Family functioning and health-related quality of life in children and young adults with Marfan syndrome.
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| Title: | Family functioning and health-related quality of life in children and young adults with Marfan syndrome. |
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| Authors: | Crafts LS; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA. lauren.crafts@cardio.chboston.org.; Department of Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA. lauren.crafts@cardio.chboston.org., Sleeper LA; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Uzark K; C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA., Atz AM; Medical University of South Carolina, Charleston, SC, USA., Bradley TJ; University of Saskatchewan, Saskatoon, SK, Canada., Cappella E; Ann and Robert H. Lurie Children's Hospital, Chicago, IL, USA., Fettig V; Icahn School of Medicine at Mount Sinai, Mount Sinai Hospital, New York, NY, USA., Groh GKT; Washington University School of Medicine, St. Louis, MO, USA., Hamstra MS; The Christ Hospital Health Network, Heart and Vascular Institute, Cincinnati, OH, USA., Hartje-Dunn C; Seattle Children's Hospital, Seattle, WA, USA., Levine JC; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Lindsay I; The University of Utah, Salt Lake City, UT, USA., Olson AK; Seattle Children's Hospital, Seattle, WA, USA., MacCarrick G; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Markham LW; Riley Hospital at Indiana University Health, Indiana University School of Medicine, Indianapolis, IN, USA., Morrison T; Children's Hospital of Philadelphia, Philadelphia, PA, USA., Pyeritz RE; Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA., Tierney S; Lucile Packard Children's Hospital Stanford, Stanford University School of Medicine, Palo Alto, CA, USA., Lacro RV; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA. |
| Source: | Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jun; Vol. 34 (6), pp. 1647-1655. Date of Electronic Publication: 2025 Mar 18. |
| Publication Type: | Journal Article; Multicenter Study |
| Journal Info: | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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| ISSN: | 1573-2649 |
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| DOI: | 10.1007/s11136-025-03944-9 |
