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Towards standardization of person-reported outcomes (PROs) in pediatric diabetes research: A consensus report.

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Title: Towards standardization of person-reported outcomes (PROs) in pediatric diabetes research: A consensus report.
Authors: Barnard-Kelly K; Southern Health NHS Foundation Trust, Southampton, UK., Marrero D; Indiana University School of Public Health, Bloomington, Indiana, USA., de Wit M; Amsterdam UMC, Netherlands, Amsterdam Public Health, Mental Health, Amsterdam, the Netherlands., Pouwer F; Department of Psychology, University of Southern Denmark, Copenhagen, Denmark.; Steno Diabetes Center Odense, Odense, Denmark.; Department of Medical Psychology, Amsterdam UMC, Amsterdam, The Netherlands., Khunti K; Diabetes Research Centre, University of Leicester, Leicester, UK., Hermans N; Research Institute of the Diabetes Academy Mergentheim (FIDAM), Bad Mergentheim, Germany.; Department of Clinical Psychology and Psychotherapy, University of Bamberg, Bamberg, Germany., Pierce JS; Center for Healthcare Delivery Science, Nemours Children's Hospital, Orlando, Florida, USA., Laffel L; Joslin Diabetes Center, Inc., Boston, Massachusetts, USA., Holt RIG; University of Southampton, Southampton, UK., Battelino T; University Medical Center Ljubljana, and Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia., Naranjo D; Stanford University School of Medicine, Stanford, California, USA., Fosbury J; Psychotherapist, Brighton, UK., Fisher L; University of California San Francisco, San Francisco, California, USA., Polonsky W; Behavioral Diabetes Institute, San Diego, California, USA., Weissberg-Benchell J; Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA., Hood KK; Division of Endocrinology and Diabetes, Department of Pediatrics, Stanford University School of Medicine, Stanford, California, USA., Schnell O; Forschergruppe Diabetes e. V, Oberschleißheim, Germany., Messer LH; Barbara Davis Center, University of Colorado, Aurora, Colorado, USA.; Tandem Diabetes Care, San Diego, California, USA., Danne T; Breakthrough T1D, New York, New York, USA., Nimri R; The Jesse Z and Sara Lea Shafer Institute for Endocrinology and Diabetes, National Center for Childhood Diabetes, Schneider Children's Medical Center of Israel, Petah Tikva, Israel.; Israel and Sacker Faculty of Medicine, Tel-Aviv University, Tel-Aviv, Israel., Skovlund S; Evidera, London, UK., Mader JK; Division of Endocrinology and Diabetology, Department of Internal Medicine, Medical University of Graz, Graz, Austria., Sherr JL; Department of Pediatrics, Yale School of Medicine, Yale University, New Haven, Connecticut, USA., Schatz D; Diabetes Institute, University of Florida College of Medicine Past President, American Diabetes Association, Arlington, Florida, USA., O'Neill S; Diabetes UK, London, UK., Doble E; Patient author, Edinburgh, UK., Town M; Children with Diabetes, Cincinnati Children's Hospital, Cincinnati, Ohio, USA., Lange K; Department Medical Psychology, Hannover Medical School, Hannover, Germany., de Beaufort C; Centre Hospitalier de Luxembourg, Luxembourg, GD de Luxembourg, Technology and Medicine, University of Luxembourg, Esch-sur-Alzette, Luxembourg., Gonder-Frederick L; Center for Diabetes Technology, Center for Behavioral Health and Technology, Department of Psychiatry and Neurobehavioral Sciences, University of Virginia, Charlottesville, Virginia, USA., Jaser SS; Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee, USA., Liberman A; Jesse Z. and Sara Lea Shafer Institute of Endocrinology and Diabetes, National Center for Childhood Diabetes, Schneider Children's Medical Center of Israel, Petah Tikva, Israel., Klonoff D; Mills-Peninsula Medical Center, Burlingame, California, USA., Elsayed NA; Health Care Improvement, American Diabetes Association, Harvard Medical School, Boston, Massachusetts, USA., Bannuru RR; Medical Affairs and QI Outcomes, American Diabetes Association, Arlington, Virginia, USA., Ajjan R; Leeds Diabetes Centre, Leeds, UK., Parkin C; CGParkin Communications, Inc., Clark County, Nevada, USA., Snoek FJ; Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
Source: Diabetic medicine : a journal of the British Diabetic Association [Diabet Med] 2025 Mar; Vol. 42 (3), pp. e15484. Date of Electronic Publication: 2024 Dec 17.
