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Between uncertainty and destiny: the patient journey in axial spondyloarthritis care from the perspectives of patients and their relatives.

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Title: Between uncertainty and destiny: the patient journey in axial spondyloarthritis care from the perspectives of patients and their relatives.
Authors: May S; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany., Nordmann G; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany., Gabb F; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany., Boy K; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany., Wagner M; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany., Ohm N; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany., Labinsky H; Rheumatology/Clinical Immunology, Department of Internal Medicine II, University of Würzburg, Würzburg, Germany., Knitza J; Institute for Digital Health, University Hospital of Giessen and Marburg, Philipps-University Marburg, Marburg, Germany.; AGEIS, Université Grenoble Alpes, Grenoble, France., Kuhn S; Institute for Digital Health, University Hospital of Giessen and Marburg, Philipps-University Marburg, Marburg, Germany., Heinze M; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.; Department of Psychiatry and Psychotherapy, Brandenburg Medical School, Immanuel Klinik Rüdersdorf, 15562, Rüdersdorf, Germany., Welcker M; MVZ for Rheumatology Dr. Martin Welcker GmbH, Planegg, Germany., Muehlensiepen F; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany. Felix.Muehlensiepen@mhb-fontane.de.; AGEIS, Université Grenoble Alpes, Grenoble, France. Felix.Muehlensiepen@mhb-fontane.de.
Source: BMC rheumatology [BMC Rheumatol] 2025 Feb 12; Vol. 9 (1), pp. 14. Date of Electronic Publication: 2025 Feb 12.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Ltd Country of Publication: England NLM ID: 101738571 Publication Model: Electronic Cited Medium: Internet ISSN: 2520-1026 (Electronic) Linking ISSN: 25201026 NLM ISO Abbreviation: BMC Rheumatol Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: Between uncertainty and destiny: the patient journey in axial spondyloarthritis care from the perspectives of patients and their relatives.
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  Data: <searchLink fieldCode="AU" term="%22May+S%22">May S</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Nordmann+G%22">Nordmann G</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Gabb+F%22">Gabb F</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Boy+K%22">Boy K</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Wagner+M%22">Wagner M</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Ohm+N%22">Ohm N</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Labinsky+H%22">Labinsky H</searchLink>; Rheumatology/Clinical Immunology, Department of Internal Medicine II, University of Würzburg, Würzburg, Germany.<br /><searchLink fieldCode="AU" term="%22Knitza+J%22">Knitza J</searchLink>; Institute for Digital Health, University Hospital of Giessen and Marburg, Philipps-University Marburg, Marburg, Germany.; AGEIS, Université Grenoble Alpes, Grenoble, France.<br /><searchLink fieldCode="AU" term="%22Kuhn+S%22">Kuhn S</searchLink>; Institute for Digital Health, University Hospital of Giessen and Marburg, Philipps-University Marburg, Marburg, Germany.<br /><searchLink fieldCode="AU" term="%22Heinze+M%22">Heinze M</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany.; Department of Psychiatry and Psychotherapy, Brandenburg Medical School, Immanuel Klinik Rüdersdorf, 15562, Rüdersdorf, Germany.<br /><searchLink fieldCode="AU" term="%22Welcker+M%22">Welcker M</searchLink>; MVZ for Rheumatology Dr. Martin Welcker GmbH, Planegg, Germany.<br /><searchLink fieldCode="AU" term="%22Muehlensiepen+F%22">Muehlensiepen F</searchLink>; Center for Health Services Research, Faculty for Health Sciences, Brandenburg Medical School, Rüdersdorf, Germany. Felix.Muehlensiepen@mhb-fontane.de.; AGEIS, Université Grenoble Alpes, Grenoble, France. Felix.Muehlensiepen@mhb-fontane.de.
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  Data: <searchLink fieldCode="JN" term="%22101738571%22">BMC rheumatology</searchLink> [BMC Rheumatol] 2025 Feb 12; Vol. 9 (1), pp. 14. <i>Date of Electronic Publication: </i>2025 Feb 12.
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