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Practice Patterns and Challenges in Managing Inherited Retinal Diseases Across Asia-Pacific: A Survey from the APIED Network.

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Title: Practice Patterns and Challenges in Managing Inherited Retinal Diseases Across Asia-Pacific: A Survey from the APIED Network.
Authors: Wong WM; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Department of Ophthalmology, National University Hospital, National University Health System, Singapore., Tham YC; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Department of Ophthalmology, Yong Loo Lin School of Medicine, National University of Singapore, Singapore., Ayton LN; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia; Department of Optometry and Vision Sciences and Department of Surgery (Ophthalmology), University of Melbourne, Melbourne, Victoria, Australia., Britten-Jones AC; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia; Department of Optometry and Vision Sciences and Department of Surgery (Ophthalmology), University of Melbourne, Melbourne, Victoria, Australia., Edwards TL; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia; Department of Optometry and Vision Sciences and Department of Surgery (Ophthalmology), University of Melbourne, Melbourne, Victoria, Australia., Grigg J; Save Sight Institute, The University of Sydney, Sydney, Australia; Sydney Eye Hospital, Sydney, Australia., Simunovic MP; Save Sight Institute, The University of Sydney, Sydney, Australia; Sydney Eye Hospital, Sydney, Australia., Chen FK; Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia; Centre for Ophthalmology and Visual Science (Lions Eye Institute), The University of Western Australia, Nedlands, Western Australia, Australia., Jin ZB; Beijing Institute of Ophthalmology, Beijing Tongren Eye Center, Beijing Tongren Hospital, Capital Medical University, Beijing Ophthalmology & Visual Sciences Key Laboratory, Beijing, China., Shen RJ; Beijing Institute of Ophthalmology, Beijing Tongren Eye Center, Beijing Tongren Hospital, Capital Medical University, Beijing Ophthalmology & Visual Sciences Key Laboratory, Beijing, China., Sui R; Department of Ophthalmology, State Key Laboratory of Complex Severe and Rare Diseases, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences, Peking Union Medical College, No. 1, Shuai Fu Yuan, Beijing, China., Yang L; Department of Ophthalmology, Peking University Third Hospital, Beijing, China; Beijing Key Laboratory of Restoration of Damaged Ocular Nerve, Peking University Third Hospital, Beijing, China., Zhao C; Eye Institute and Department of Ophthalmology, Eye & ENT Hospital, Fudan University, Shanghai, China., Chen H; Joint Shantou International Eye Center, Shantou University & The Chinese University of Hong Kong, Shantou, China., Li S; Department of Ophthalmology, the First Affiliated Hospital of Xiamen University, School of Medicine, Eye Institute of Xiamen University, Xiamen, Fujian, China., Ding X; Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, China., Bhende M; Shri Bhagwan Mahavir Vitreoretinal services, Medical Research Foundation, Sankara Nethralaya, Chennai, India., Raman R; Shri Bhagwan Mahavir Vitreoretinal services, Medical Research Foundation, Sankara Nethralaya, Chennai, India., Sen P; Shri Bhagwan Mahavir Vitreoretinal services, Medical Research Foundation, Sankara Nethralaya, Chennai, India; Dr Agarwal Eye Hospital, Chandigarh, India., Poornachandra B; Vitreo-Retina Services, Narayana Nethralaya, Bengaluru, India., Chia V; JEC Eye Hospitals and Clinics, Jakarta, Indonesia., Manurung F; Department of Ophthalmology, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada - Sardjito Eye Center, Dr. Sardjito General Hospital, Yogyakarta, Indonesia., Sasongko MB; Department of Ophthalmology, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada - Sardjito Eye Center, Dr. Sardjito General Hospital, Yogyakarta, Indonesia., Ikeda H; Department of Ophthalmology and Visual Sciences, Kyoto University Graduate School of Medicine, Sakyo-ku, Kyoto, Japan., Fujinami K; Laboratory of Visual Physiology, Division of Vision Research, National Institute of Sensory Organs, NHO Tokyo Medical Center, Tokyo, Japan., Woo SJ; Department of Ophthalmology, Seoul National University College of Medicine, Seoul National University Bundang Hospital, Seongnam, Republic of Korea., Kim SJ; Department