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Family functioning and health-related quality of life in children and young adults with Marfan syndrome.

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Title: Family functioning and health-related quality of life in children and young adults with Marfan syndrome.
Authors: Crafts LS; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA. lauren.crafts@cardio.chboston.org.; Department of Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA. lauren.crafts@cardio.chboston.org., Sleeper LA; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Uzark K; C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA., Atz AM; Medical University of South Carolina, Charleston, SC, USA., Bradley TJ; University of Saskatchewan, Saskatoon, SK, Canada., Cappella E; Ann and Robert H. Lurie Children's Hospital, Chicago, IL, USA., Fettig V; Icahn School of Medicine at Mount Sinai, Mount Sinai Hospital, New York, NY, USA., Groh GKT; Washington University School of Medicine, St. Louis, MO, USA., Hamstra MS; The Christ Hospital Health Network, Heart and Vascular Institute, Cincinnati, OH, USA., Hartje-Dunn C; Seattle Children's Hospital, Seattle, WA, USA., Levine JC; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA., Lindsay I; The University of Utah, Salt Lake City, UT, USA., Olson AK; Seattle Children's Hospital, Seattle, WA, USA., MacCarrick G; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Markham LW; Riley Hospital at Indiana University Health, Indiana University School of Medicine, Indianapolis, IN, USA., Morrison T; Children's Hospital of Philadelphia, Philadelphia, PA, USA., Pyeritz RE; Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA., Tierney S; Lucile Packard Children's Hospital Stanford, Stanford University School of Medicine, Palo Alto, CA, USA., Lacro RV; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.
Source: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2025 Jun; Vol. 34 (6), pp. 1647-1655. Date of Electronic Publication: 2025 Mar 18.
Publication Type: Journal Article; Multicenter Study
Journal Info: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: Family functioning and health-related quality of life in children and young adults with Marfan syndrome.
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  Data: <searchLink fieldCode="AU" term="%22Crafts+LS%22">Crafts LS</searchLink>; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA. lauren.crafts@cardio.chboston.org.; Department of Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, 02115, USA. lauren.crafts@cardio.chboston.org.<br /><searchLink fieldCode="AU" term="%22Sleeper+LA%22">Sleeper LA</searchLink>; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Uzark+K%22">Uzark K</searchLink>; C.S. Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.<br /><searchLink fieldCode="AU" term="%22Atz+AM%22">Atz AM</searchLink>; Medical University of South Carolina, Charleston, SC, USA.<br /><searchLink fieldCode="AU" term="%22Bradley+TJ%22">Bradley TJ</searchLink>; University of Saskatchewan, Saskatoon, SK, Canada.<br /><searchLink fieldCode="AU" term="%22Cappella+E%22">Cappella E</searchLink>; Ann and Robert H. Lurie Children's Hospital, Chicago, IL, USA.<br /><searchLink fieldCode="AU" term="%22Fettig+V%22">Fettig V</searchLink>; Icahn School of Medicine at Mount Sinai, Mount Sinai Hospital, New York, NY, USA.<br /><searchLink fieldCode="AU" term="%22Groh+GKT%22">Groh GKT</searchLink>; Washington University School of Medicine, St. Louis, MO, USA.<br /><searchLink fieldCode="AU" term="%22Hamstra+MS%22">Hamstra MS</searchLink>; The Christ Hospital Health Network, Heart and Vascular Institute, Cincinnati, OH, USA.<br /><searchLink fieldCode="AU" term="%22Hartje-Dunn+C%22">Hartje-Dunn C</searchLink>; Seattle Children's Hospital, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22Levine+JC%22">Levine JC</searchLink>; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.<br /><searchLink fieldCode="AU" term="%22Lindsay+I%22">Lindsay I</searchLink>; The University of Utah, Salt Lake City, UT, USA.<br /><searchLink fieldCode="AU" term="%22Olson+AK%22">Olson AK</searchLink>; Seattle Children's Hospital, Seattle, WA, USA.<br /><searchLink fieldCode="AU" term="%22MacCarrick+G%22">MacCarrick G</searchLink>; Johns Hopkins University School of Medicine, Baltimore, MD, USA.<br /><searchLink fieldCode="AU" term="%22Markham+LW%22">Markham LW</searchLink>; Riley Hospital at Indiana University Health, Indiana University School of Medicine, Indianapolis, IN, USA.<br /><searchLink fieldCode="AU" term="%22Morrison+T%22">Morrison T</searchLink>; Children's Hospital of Philadelphia, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Pyeritz+RE%22">Pyeritz RE</searchLink>; Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.<br /><searchLink fieldCode="AU" term="%22Tierney+S%22">Tierney S</searchLink>; Lucile Packard Children's Hospital Stanford, Stanford University School of Medicine, Palo Alto, CA, USA.<br /><searchLink fieldCode="AU" term="%22Lacro+RV%22">Lacro RV</searchLink>; Department of Cardiology, Department of Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, MA, USA.
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  Data: <searchLink fieldCode="JN" term="%229210257%22">Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation</searchLink> [Qual Life Res] 2025 Jun; Vol. 34 (6), pp. 1647-1655. <i>Date of Electronic Publication: </i>2025 Mar 18.
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Springer+Netherlands%22">Springer Netherlands </searchLink><i>Country of Publication: </i>Netherlands <i>NLM ID: </i>9210257 <i>Publication Model: </i>Print-Electronic <i>Cited Medium: </i>Internet <i>ISSN: </i>1573-2649 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2209629343%22">09629343 </searchLink><i>NLM ISO Abbreviation: </i>Qual Life Res <i>Subsets: </i>MEDLINE
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        Value: 10.1007/s11136-025-03944-9
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