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Longitudinal description of health-related quality of life and depressive symptoms in polyQ spinocerebellar ataxia patients.

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Title: Longitudinal description of health-related quality of life and depressive symptoms in polyQ spinocerebellar ataxia patients.
Authors: Iskandar A; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany. audrey.iskandar@dzne.de., Buchholz M; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany., Blotenberg I; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany., Schmitz-Hübsch T; Experimental and Clinical Research Center, A cooperation of Max-Delbrueck Center of Molecular Medicine and Charité, Universitätsmedizin Berlin, Berlin, Germany., Faber J; German Center for Neurodegenerative Diseases E.V. (DZNE), Site Bonn, Bonn, Germany.; Department of Neurology, University of Bonn, Bonn, Germany., Jacobi H; Department of Neurology, University Hospital Heidelberg, Heidelberg, Germany., Xie F; Centre for Health Economics and Policy Analysis, Department Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Canada., Grobe-Einsler M; German Center for Neurodegenerative Diseases E.V. (DZNE), Site Bonn, Bonn, Germany.; Department of Neurology, University of Bonn, Bonn, Germany., Klockgether T; German Center for Neurodegenerative Diseases E.V. (DZNE), Site Bonn, Bonn, Germany.; Department of Neurology, University of Bonn, Bonn, Germany., Michalowsky B; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany.
Corporate Authors: ESMI and EUROSCA Study groups
Source: Journal of neurology [J Neurol] 2025 Apr 09; Vol. 272 (5), pp. 323. Date of Electronic Publication: 2025 Apr 09.
Publication Type: Journal Article
Journal Info: Publisher: Springer-Verlag Country of Publication: Germany NLM ID: 0423161 Publication Model: Electronic Cited Medium: Internet ISSN: 1432-1459 (Electronic) Linking ISSN: 03405354 NLM ISO Abbreviation: J Neurol Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Iskandar+A%22">Iskandar A</searchLink>; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany. audrey.iskandar@dzne.de.<br /><searchLink fieldCode="AU" term="%22Buchholz+M%22">Buchholz M</searchLink>; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Blotenberg+I%22">Blotenberg I</searchLink>; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany.<br /><searchLink fieldCode="AU" term="%22Schmitz-Hübsch+T%22">Schmitz-Hübsch T</searchLink>; Experimental and Clinical Research Center, A cooperation of Max-Delbrueck Center of Molecular Medicine and Charité, Universitätsmedizin Berlin, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Faber+J%22">Faber J</searchLink>; German Center for Neurodegenerative Diseases E.V. (DZNE), Site Bonn, Bonn, Germany.; Department of Neurology, University of Bonn, Bonn, Germany.<br /><searchLink fieldCode="AU" term="%22Jacobi+H%22">Jacobi H</searchLink>; Department of Neurology, University Hospital Heidelberg, Heidelberg, Germany.<br /><searchLink fieldCode="AU" term="%22Xie+F%22">Xie F</searchLink>; Centre for Health Economics and Policy Analysis, Department Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Canada.<br /><searchLink fieldCode="AU" term="%22Grobe-Einsler+M%22">Grobe-Einsler M</searchLink>; German Center for Neurodegenerative Diseases E.V. (DZNE), Site Bonn, Bonn, Germany.; Department of Neurology, University of Bonn, Bonn, Germany.<br /><searchLink fieldCode="AU" term="%22Klockgether+T%22">Klockgether T</searchLink>; German Center for Neurodegenerative Diseases E.V. (DZNE), Site Bonn, Bonn, Germany.; Department of Neurology, University of Bonn, Bonn, Germany.<br /><searchLink fieldCode="AU" term="%22Michalowsky+B%22">Michalowsky B</searchLink>; German Center for Neurodegenerative Diseases (DZNE), Site Rostock/Greifswald, Patient-Reported Outcomes & Health Economics Group, Ellernholzstrasse 1-2, 17489, Greifswald, Germany.
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              Text: 2025 Apr 09
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