of Ophthalmology, Samsung Medical Center, Sungkyunkwan University School of Medicine, Seoul, Republic of Korea., Bastion MC; Department of Ophthalmology, Faculty of Medicine, Universiti Kebangsaan Malaysia Medical Center, Kuala Lumpur, Malaysia; Hospital Canselor Tuanku Muhriz, Jalan Yaacob Latif, Bandar Tun Razak, Kuala Lumpur, Malaysia., Kamalden AT; UM Eye Research Centre, Department of Ophthalmology, Universiti Malaya, Kuala Lumpur, Malaysia., Lott PP; OasisEye Specialists, Kuala Lumpur, Malaysia., Fong K; OasisEye Specialists, Kuala Lumpur, Malaysia., Shunmugam M; Ophthalmology, Penang Gleneagles, Malaysia., Lim A; Ophthalmology, Penang Gleneagles, Malaysia., Thapa R; Tilganga Institute of Ophthalmology, Kathmandu, Nepal., Ibañez BMB; Makati Medical Center, Makati City, the Philippines; DOH Eye Center, East Avenue Medical Center, Quezon City, the Philippines., Koh A; Eye & Retina Surgeons, Camden Medical Centre, Singapore., Holder GE; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Department of Ophthalmology, National University Hospital, National University Health System, Singapore., Su X; Singapore National Eye Centre, Singapore Eye Research Institute, Singapore; Ophthalmology & Visual Sciences Academic Clinical Program (EYE ACP), Duke-NUS Medical School, Singapore., Chan CM; Ophthalmology & Visual Sciences Academic Clinical Program (EYE ACP), Duke-NUS Medical School, Singapore; National Healthcare Group Eye Institute, Tan Tock Seng Hospital, Singapore., Fenner BJ; Ophthalmology & Visual Sciences Academic Clinical Program (EYE ACP), Duke-NUS Medical School, Singapore; National Healthcare Group Eye Institute, Tan Tock Seng Hospital, Singapore., Laude A; National Healthcare Group Eye Institute, Tan Tock Seng Hospital, Singapore; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore., Ngo WK; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore., Chen TC; Department of Ophthalmology, National Taiwan University Hospital, Taipei, Taiwan; Center of Frontier Medicine, National Taiwan University Hospital, Taipei, Taiwan., Wang NK; Department of Ophthalmology, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan, Taiwan; Department of Ophthalmology, Vagelos College of Physicians and Surgeons, Columbia University Irving Medical Center, Columbia University, New York, NY, USA., Kang EY; Department of Ophthalmology, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan, Taiwan; Department of Ophthalmology, Vagelos College of Physicians and Surgeons, Columbia University Irving Medical Center, Columbia University, New York, NY, USA., Surawatsatien N; Center of Excellence in Retina, Department of Ophthalmology, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Bangkok, Thailand., Pisuchpen P; Department of Ophthalmology and Division of Academic Affairs, Faculty of Medicine, Chulalongkorn University, Bangkok, Thailand., Sujirakul T; Department of Ophthalmology, Faculty of Medicine, Ramathibodi Hospital, Mahidol University, Bangkok, Thailand., Wongchaisuwat N; Department of Ophthalmology, Faculty of Medicine, Siriraj Hospital, Mahidol University, Bangkok, Thailand., Apivatthakakul A; Department of Ophthalmology, Faculty of Medicine, Chiangmai University, Chiangmai, Thailand., Kumaramanickavel G; Narayana Nethralaya, Narayana Health City, Bengaluru, Karnataka, India., Leroy B; Department of Ophthalmology, Ghent University Hospital, Ghent, Belgium; Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium., Michaelides M; Moorfields Eye Hospital NHS Foundation Trust, London, United Kingdom; UCL Institute of Ophthalmology, University College London, London, United Kingdom., Pontikos N; Moorfields Eye Hospital NHS Foundation Trust, London, United Kingdom; UCL Institute of Ophthalmology, University College London, London, United Kingdom., Cheng CY; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Singapore Eye Research Institute, Singapore National Eye Centre, Singapore., Pang CP; Department of Ophthalmology and Visual Sciences, The Chinese University of Hong Kong, Hong Kong, China., Chen LJ; The Chinese University of Hong Kong, Hong Kong, China., Chan HW; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Department of Ophthalmology, National University Hospital, National University Health System, Singapore; Department of Ophthalmology, Yong Loo Lin School of Medicine, National University of Singapore, Singapore. Electronic address: ophchw@nus.edu.sg.
