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Parent-Reported Outcome Measures for Individuals with Fragile X Syndrome: Clinically Meaningful Change Thresholds.

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Title: Parent-Reported Outcome Measures for Individuals with Fragile X Syndrome: Clinically Meaningful Change Thresholds.
Authors: Nelson MA; Cincinnati Children's Hospital Medical Center, Cincinnati, USA. Meredith.Nelson@cchmc.org.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA. Meredith.Nelson@cchmc.org., Schmitt LM; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA., Horn PS; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA., Berry-Kravis E; Department of Pediatrics, Rush University Medical Center, Chicago, USA., Hessl D; MIND Institute, University of California Davis, Davis, USA., Shaffer RC; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA., Carpenter R; Allos Pharma, Cambridge, USA., Budimirovic DB; Department of Psychiatry, Fragile X Clinic, Kennedy Krieger Institute, Baltimore, USA., Wang P; Clinical Research Associates, LLC, New York, USA., Reisinger DL; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA., Walton-Bowen K; Clinical Research Associates, LLC, New York, USA., Erickson CA; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Psychiatry , University of Cincinnati, Cincinnati, USA.
Source: Journal of autism and developmental disorders [J Autism Dev Disord] 2026 Apr; Vol. 56 (4), pp. 1658-1670. Date of Electronic Publication: 2024 Nov 23.
Publication Type: Journal Article; Clinical Trial, Phase III
Journal Info: Publisher: Springer Country of Publication: United States NLM ID: 7904301 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-3432 (Electronic) Linking ISSN: 01623257 NLM ISO Abbreviation: J Autism Dev Disord Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Parent-Reported Outcome Measures for Individuals with Fragile X Syndrome: Clinically Meaningful Change Thresholds.
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  Data: <searchLink fieldCode="AU" term="%22Nelson+MA%22">Nelson MA</searchLink>; Cincinnati Children's Hospital Medical Center, Cincinnati, USA. Meredith.Nelson@cchmc.org.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA. Meredith.Nelson@cchmc.org.<br /><searchLink fieldCode="AU" term="%22Schmitt+LM%22">Schmitt LM</searchLink>; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA.<br /><searchLink fieldCode="AU" term="%22Horn+PS%22">Horn PS</searchLink>; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA.<br /><searchLink fieldCode="AU" term="%22Berry-Kravis+E%22">Berry-Kravis E</searchLink>; Department of Pediatrics, Rush University Medical Center, Chicago, USA.<br /><searchLink fieldCode="AU" term="%22Hessl+D%22">Hessl D</searchLink>; MIND Institute, University of California Davis, Davis, USA.<br /><searchLink fieldCode="AU" term="%22Shaffer+RC%22">Shaffer RC</searchLink>; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA.<br /><searchLink fieldCode="AU" term="%22Carpenter+R%22">Carpenter R</searchLink>; Allos Pharma, Cambridge, USA.<br /><searchLink fieldCode="AU" term="%22Budimirovic+DB%22">Budimirovic DB</searchLink>; Department of Psychiatry, Fragile X Clinic, Kennedy Krieger Institute, Baltimore, USA.<br /><searchLink fieldCode="AU" term="%22Wang+P%22">Wang P</searchLink>; Clinical Research Associates, LLC, New York, USA.<br /><searchLink fieldCode="AU" term="%22Reisinger+DL%22">Reisinger DL</searchLink>; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Pediatrics , University of Cincinnati College of Medicine, Cincinnati, USA.<br /><searchLink fieldCode="AU" term="%22Walton-Bowen+K%22">Walton-Bowen K</searchLink>; Clinical Research Associates, LLC, New York, USA.<br /><searchLink fieldCode="AU" term="%22Erickson+CA%22">Erickson CA</searchLink>; Cincinnati Children's Hospital Medical Center, Cincinnati, USA.; Department of Psychiatry , University of Cincinnati, Cincinnati, USA.
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  Data: <searchLink fieldCode="JN" term="%227904301%22">Journal of autism and developmental disorders</searchLink> [J Autism Dev Disord] 2026 Apr; Vol. 56 (4), pp. 1658-1670. <i>Date of Electronic Publication: </i>2024 Nov 23.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer%22">Springer </searchLink><i>Country of Publication: </i>United States <i>NLM ID: </i>7904301 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1573-3432 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2201623257%22">01623257 </searchLink><i>NLM ISO Abbreviation: </i>J Autism Dev Disord <i>Subsets: </i>MEDLINE
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        Value: 10.1007/s10803-024-06634-6
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              Text: 2026 Apr
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