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A Formal Needs Assessment in Palliative Care Clinic Development for Adolescent/Young Adults (AYAs) With Neuromuscular Disease.

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Title: A Formal Needs Assessment in Palliative Care Clinic Development for Adolescent/Young Adults (AYAs) With Neuromuscular Disease.
Authors: Jersak TH; Division of Palliative Medicine (T.H.J., K.L.E, J.L.), Children's Mercy Kansas City, Kansas City, Missouri, USA. Electronic address: thjersak@cmh.edu., Steinfeldt L; Division of Palliative Medicine (L.S., C.T.S.), University of Kansas Medical Center, Kansas City, Kansas, USA., Ellis KL; Division of Palliative Medicine (T.H.J., K.L.E, J.L.), Children's Mercy Kansas City, Kansas City, Missouri, USA., Brooks JV; Department of Population Health (J.V.B.), University of Kansas School of Medicine, Kansas City, Kansas, USA., Linebarger J; Division of Palliative Medicine (T.H.J., K.L.E, J.L.), Children's Mercy Kansas City, Kansas City, Missouri, USA., Statland JM; Department of Neurology (J.M.S.), University of Kansas Medical Center, Kansas City, Kansas, USA., Sinclair CT; Division of Palliative Medicine (L.S., C.T.S.), University of Kansas Medical Center, Kansas City, Kansas, USA.
Source: Journal of pain and symptom management [J Pain Symptom Manage] 2025 May; Vol. 69 (5), pp. e325-e329. Date of Electronic Publication: 2025 Feb 19.
Publication Type: Journal Article
Journal Info: Publisher: Elsevier Country of Publication: United States NLM ID: 8605836 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-6513 (Electronic) Linking ISSN: 08853924 NLM ISO Abbreviation: J Pain Symptom Manage Subsets: MEDLINE
Database: MEDLINE Ultimate
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        Value: 10.1016/j.jpainsymman.2025.02.006
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      – TitleFull: A Formal Needs Assessment in Palliative Care Clinic Development for Adolescent/Young Adults (AYAs) With Neuromuscular Disease.
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              Text: 2025 May
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