Source: Asia-Pacific journal of ophthalmology (Philadelphia, Pa.) [Asia Pac J Ophthalmol (Phila)] 2024 Sep-Oct; Vol. 13 (5), pp. 100098. Date of Electronic Publication: 2024 Oct 02.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Elsevier Inc. on behalf of Asia-Pacific Academy of Ophthalmology and Academy of Asia-Pacific Professors of Ophthalmology Country of Publication: United States NLM ID: 101583622 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2162-0989 (Electronic) Linking ISSN: 21620989 NLM ISO Abbreviation: Asia Pac J Ophthalmol (Phila) Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Practice Patterns and Challenges in Managing Inherited Retinal Diseases Across Asia-Pacific: A Survey from the APIED Network.
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Centre for Eye Research Australia, Royal Victorian Eye and Ear Hospital, East Melbourne, Victoria, Australia; Centre for Ophthalmology and Visual Science (Lions Eye Institute), The University of Western Australia, Nedlands, Western Australia, Australia.<br /><searchLink fieldCode="AU" term="%22Jin+ZB%22">Jin ZB</searchLink>; Beijing Institute of Ophthalmology, Beijing Tongren Eye Center, Beijing Tongren Hospital, Capital Medical University, Beijing Ophthalmology & Visual Sciences Key Laboratory, Beijing, China.<br /><searchLink fieldCode="AU" term="%22Shen+RJ%22">Shen RJ</searchLink>; Beijing Institute of Ophthalmology, Beijing Tongren Eye Center, Beijing Tongren Hospital, Capital Medical University, Beijing Ophthalmology & Visual Sciences Key Laboratory, Beijing, China.<br /><searchLink fieldCode="AU" term="%22Sui+R%22">Sui R</searchLink>; Department of Ophthalmology, State Key Laboratory of Complex Severe and Rare Diseases, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences, Peking Union Medical College, No. 1, Shuai Fu Yuan, Beijing, China.<br /><searchLink fieldCode="AU" term="%22Yang+L%22">Yang L</searchLink>; Department of Ophthalmology, Peking University Third Hospital, Beijing, China; Beijing Key Laboratory of Restoration of Damaged Ocular Nerve, Peking University Third Hospital, Beijing, China.<br /><searchLink fieldCode="AU" term="%22Zhao+C%22">Zhao C</searchLink>; Eye Institute and Department of Ophthalmology, Eye & ENT Hospital, Fudan University, Shanghai, China.<br /><searchLink fieldCode="AU" term="%22Chen+H%22">Chen H</searchLink>; Joint Shantou International Eye Center, Shantou University & The Chinese University of Hong Kong, Shantou, China.<br /><searchLink fieldCode="AU" term="%22Li+S%22">Li S</searchLink>; Department of Ophthalmology, the First Affiliated Hospital of Xiamen University, School of Medicine, Eye Institute of Xiamen University, Xiamen, Fujian, China.<br /><searchLink fieldCode="AU" term="%22Ding+X%22">Ding X</searchLink>; Zhongshan Ophthalmic Center, Sun Yat-Sen University, Guangzhou, China.<br /><searchLink fieldCode="AU" term="%22Bhende+M%22">Bhende M</searchLink>; 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Department of Ophthalmology, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada - Sardjito Eye Center, Dr. Sardjito General Hospital, Yogyakarta, Indonesia.<br /><searchLink fieldCode="AU" term="%22Ikeda+H%22">Ikeda H</searchLink>; Department of Ophthalmology and Visual Sciences, Kyoto University Graduate School of Medicine, Sakyo-ku, Kyoto, Japan.<br /><searchLink fieldCode="AU" term="%22Fujinami+K%22">Fujinami K</searchLink>; Laboratory of Visual Physiology, Division of Vision Research, National Institute of Sensory Organs, NHO Tokyo Medical Center, Tokyo, Japan.