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A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years.

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Title: A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years.
Authors: Oliveira CC; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands. c.cruzoliveira@erasmusmc.nl.; Netherlands Institute for Health Sciences, Erasmus University Rotterdam, Rotterdam, The Netherlands. c.cruzoliveira@erasmusmc.nl., Charalampous P; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands., Delaye J; European Organisation for Rare Diseases (EURORDIS), Paris, France., Grad DA; Department of Public Health, Babes-Bolyai University, Cluj-Napoca, Romania., Kolkhir P; Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany., Mechili EA; Clinic of Social and Family Medicine, School of Medicine, University of Crete, Crete, Greece.; Department of Healthcare, Faculty of Public Health, University of Vlora, Vlora, Albania., Unim B; Department of Cardiovascular, Endocrine-Metabolic Diseases and Aging, Istituto Superiore Di Sanità, Rome, Italy., Devleesschauwer B; Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium.; Department of Translational Physiology, Infectiology and Public Health, Ghent University, Merelbeke, Belgium., Haagsma JA; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2024 Sep 09; Vol. 19 (1), pp. 333. Date of Electronic Publication: 2024 Sep 09.
Publication Type: Systematic Review; Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172 (Electronic) Linking ISSN: 17501172 NLM ISO Abbreviation: Orphanet J Rare Dis Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years.
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  Data: <searchLink fieldCode="AU" term="%22Oliveira+CC%22">Oliveira CC</searchLink>; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands. c.cruzoliveira@erasmusmc.nl.; Netherlands Institute for Health Sciences, Erasmus University Rotterdam, Rotterdam, The Netherlands. c.cruzoliveira@erasmusmc.nl.<br /><searchLink fieldCode="AU" term="%22Charalampous+P%22">Charalampous P</searchLink>; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.<br /><searchLink fieldCode="AU" term="%22Delaye+J%22">Delaye J</searchLink>; European Organisation for Rare Diseases (EURORDIS), Paris, France.<br /><searchLink fieldCode="AU" term="%22Grad+DA%22">Grad DA</searchLink>; Department of Public Health, Babes-Bolyai University, Cluj-Napoca, Romania.<br /><searchLink fieldCode="AU" term="%22Kolkhir+P%22">Kolkhir P</searchLink>; Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Mechili+EA%22">Mechili EA</searchLink>; Clinic of Social and Family Medicine, School of Medicine, University of Crete, Crete, Greece.; Department of Healthcare, Faculty of Public Health, University of Vlora, Vlora, Albania.<br /><searchLink fieldCode="AU" term="%22Unim+B%22">Unim B</searchLink>; Department of Cardiovascular, Endocrine-Metabolic Diseases and Aging, Istituto Superiore Di Sanità, Rome, Italy.<br /><searchLink fieldCode="AU" term="%22Devleesschauwer+B%22">Devleesschauwer B</searchLink>; Department of Epidemiology and Public Health, Sciensano, Brussels, Belgium.; Department of Translational Physiology, Infectiology and Public Health, Ghent University, Merelbeke, Belgium.<br /><searchLink fieldCode="AU" term="%22Haagsma+JA%22">Haagsma JA</searchLink>; Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
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  Data: <searchLink fieldCode="JN" term="%22101266602%22">Orphanet journal of rare diseases</searchLink> [Orphanet J Rare Dis] 2024 Sep 09; Vol. 19 (1), pp. 333. <i>Date of Electronic Publication: </i>2024 Sep 09.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22BioMed+Central%22">BioMed Central </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>101266602 <i>Publication Model: </i>Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1750-1172 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2217501172%22">17501172 </searchLink><i>NLM ISO Abbreviation: </i>Orphanet J Rare Dis <i>Subsets: </i>MEDLINE
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        Value: 10.1186/s13023-024-03342-3
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        Text: English
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              Text: 2024 Sep 09
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