Publication Type: Journal Article; Consensus Statement
Journal Info: Publisher: Blackwell Science Country of Publication: England NLM ID: 8500858 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1464-5491 (Electronic) Linking ISSN: 07423071 NLM ISO Abbreviation: Diabet Med Subsets: MEDLINE
Database: MEDLINE Ultimate
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V, Oberschleißheim, Germany.<br /><searchLink fieldCode="AU" term="%22Messer+LH%22">Messer LH</searchLink>; Barbara Davis Center, University of Colorado, Aurora, Colorado, USA.; Tandem Diabetes Care, San Diego, California, USA.<br /><searchLink fieldCode="AU" term="%22Danne+T%22">Danne T</searchLink>; Breakthrough T1D, New York, New York, USA.<br /><searchLink fieldCode="AU" term="%22Nimri+R%22">Nimri R</searchLink>; The Jesse Z and Sara Lea Shafer Institute for Endocrinology and Diabetes, National Center for Childhood Diabetes, Schneider Children's Medical Center of Israel, Petah Tikva, Israel.; Israel and Sacker Faculty of Medicine, Tel-Aviv University, Tel-Aviv, Israel.<br /><searchLink fieldCode="AU" term="%22Skovlund+S%22">Skovlund S</searchLink>; Evidera, London, UK.<br /><searchLink fieldCode="AU" term="%22Mader+JK%22">Mader JK</searchLink>; Division of Endocrinology and Diabetology, Department of Internal Medicine, Medical University of Graz, Graz, Austria.<br /><searchLink fieldCode="AU" term="%22Sherr+JL%22">Sherr JL</searchLink>; Department of Pediatrics, Yale School of Medicine, Yale University, New Haven, Connecticut, USA.<br /><searchLink fieldCode="AU" term="%22Schatz+D%22">Schatz D</searchLink>; Diabetes Institute, University of Florida College of Medicine Past President, American Diabetes Association, Arlington, Florida, USA.<br /><searchLink fieldCode="AU" term="%22O'Neill+S%22">O'Neill S</searchLink>; Diabetes UK, London, UK.<br /><searchLink fieldCode="AU" term="%22Doble+E%22">Doble E</searchLink>; Patient author, Edinburgh, UK.<br /><searchLink fieldCode="AU" term="%22Town+M%22">Town M</searchLink>; Children with Diabetes, Cincinnati Children's Hospital, Cincinnati, Ohio, USA.<br /><searchLink fieldCode="AU" term="%22Lange+K%22">Lange K</searchLink>; Department Medical Psychology, Hannover Medical School, Hannover, Germany.<br /><searchLink fieldCode="AU" term="%22de+Beaufort+C%22">de Beaufort C</searchLink>; Centre Hospitalier de Luxembourg, Luxembourg, GD de Luxembourg, Technology and Medicine, University of Luxembourg, Esch-sur-Alzette, Luxembourg.<br /><searchLink fieldCode="AU" term="%22Gonder-Frederick+L%22">Gonder-Frederick L</searchLink>; Center for Diabetes Technology, Center for Behavioral Health and Technology, Department of Psychiatry and Neurobehavioral Sciences, University of Virginia, Charlottesville, Virginia, USA.<br /><searchLink fieldCode="AU" term="%22Jaser+SS%22">Jaser SS</searchLink>; Department of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee, USA.<br /><searchLink fieldCode="AU" term="%22Liberman+A%22">Liberman A</searchLink>; Jesse Z. and Sara Lea Shafer Institute of Endocrinology and Diabetes, National Center for Childhood Diabetes, Schneider Children's Medical Center of Israel, Petah Tikva, Israel.<br /><searchLink fieldCode="AU" term="%22Klonoff+D%22">Klonoff D</searchLink>; Mills-Peninsula Medical Center, Burlingame, California, USA.<br /><searchLink fieldCode="AU" term="%22Elsayed+NA%22">Elsayed NA</searchLink>; Health Care Improvement, American Diabetes Association, Harvard Medical School, Boston, Massachusetts, USA.<br /><searchLink fieldCode="AU" term="%22Bannuru+RR%22">Bannuru RR</searchLink>; Medical Affairs and QI Outcomes, American Diabetes Association, Arlington, Virginia, USA.<br /><searchLink fieldCode="AU" term="%22Ajjan+R%22">Ajjan R</searchLink>; Leeds Diabetes Centre, Leeds, UK.<br /><searchLink fieldCode="AU" term="%22Parkin+C%22">Parkin C</searchLink>; CGParkin Communications, Inc., Clark County, Nevada, USA.<br /><searchLink fieldCode="AU" term="%22Snoek+FJ%22">Snoek FJ</searchLink>; Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
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