<br /><searchLink fieldCode="AU" term="%22Woo+SJ%22">Woo SJ</searchLink>; Department of Ophthalmology, Seoul National University College of Medicine, Seoul National University Bundang Hospital, Seongnam, Republic of Korea.<br /><searchLink fieldCode="AU" term="%22Kim+SJ%22">Kim SJ</searchLink>; Department of Ophthalmology, Samsung Medical Center, Sungkyunkwan University School of Medicine, Seoul, Republic of Korea.<br /><searchLink fieldCode="AU" term="%22Bastion+MC%22">Bastion MC</searchLink>; Department of Ophthalmology, Faculty of Medicine, Universiti Kebangsaan Malaysia Medical Center, Kuala Lumpur, Malaysia; Hospital Canselor Tuanku Muhriz, Jalan Yaacob Latif, Bandar Tun Razak, Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Kamalden+AT%22">Kamalden AT</searchLink>; UM Eye Research Centre, Department of Ophthalmology, Universiti Malaya, Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Lott+PP%22">Lott PP</searchLink>; OasisEye Specialists, Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Fong+K%22">Fong K</searchLink>; OasisEye Specialists, Kuala Lumpur, Malaysia.<br /><searchLink fieldCode="AU" term="%22Shunmugam+M%22">Shunmugam M</searchLink>; Ophthalmology, Penang Gleneagles, Malaysia.<br /><searchLink fieldCode="AU" term="%22Lim+A%22">Lim A</searchLink>; Ophthalmology, Penang Gleneagles, Malaysia.<br /><searchLink fieldCode="AU" term="%22Thapa+R%22">Thapa R</searchLink>; Tilganga Institute of Ophthalmology, Kathmandu, Nepal.<br /><searchLink fieldCode="AU" term="%22Ibañez+BMB%22">Ibañez BMB</searchLink>; Makati Medical Center, Makati City, the Philippines; DOH Eye Center, East Avenue Medical Center, Quezon City, the Philippines.<br /><searchLink fieldCode="AU" term="%22Koh+A%22">Koh A</searchLink>; Eye & Retina Surgeons, Camden Medical Centre, Singapore.<br /><searchLink fieldCode="AU" term="%22Holder+GE%22">Holder GE</searchLink>; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Department of Ophthalmology, National University Hospital, National University Health System, Singapore.<br /><searchLink fieldCode="AU" term="%22Su+X%22">Su X</searchLink>; Singapore National Eye Centre, Singapore Eye Research Institute, Singapore; Ophthalmology & Visual Sciences Academic Clinical Program (EYE ACP), Duke-NUS Medical School, Singapore.<br /><searchLink fieldCode="AU" term="%22Chan+CM%22">Chan CM</searchLink>; Ophthalmology & Visual Sciences Academic Clinical Program (EYE ACP), Duke-NUS Medical School, Singapore; National Healthcare Group Eye Institute, Tan Tock Seng Hospital, Singapore.<br /><searchLink fieldCode="AU" term="%22Fenner+BJ%22">Fenner BJ</searchLink>; Ophthalmology & Visual Sciences Academic Clinical Program (EYE ACP), Duke-NUS Medical School, Singapore; National Healthcare Group Eye Institute, Tan Tock Seng Hospital, Singapore.<br /><searchLink fieldCode="AU" term="%22Laude+A%22">Laude A</searchLink>; National Healthcare Group Eye Institute, Tan Tock Seng Hospital, Singapore; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore.<br /><searchLink fieldCode="AU" term="%22Ngo+WK%22">Ngo WK</searchLink>; Lee Kong Chian School of Medicine, Nanyang Technological University, Singapore.<br /><searchLink fieldCode="AU" term="%22Chen+TC%22">Chen TC</searchLink>; Department of Ophthalmology, National Taiwan University Hospital, Taipei, Taiwan; Center of Frontier Medicine, National Taiwan University Hospital, Taipei, Taiwan.