Oncologico Veneto IOV-IRCCS, Medical Oncology 1, Padua, Italy.<br /><searchLink fieldCode="AU" term="%22Zuccheri+F%22">Zuccheri F</searchLink>; IRCCS Istituto Ortopedico Rizzoli, Clinica Ortopedica e Traumatologica III a Prevalente Indirizzo Oncologico, Bologna, Italy.<br /><searchLink fieldCode="AU" term="%22Stacchiotti+S%22">Stacchiotti S</searchLink>; Fondazione IRCCS Istituto Nazionale Tumori, Medical Oncology 2, Milan, Italy.<br /><searchLink fieldCode="AU" term="%22Trama+A%22">Trama A</searchLink>; Department of Epidemiology and Data Science, Fondazione IRCCS Istituto Nazionale Tumori, Evaluative Epidemiology Unit, Milan, Italy. – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22101285081%22">PloS one</searchLink> [PLoS One] 2024 Aug 12; Vol. 19 (8), pp. e0308387. <i>Date of Electronic Publication: </i>2024 Aug 12 (<i>Print Publication: </i>2024). – Name: TypePub Label: Publication Type Group: TypPub Data: Journal Article – Name: TitleSource Label: Journal Info Group: Src Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Public+Library+of+Science%22">Public Library of Science </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>101285081 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>1932-6203 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2219326203%22">19326203 </searchLink><i>NLM ISO Abbreviation: </i>PLoS One <i>Subsets: </i>MEDLINE |
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