<br /><searchLink fieldCode="AU" term="%22Wang+NK%22">Wang NK</searchLink>; Department of Ophthalmology, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan, Taiwan; Department of Ophthalmology, Vagelos College of Physicians and Surgeons, Columbia University Irving Medical Center, Columbia University, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Kang+EY%22">Kang EY</searchLink>; Department of Ophthalmology, Chang Gung Memorial Hospital, Linkou Medical Center, Taoyuan, Taiwan; Department of Ophthalmology, Vagelos College of Physicians and Surgeons, Columbia University Irving Medical Center, Columbia University, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Surawatsatien+N%22">Surawatsatien N</searchLink>; Center of Excellence in Retina, Department of Ophthalmology, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Bangkok, Thailand.<br /><searchLink fieldCode="AU" term="%22Pisuchpen+P%22">Pisuchpen P</searchLink>; Department of Ophthalmology and Division of Academic Affairs, Faculty of Medicine, Chulalongkorn University, Bangkok, Thailand.<br /><searchLink fieldCode="AU" term="%22Sujirakul+T%22">Sujirakul T</searchLink>; Department of Ophthalmology, Faculty of Medicine, Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.<br /><searchLink fieldCode="AU" term="%22Wongchaisuwat+N%22">Wongchaisuwat N</searchLink>; Department of Ophthalmology, Faculty of Medicine, Siriraj Hospital, Mahidol University, Bangkok, Thailand.<br /><searchLink fieldCode="AU" term="%22Apivatthakakul+A%22">Apivatthakakul A</searchLink>; Department of Ophthalmology, Faculty of Medicine, Chiangmai University, Chiangmai, Thailand.<br /><searchLink fieldCode="AU" term="%22Kumaramanickavel+G%22">Kumaramanickavel G</searchLink>; Narayana Nethralaya, Narayana Health City, Bengaluru, Karnataka, India.<br /><searchLink fieldCode="AU" term="%22Leroy+B%22">Leroy B</searchLink>; Department of Ophthalmology, Ghent University Hospital, Ghent, Belgium; Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium.<br /><searchLink fieldCode="AU" term="%22Michaelides+M%22">Michaelides M</searchLink>; Moorfields Eye Hospital NHS Foundation Trust, London, United Kingdom; UCL Institute of Ophthalmology, University College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Pontikos+N%22">Pontikos N</searchLink>; Moorfields Eye Hospital NHS Foundation Trust, London, United Kingdom; UCL Institute of Ophthalmology, University College London, London, United Kingdom.<br /><searchLink fieldCode="AU" term="%22Cheng+CY%22">Cheng CY</searchLink>; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Singapore Eye Research Institute, Singapore National Eye Centre, Singapore.<br /><searchLink fieldCode="AU" term="%22Pang+CP%22">Pang CP</searchLink>; Department of Ophthalmology and Visual Sciences, The Chinese University of Hong Kong, Hong Kong, China.<br /><searchLink fieldCode="AU" term="%22Chen+LJ%22">Chen LJ</searchLink>; The Chinese University of Hong Kong, Hong Kong, China.<br /><searchLink fieldCode="AU" term="%22Chan+HW%22">Chan HW</searchLink>; Centre for Innovation & Precision Eye Health, Yong Loo Lin School of Medicine, National University of Singapore, Singapore; Department of Ophthalmology, National University Hospital, National University Health System, Singapore; Department of Ophthalmology, Yong Loo Lin School of Medicine, National University of Singapore, Singapore. Electronic address: ophchw@nus.edu.sg.
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          Dates:
            – D: 01
              M: 09
              Text: 2024 Sep-Oct
              Type: published
              Y: 2024
          Identifiers:
            – Type: issn-electronic
              Value: 2162-0989
          Numbering:
            – Type: volume
              Value: 13
            – Type: issue
              Value: 5
          Titles:
            – TitleFull: Asia-Pacific journal of ophthalmology (Philadelphia, Pa.)
              Type: main
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